Anyone taking levo and T3 ? : Hey folks, seeking... - Thyroid UK

Thyroid UK

139,399 members163,631 posts

Anyone taking levo and T3 ?

Mobilepirate profile image
12 Replies

Hey folks, seeking some guidance, aprecciate any help, im wanting to get on a proper dose of t3 to feel better

I had a full TT, now just on levothyroxine, 100mcg

Im hypo with TSH of 5,64 µUI/mL

Lab REF being 0,40 a 4,30 µUI/mL

--

FT4 1,61 ng/dL

Lab REF 0,70 a 1,90 ng/dL

--

I will ask tomorrow for a FT3 and rT3 test and will update here

Should i lower my dose of levothyroxine prior from starting T3, If so, how much should i drop?

What would be a resonable dose of t3 to start with, 7,5 mg twice a day?

Thank you for your time

Written by
Mobilepirate profile image
Mobilepirate
To view profiles and participate in discussions please or .
Read more about...
12 Replies
greygoose profile image
greygoose

Are you in the UK? If so, no way will you get an rT3 test. It isn't even necessary because it won't give you any useful information that you can't get from testing FT4 and FT3 at the same time. And, with your levels of FT4 - FT4: 1.61 pmol/l (Range 0.7 - 1.9) 75.83% - even if your rT3 is high, it will have nothing to do with your thyroid because your FT4 isn't high enough. There are many, many causes of high rT3, and only one of them has anything to do with thyroid.

FT3, on the other hand, is essential to know how well you convert. :)

Mobilepirate profile image
Mobilepirate in reply to greygoose

Hello there,

Thanks for reaching out, in not in the UK, brazil here. got me :)

-even if your rT3 is high, it will have nothing to do with your thyroid because your FT4 isn't high enough

What thyroid mate? I mean, i had to remove it , due to health issues(ptc)... But you're saying that my FT4 is low anyway, that what you're saying Isnt It?

-FT4 and FT3 at the same time.

I Will do that then, today i will ask the doc for these to be measured, i will get the rT3 Just to base myself om how its going in general

I will update here once i get It, do you think that i should lower my t4 dose to start with T3? Im hypo on that dose already, what do you think?

Thanks for your time mate.

greygoose profile image
greygoose in reply to Mobilepirate

Yes, ok, you've had your thyroid removed, but when we use the word 'thyroid' on here, we mean 'thyroid status' - i.e. FT3/4 levels. Not necessarily the gland itself.

No, I didn't say your FT4 was low, it isn't. It's 75.83% through the range, which is a good level for most hypos. But, it isn't high enough to cause high rT3. Which is good.

will get the rT3 Just to base myself om how its going in general

Doesn't matter how it's going in general, it's totally irrelevant. rT3 is inert - it doesn't do anything - it's just a step in the recuperation of iodine, which is recycled in the body.

And suppose it was high? What would you do about it?

do you think that i should lower my t4 dose to start with T3? Im hypo on that dose already, what do you think?

I don't think it's necessary. Your FT4 will drop anyway when you start T3, because that's the way it works.

But, the reason you're still hypo on that dose is probably because you aren't converting it to T3 very well. So, get the test and let's see the results. ;)

Mobilepirate profile image
Mobilepirate

No, I didn't say your FT4 was low, it isn't. It's 75.83% through the range, which is a good level for most hypos. But, it isn't high enough to cause high rT3. Which is good.

But, the reason you're still hypo on that dose is probably because you aren't converting it to T3 very well. So, get the test and let's see the results. ;)

Really appreciate your time and help :)

greygoose profile image
greygoose in reply to Mobilepirate

You're welcome. :)

pennyannie profile image
pennyannie

Hello Mobilepirate and welcome to the forum :

a fully functioning working thyroid would be supporting you on a daily basis with trace elements of T1. T2 and calcitonin + a measure of T3 at around 10 mcg + a measure of T4 at around 100 mcg - with T3 said to be around 4 x more powerful than T4.

When on T4 only we generally feel best when the T4 is up in the top quadrant at around 80% through the range with the T3 tracking just behind at around 60/70% through its range and at around a 1/4 ratio T3/T4.

No thyroid hormone replacement works well until your core strength vitamins and minerals are up and maintained at optimal levels - and these are ferritin, folate, B12 and vitamin D.

Some people can get by on T4 only.

Others find T4 seems to stop working as well as it once did and that by adding in a little T3 - at around a similar level to that they had when they had a thyroid - restores T3/T4 hormonal balance and they feel better.

Some can't tolerate T4 and need to take T3 only - as you can live without T4 but you can't live without T3.

Whilst others find their health restored better taking Natural Desiccated Thyroid which contains all same hormones as the human thyroid gland and derived from pig thyroids, dried and ground down into tablets referred to as grains.

In order to help you better we need a blood test showing :-

TSH, Free T3 + Free T4, inflammation, antibodies and ferritin, folate, B12 and vitamin D -

This needs to be a fasting, early morning blood draw -

just take in water until after the blood draw -

and having left a 24 hour window from your last dose of T4 -

and having been of all supplements being tested and anything containing biotin for around 7 days - so we measure what your body is holding rather than that just recently ingested.

What is ptc - ?

Mobilepirate profile image
Mobilepirate in reply to pennyannie

Hello pennyane

My antibodies are down, thyoglobulin and anti tpo, former is at 0'5, and anti tpo less than 12ng/dl i think its the measurment, will confirm.

In order to help you better we need a blood test showing :-

TSH, Free T3 + Free T4, inflammation, antibodies and ferritin, folate, B12 and vitamin D -

TSH is high- Its 5,64 µUI/mL

FT4 is at 75.83% through the range, based in what user greygoose explained to me,

FT4 was: 1.61 pmol/l (Range 0.7 - 1.9)

I measured again today, FT3 and FT4 and TSH, will update once i get the results

Regarding b12, i take b12 once or twice a week Just in case due to other reasons.

Regarding vitamin D i take calcitiriol If not daily just cycling day yes day no, its the active form of vitamin D.

Still while taking It my vitamin D wasnt high, It was 37ng/ml maybe the measurment for the Active form of D in the blood is diffrent

Ferritin and folate i gotta measure, but often take some rice bran few days a week, It has folate.

What is ptc - ?

Thyroid cancer,

I will update as soon as i get the results

Thanks for you time

pennyannie profile image
pennyannie in reply to Mobilepirate

OK - we can all read what is being written by you - this is an open patient to patient forum but sometimes questions get repeated simply because of timing issues - so there is no need for you to keep repeating information.

Go easy on the cycling until your medication is optimal - going that extra mile - and pushing yourself not a good idea at the moment - your thyroid was your gear change mechanism - and your body needs time to recuperate and reset itself.

The thyroid is a major gland responsible for the full synchronisation of your body from your physical ability and stamina, through to your mental, emotional, psychological and spiritual well being, your inner central heating system and your metabolism.

SlowDragon profile image
SlowDragonAdministrator

Get vitamin D, folate, ferritin and B12 levels tested as next step

For good conversion of Ft4 (levothyroxine) to Ft3 (active hormone) we need good vitamin levels

Many patients on replacement thyroid hormones need to supplement vitamin D, magnesium and vitamin B complex continuously to maintain good levels

Some people also initially need separate B12

Some need to work on improving low iron/ferritin

How much levothyroxine are you taking

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

is this how you did your test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Mobilepirate profile image
Mobilepirate in reply to SlowDragon

Hey slow dragon

Get vitamin D, folate, ferritin and B12 levels tested as next step

I take b12 ocasionally, Rice bran also, It hás b vitamins and other stuff as iron, folate, others vitamins, i use caciltriol, active form of D, day on day off, i measured my D levels again today. Last time It was 37ng/ml despite calcitiriol

How much levothyroxine are you taking

100mcg

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

Ate an Orange and bread some several hours before testing, around 7 hours before. Tested around 12pm, took the dose of levothyroxine at 5 am.

I will update here on the thread as soon as i get the new results

Thanks for y'all time. Appreciate It.

SlowDragon profile image
SlowDragonAdministrator in reply to Mobilepirate

Next time test before 9am and last dose levothyroxine 24 hours before test

Mobilepirate profile image
Mobilepirate

Hey folks.

End of the day, the doc ended not asking for fT3 levels, but t3 count in the blood.I will go to the lab and pay out of pocket for the FT3.

since the day i got the former updated results, i upped my dose from 100 mcg to 125mcg.13 days or so on that dose.

my TSH lowered from 5,64 µUI/mL a bit to 3,21 µUI/mL,

FT4 is 2,2ng/dl

(not fasted when i measured, not 24h from the last dose)

T3 in blood (not free T3) is 104 ng/dl

Despite this i got back to my 100mcg, felt that It didnt changed anything , fatigue still high, maybe worst even, as i wasnt feeling well with it i got back to 100mcg

Will update once i test fT3, and i will get the TSH again and FT4 again , this time i will get it done properly as you folks advised

Going to update here when its done

Thank you for your time.

Not what you're looking for?

You may also like...

Levo or T3? What to take?

currently on Levothyroxine (100-125mcg), but recently read a pinterest article on Levothyroxine Can...

Taking a bit of Levo with your T3.

T4 & T3). I'm going to start splitting my Levo and taking a bit with each dose of T3 and see what...

can I take t3 with levo?

time as levo? Also, do you have to follow same dosing protocol with t3 as with levo? I.e.empty...

Lab Results on 2 grains NDT - Switching to T3 Only

best times to dose and how much at each dose. Any advice would be appreciated. Thank you. Lab...

Advice on Adding T3 to Levo

my latest results, do you think I should add T3 to my 100 Levo? TSH, 1.63 mIU/L (0.27 - 4.20)...