Hello again. Just had repeat blood tests to check I'm on the right dose of Carbimazole. I have been diagnosed with graves disease and have decided to take the tablet route first. I've noticed a massive amount of hair loss in recent weeks and was hoping it was just my tablets that needed altering but endo had said I'm normal now. TSH 2.58
T4 13.3
T3 4.5
Any suggestions as to why I'm losing hair if my levels are OK??? Any suggestions to stopping it?
what’s the range on FT4 & FT3. they look quite low.
I don't know... he's only provided the numbers I've given
I try to obtain a printout. I wouldn’t accept verbal / handwritten too much scope for error.
What is your carbimazole daily dose?
Only 5mg a day
I can get blood tests results from gp great cause they are on the app but I just get a letter from the hospital endo
That’s frustrating, you can request copy of test results via endocrinology department secretary / receptionist- or most hospital have records department with a set form to request records. Can be done by email / may need ID & witness signature.
Doctors view 5mg as lowest possible dose, but you can split a pill of take every other day. So if you do learn the FT4 & FT3 are low speak to you doctor about lowering dose.
Low ferritin can often affect hair, has that been tested?
Some links you might find useful in connection with hair loss :
ncbi.nlm.nih.gov/pmc/articl...
Your results look low
Essential to test full iron panel including ferritin
Plus vitamin D, folate and B12
what vitamin supplements are you taking
Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
Post all about what time of day to test
healthunlocked.com/thyroidu...
Testing options and includes money off codes for private testing
Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins
medichecks.com/products/adv...
Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins
bluehorizonbloodtests.co.uk...
Only do private testing early Monday or Tuesday morning.
Link about thyroid blood tests
thyroiduk.org/testing/thyro...
Tips on how to do DIY finger prick test
support.medichecks.com/hc/e...
Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee
hi spagbol24
I was told by my endocrinologist that the hair loss was from the initial onslaught of the thyroid going wrong. I had hair loss for quite a while and even when my levels got back in range. The condition of my hair also changed too. It became quite brittle and lacking substance. It stopped over time and recovered so don’t be too worried about it.
Thank you. I was wondering about that. Whether it could be delayed from before when I wasn't on medication. I had a thyroid storm in January... so maybe its the after effects of that. I do appreciate your reassurance
Hey there again :
I think your T3 and T4 now ' look too low ; wht are the ranges and this may well cause disabling symptoms.
Hair loss could also be down to iron levels ?
When metabolism runs too fast as in hyper or too slow as in hypo the body struggles to extract key nutrients through food no matter how well and clean you eat -
so it's sensible to also get your core strength vitamins and minerals run as non optimal levels of your ferritin, folate, B12 and vitamin D can compromise your ill health further than necessary.
You do not need to accept RAI thyroid ablation - many people say No - and stay on the AT drug and if this doesn't work out well for them - opt for a thyroidectomy - so please try and find a way forward on the least invasive option - the Anti Thyroid drug.
I sent you the links to the research papers suggesting RAI is not the best option for the patient - just print these out and if feeling pressured discuss these findings with your endocrinologist and doctor.
To be honest, the hair loss has taken a back seat cause I had a small spot removed from my tongue two weeks ago and I now think that's triggered Burning Mouth Syndrome. It never seems to end at the moment
Alarming hair loss happening
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