I am not on any thyroid meds yet I’m seeing Dr next week. But I just feel so unwell I just needed to share results for help before the appointment. Thank you
Well, I'm afraid your not likely to get put on thyroid hormone replacement with those results because your TSH is still well within range - although too high for good health but doctors don't know that, they like it to go over 10 before they will diagnose - pure ignorance, of course. The are not interested in the frees, and probably don't even know what they are, nor are they interested in symptoms. They just look at the TSH usually.
All I can say that might help - and I don't have any links to scientific papers to back me up - is this:
- A euthyroid (i.e. with no thyroid problems) is around 1
- Over 2 shows that the thyroid is struggline to make enough hormone, for some reason
- Over 3 is technically hypo, and in some countries you would get treatment at that point. But not on the NHS who want to reduce the number of people diagnosed hypo as much as they can!
I would suggest that you ask your doctor to do a full iron panel because your ferritin is low and that might be causing some of your symptoms. But, you don't want to take iron tablets without seeing your other iron-related levels first. Your serum iron could be good/high even though your ferritin (iron stores) is low. In which case iron supplements would not be a good idea. You would have to try and raise it by increasing iron-rich foods. But, don't be surprised if he refuses because it's still 'in-range', and therefore must be good. Doctors know less about nutrients than they do about thyroid!
Thank you so much for your in-depth reply. I do appreciate what you’ve explained. I have been to my own gp several times and as you say they are not interested. But this time I have booked a private gp who is a thyroid specialist, so I’m really hoping he may give me a trial on Levothyroxine.
May I ask one last question please. If I was given a trial on Levothyroxine for say 3 mths and it didn’t prove successful, is it ok to stop then or would it cause problems to my own thyroid if I had to stop , please ??
No, it wouldn't cause your thyroid any problems. The problem is that it can take years to find out if it's going to help, starting on a low dose and increasing slowly. It's not like taking an aspirin. Nothing happens quickly with hormones. So, being given a 'trial' is a bit of a nonsense, actually.
Look at it this way: you need thyroid hormone to live. There are two thyroid hormones of consequence: T4 and T3. The one that is usually prescribed is T4 - aka levo.
Levo is basically a storage hormone that doesn't do much until it is converted into the active hormone, T3. But not everybody is very good at that, which is why some people that that levo isn't 'working' for them. But, try and convince a doctor of that! It's very difficult because they maintain that all hypos are just fine on levo! None so blind as those that don't want to see!
But it's going to take months, and several increases in dose, to find out how well you convert. And those increases can be three months apart. So, your trial would have to be at least a year, I would think, before you could come to any conclusions.
Of course, it could happen that you immediately feel better right from the start and it just keeps getting better as you increase. But that's not everyone's experience. So, think hard before accepting or suggesting any sort of trial - they are usually a set-up, anyway!
But it just goes to show how ignorant the majority of doctors are that they put everything down to stress/depression and think that antidepressants are the answer to everything. One wonders what exactly they learnt in all that time in med school!
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