Vencamil 25, 50 and 75: Just heard: Finally, I... - Thyroid UK

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Vencamil 25, 50 and 75

helvella profile image
helvellaAdministrator
33 Replies

Just heard:

Finally, I am pleased to say, that the wait for further strengths of Vencamil (Levothyroxine Aristo) will be coming to an end. I’ll confirm more accurate timings nearer the time but, I can confirm that the 25mcg, 50 mcg and 75mcg strengths should be available in pharmacy (and listed on GP prescribing systems) towards the end of August this year.

Shame that is still a way off but good to have confirmation of a date window. Immediately in my calendar - have just used 21st as a proxy for end of August. :-)

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helvella profile image
helvella
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33 Replies
RedApple profile image
RedAppleAdministrator

Yippee! (How ridiculous is it to get excited about the arrival of thyroid hormone tablets 🙃)

helvella profile image
helvellaAdministrator in reply toRedApple

First time an alternative 75.

And I believe all will be readily splittable (by finger pressure) which opens up the possibility of 12.5 as half a 25 and 37.5 as half a 75 and in combinations thereof to achieve multiple doses that can otherwise be difficult to get. (MHRA will not support splitting, I'm sure, but argue as alternate day dosing, if needed.)

TiggerMe profile image
TiggerMeAmbassador

Yay 😃

Jaydee1507 profile image
Jaydee1507Administrator

Hurrah!

🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧

^ bunting. I'm just hanging out the flags. 😃

tattybogle profile image
tattybogle

what a bunch of saddo's :) luv u all really ..... i'm going to do something REALLY exiting and attempt to cut the grass ..... which will obviously make it rain , so i may be back in 10 minutes.

Hedgeree profile image
Hedgeree

Brilliant! 😊

Humphre profile image
Humphre

I've finally got Vencamil in 100s but the 25 had to be Mercury Pharma never had before so will monitor closely over next two months.My update coming soon from 1st endo chat, I might have low cortisol.

thyroidsymtoms profile image
thyroidsymtoms in reply toHumphre

Hi Is mercury pharma levothryoxine without monnitol and lactose. My GP threw a fit when I asked him to prescribe me Levothroxine without monnitol and lactose, he said I need to find out the medicine's name. I am Teva levothyroxine but i get frequent urination which my GP seems to think is normal .

helvella profile image
helvellaAdministrator in reply tothyroidsymtoms

Advanz (Mercury Pharma) levothyroxine contains lactose.

The ONLY UK levothyroxine which has NEITHER lactose NOR mannitol is Aristo Vencamil. And that is currently only available in 100 microgram dosage.

helvella - Thyroid Hormone Medicines - UK

The UK document contains up-to-date versions of the Summary Matrixes for levothyroxine tablets, oral solutions and also liothyronine available in the UK. Includes descriptions of tablet markings which allow identification. Latest updates include all declared ingredients for all UK products and links to Patient Information Leaflets, etc.

dropbox.com/s/bo2jzxucgp9hl...

thyroidsymtoms profile image
thyroidsymtoms in reply tohelvella

Hi Helvella

Many thanks for the document. Though I find it difficult to find from the document which Levothyroxine is lactose and mannitol free. I searched and found Aristo vencamil is mannitol and lactose free but only available in 100mg packing.

It quite bit of a struggle to convince my GP to increase my dose, he claims to suggest TSH 3.81 is normal and my symptoms of cold hands and frequent urination is also normal. He refused T3 medication and has refused testing T4 claiming NHS does not allow and refused referral to endocrinologist. If share NICE guidance he claims those just recommendation and expericence is more important.

With great difficulty and tantrums, he has agreed to increase my dose to 75 mg but advised if i know the does without mannitol and lactose then I should advise him.

If is not to much trouble and if you can please advise, which Levothyroxine brands in UK are mannitol and lactose-free in 75 mcg or a combination which make up 75 mg without both.

helvella profile image
helvellaAdministrator in reply tothyroidsymtoms

What can I do to make it easier for you? A real question because I want it to provide the answer people need - quickly and easily.

I don't tend to post the image as above because, when things change, the information goes out of date. But it really isn't viable for me to return and update posts/replies. Far better to view the current document! :-)

Screenshot of levothyroxine matrix
thyroidsymtoms profile image
thyroidsymtoms in reply tohelvella

@helvella you are a star.

God bless.

Humphre profile image
Humphre in reply tothyroidsymtoms

I seem to be ok with the mercury Pharma however not doing to good with the reduction alternate 100/125 so have requested to go back to 125 daily seems to suit they'll probably wait till blood tests those are on Tuesday again endo concerned re TSH levels & my cortisol is low so I've a ACTH stim test next month. My GP has be accommodating re brands but I struggle with chemists so now have a prescription online so I can check local chemists to see who has my brand a pain but saves hassle in the end. Good luck finding yours.

thyroidsymtoms profile image
thyroidsymtoms in reply toHumphre

My GP refused a referral to Endo. He has just does not want any accountability and want me to self medicate. He has even refused T4 blood test claiming NHS does not do T4 test any more even though my T4 test was done in august 2023. He initially said he will look at T3 when i told him about nice guidance but in the last appointment he scoffed at NICE's recommendation stating NICE is just a recommendation and can not trump experience. This was supposed to be my new and better gp assigned to me in Nov 2023 after I complained in Aug about my last GP who used to brand everything as depression and anxiety and would never agree on any blood test.

Humphre profile image
Humphre in reply tothyroidsymtoms

Oh dear it looks like they're not happy with you & it's becoming personal I really hope the situation changes for you. My GP was worried about TSH levels (silly man) so that's why I was refered(30+ years hypothyroid) only I've complicated it as it's in another NHS trust 🤦 & the endo only does phone appointment which I've now asked if I can see someone on face to face due to tinnitus can't always hear & comprehend. A minefield being hypothyroid good luck on your journey & hopefully you'll find another up to date GP 😳

helvella profile image
helvellaAdministrator in reply tothyroidsymtoms

I think you'd be better of discussion either on one or your existing posts - or a new post. Adding onto older general posts like this means your replies are likely to be missed.

thyroidsymtoms profile image
thyroidsymtoms in reply tohelvella

oops sorry i did ask a related question which has troubled me for so long . Many thanks for running this proactive forum and information

healthunlocked.com/thyroidu...

birkie profile image
birkie

That's good news helvella 👍 I've just been prescribed that, 100 micrograms tablets, I've to take 25micrograms first so splitting the 100.. But I'm going slower than 25micrograms due to gastric issues doing 12.5 using my cutter, although it's OK cutting the 100 tablets it can be a pain at times😣 so this should be very much easier, when I actually get to take them in 5 days time👍

helvella profile image
helvellaAdministrator in reply tobirkie

I appreciate the splitting into 25, etc., requires a cutter of some sort. But are you aware that the first split can be done by thumb pressure alone?

(This is not approved by the MHRA in the UK but appears in many other countries.)

How to split Aristo levothyroxine tablets
birkie profile image
birkie in reply tohelvella

Never knew that, but I've just been prescribed them, started them on Monday, but due to another round of botched thyroid blood tests at my surgery I've now to stop them for 10 days until they leave my system and get bloods done again 🤦 I'm really hoping these ones work and I have no gastric issues 🤞🤞🙏🙏🙏🙏

TiggerMe profile image
TiggerMeAmbassador

This is great news, though I shan't be enlightening my GP/ Endo/ Dispensary as I use the fact that Vencamil is only available in 100mcg to my advantage 🤐😁

Regenallotment profile image
RegenallotmentAmbassador in reply toTiggerMe

🤣🤭

Regenallotment profile image
RegenallotmentAmbassador

great news! 👏🙏

thyroidsymtoms profile image
thyroidsymtoms

Is there any update on vencamil 25 mg and 50 mg now being on market or launch is delayed

helvella profile image
helvellaAdministrator in reply tothyroidsymtoms

25, 50 and 75 microgram Vencamil tablets have been released into UK distribution. :-) :-) :-)

I have already added them to my UK medicines document! :-) (That is, they were mentioned, and I have added a start of distribution date.) However, it might take a while for them to become available, for GP systems to be updated, etc. Aristo did release the information about them some time ago (several weeks) such that the NHS and GP systems could already have included them. But they are not always speedy at doing so.

helvella - Thyroid Hormone Medicines - UK

The UK document contains up-to-date versions of the Summary Matrixes for levothyroxine tablets, oral solutions and also liothyronine available in the UK. Includes injectables and descriptions of tablet markings which allow identification. Latest updates include all declared ingredients for all UK products and links to Patient Information Leaflets, Dictionary of Medicines and Devices (dm+d), etc. PLUS how to write prescriptions in Appendix F.

dropbox.com/s/bo2jzxucgp9hl...

thyroidsymtoms profile image
thyroidsymtoms

Strange I was at boots and was told only way to get it by a unlicensed medicine to be imported if my GP is friendly. Another local pharmacy said they would not even have it on the system for 100mg

helvella profile image
helvellaAdministrator in reply tothyroidsymtoms

If you look at the appendixes of my document (Appendix F) - it has examples of how to write prescriptions to ensure you get Vencamil.

Your Boots people seem to be finding German Aristo levothyroxine (also supplied in Germany branded as Eferox) - not the UK Vencamil product. My document includes the PIP codes which pharmacies use when ordering medicines. Suggest you print a page or two, or copy them out, or display on your phone, and show them.

The UK Vencamil is NOT unlicensed.

thyroidsymtoms profile image
thyroidsymtoms

My vote for you as health secretary in goc @helvella. 👍

thyroidsymtoms profile image
thyroidsymtoms

 helvella I managed my GP to prescribe Venamcil though none of the pharmacies (Boots, Superdrug, Animed and independent pharmacists) in my area can find the stock of Vencamil 25mg or 50 mg. Do have any guidance or Has anyone managed to get Vencamil in UK .is their online pharmacy honouring the vencamil NHS prescriptions?

PS :I have also sent a message to the on contact us company page to ask if any online pharmacy in Uk is supplying

Community pharmacy england gave me an email medinfo"-at-"aristo-pharma.co.uk (replace "-at-" with @ )to check directly with Aristo pharma. I guess if more people write to Aristo they might take notice

helvella profile image
helvellaAdministrator in reply tothyroidsymtoms

The 100 is available now.

The 25, 50 and 75 have had problems (I think with Alliance) but should be available by the end of next week - 27/09/2024.

I agree that it has been frustrating, but things are slowly happening.

thyroidsymtoms profile image
thyroidsymtoms

Many thanks. Quick query Is ALLIANCE a distributor of Vencamil? if yes, Do I have ask a pharmacy to check the availability of a vencamil Alliance distributor or do I have give them som e kind of code for the distributor along with PIP code for vencamil ?

Apologies for being nag and thanks for your patience :-)

PS: I got call from Aristo, which you have advised.Aristo said by next Thursday, most of the pharmacies in UK should be able to find Vencamil in their system as Alliance is the biggest distributor of medicines in UK is the distributor of Vencamil. Alliance placed the order for Vencamil this week with Aristo and Alliance would have it on the system with supply sorted by end of next week.

helvella profile image
helvellaAdministrator in reply tothyroidsymtoms

Alliance is one of the mega-distributors. Afraid I don't understand how it all works, but I think they also funnel supplies to the smaller distributors. Rather than each and every pharma company having to arrange for themselves.

I think the PIP code is the primary thing - along with the ordinary English information!

thyroidsymtoms profile image
thyroidsymtoms

Many thanks Aristo confirmed the same on call. Aristo Pharma works with German efficiency I received the call within 1 hour of a message on the website

Aristo representative advised on the phone by next Thursday, that most of the pharmacies in the UK should be able to find Vencamil in their system as Alliance is the biggest distributor of medicines in the UK and is the distributor of Vencamil. Alliance placed the order for Vencamil this week with Aristo and Alliance will have it on the system with the supply sorted by the end of next week.g

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