advice please

[Pussycatlou]

So I live in uk and for a year now my daughter age 14 has had various symptoms which come and go in severity but impact her life when bad. She is under paediatricians who were unconcerned about her low TSH and after discussion with paed with interest in endocrinology they wrote to gp and said no further bloods required. I had to fight with gp to get bloods done. My argument is if we don’t check how will we know not deteriorated. Point blank refuse antibody test. Previous TSH dec was 0.5 this is her current blood tests we got back today which were taken in morning .

TSH 0.38 - range 1.12-5.01

FT4 17.3-range 10-22

FT3 5.9- range 5.0-8.2

so what do I do now? Paediatricians no longer wish to monitor and unconcerned. She is very symptomatic. Irregular periods, dizzy, nausea, palpitations, anxiety

[FallingInReverse]

Have you tested her ferritin, or any other vitamins such as B12, Folate and D3?

Deficiencies in those can cause similar symptoms to her list.

And deficiencies in those can impact thyroid function.

[Pussycatlou in reply to FallingInReverse]

all been checked previously. Only thing they refused was antibody test. Have letter from paed consultant saying her thyroid level is normal. It is absolutely not

[FallingInReverse in reply to Pussycatlou]

I wouldn’t flag her free Ts as problematic YET… without more context.

Yes, her FT4 is top of range, but even though low, her TSH seems to know that. Also, her FT3 is in range for her age - which is most indicative of symptoms.

If you can share exact dates AND TIMES, results and ranges of any of these tests taken over time, that would help.

Also, her vitamins likely hold the key to understanding what might be causing her symptoms.

If you have results and ranges for those 4 vitamins and minerals, that would be needed to understand your daughter’s complete thyroid picture.

And if those are sub-optimal, that would be influencing the thyroid.

Let us know if you can share any of that info.

EDIT- Also agree with needing antibody tests - all four of them - have you considered looking to do privately?

[Pussycatlou in reply to FallingInReverse]

Have actually contacted our private healthcare today to see if she can be seen and hopefully they would do antibodies. Would give us a bigger picture.

[FallingInReverse in reply to Pussycatlou]

Antibodies would clear up confusion about whether an autoimmune cause was at the root of disrupting her thyroid function.

But it won’t help you determine the best treatment for her symptoms.

I would just make sure to get up to date vitamins/minerals as those are easiest to treat right now given those thyroid numbers. Low TSH is an indicator of something, but you can’t “treat” it. You treat the Free Ts, which don’t look that bad at this point.

I don’t doubt the low TSH is something to monitor, but also doubt her Free Ts are making her feel like she does right now, and if they are your first step would be to treat her vitamin levels.

[Insomania]

Definitely get the vits and minerals tested, the dizzy and palpitations could easily be low iron anaemia. (Breathlessness is another distinct symptom.) Vit D, B12 and “Full iron panel” if you can via the GP. If they’ve already done iron panel, get access to your daughter’s results via the NHS app, it’s v good for blood test results. All the best, hope she’s feeling better soon.

[McPammy]

I would do a full thyroid panel blood test including antibodies privately through Monitor My Health on line. It’s worth every penny to get the answer. Then I’d go private as the NHS are very poor at treating any thyroid issues.

I have a fabulous private endocrinologist that does zoom, telephone and face to face. Please private messsge me if you’d like his details etc.