TSH 4.25: Hi, I have been going to the docters... - Thyroid UK

Thyroid UK

140,917 members166,037 posts

TSH 4.25

JCMartin profile image
10 Replies

Hi,

I have been going to the docters for 6 months with neck pain/swelling and it has been ignored. I have:

Constipation

Palpitations

Swollen Neck and Face

Shortbess of Breath

Internal Tremors Fatigue

I have just had TSH 4.25, went to the docters yet again and they are still not concerned. They say its only slightly high. Out of despiration i have ordered T3 and T4 blood tests. But i know 100% i have large Goitre. He says he will have a look when they come back. I feel like i have been almost gas lighted by the NHS. My oxygen is dropping to under 80 throughout the day.

Written by
JCMartin profile image
JCMartin
To view profiles and participate in discussions please or .
Read more about...
10 Replies
JCMartin profile image
JCMartin

Serum 25-OH Vitamin D (D2 +D3) - 89, Serum vitamin B12 - 790,

TSH 4.25

Serum ferritin - 69

Serum folate - 17

Wtg T3 and T4

SlowDragon profile image
SlowDragonAdministrator in reply toJCMartin

Vitamin levels look good

What vitamin supplements are you taking

SlowDragon profile image
SlowDragonAdministrator

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

On T3 - day before test split T3 as 2 or 3 smaller doses spread through the day with last dose 8-12 hours before test

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

See detailed reply by SeasideSusie

healthunlocked.com/thyroidu...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Litatamon profile image
Litatamon

You have an oximeter that is showing your oxygen saturation is 80? I don't want to sound patronizing but they know that, yes?. What do they say? Below 90 is a big deal.

Besides the goitre is there any underlying condition causing such low saturation?

-------

I had a full thyroidectomy due to size and position of two of my five or six modules. The buggers at hand caused both breathing issues and choking.

Try this -

Raise your arms above your head. Lower your chin to your chest. Talk.

If your goitre is causing breathing and choking issues you will know instantly - talking will be near impossible and will probably sound like the devil. And breathing will also be an award-winning feat.

McPammy profile image
McPammy

TSH is too high. It should be under 2.5 or you’ll get symptoms and preferably around 1.00. They probably think your level is ok because it’s within the NHS range. But it’s not ok. If you are getting no joy from an endocrinologist or your gp id ask to be referred to ENT ( ear, nose and throat) dept. My sister did this after months even years being fobbed off by her GP and Endo. After seeing ENT her thyroid was removed within 2 weeks as she had a fine needle aspiration which revealed thyroid cancer. I’m not saying you’ll have to same outcome but they did act where others didn’t. It’s worth a try???

JCMartin profile image
JCMartin in reply toMcPammy

Thanks for your help. I have ENT finally 15th January. Also a lung function appt 9th January. Strangely my voice is fine but swollowing feels harder.

McPammy profile image
McPammy in reply toJCMartin

That’s excellent. I do hope they’ll be able to diagnose and help you, like they did with my sister. If they do find the problem they could refer you to Endo also. Keep positive thoughts.

serenfach profile image
serenfach

Take screen shots of the low oxygen levels. This is serious. Go to A+E, lie down, gasp for air. Do a full Oscar winning performance. It seems this is what it takes nowadays to get any help. But your oxygen levels are critical, and will be affecting your brain, liver, most organs, and some of this damage is difficult to heal.

I hope you get is sorted, but I really mean it - it is serious!

Litatamon profile image
Litatamon

JCMartin Would be happy to see you back on this thread. Just want to hear that you are okay & it was not a critical situation.

JCMartin profile image
JCMartin in reply toLitatamon

Sorry, i have been a little all over the place and i wasnt used to the site. I have some appointments in January. I have been frightened i wouldnt last that long. I cant believe the NHS are in this state and the docters dont seem to care. I am going to change to another surgery when this is resolved - but i cant face it at the moment.

Not what you're looking for?

You may also like...

TSH 4.25 - is that normal.

Hi. I have recently had a thyroid blood test and it came back as normal (4.25). However my vitamin...
Maggiv profile image

High TSH & High Free T4

I have been on thyroxine 100mg for the last three years regularly doing blood test without any...
pauliop81 profile image

TSH level query

Hi I have been told that I have a benign nodule on the right of my thyroid. This was discovered...
Sparkle44 profile image

TSH levels

I have been taking Levothyroxine for many years and my dose has been 125 for a very long time. A...
RoniB profile image

TSH 65

Hi everyone, I was diagnosed 10 years ago as hypothyroid, and was on 175mcg Levo. Before this I had...
dinglebell profile image

Moderation team

See all
SlowDragon profile image
SlowDragonAdministrator
PurpleNails profile image
PurpleNailsAdministrator
RedApple profile image
RedAppleAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.