I was diagnosed 10 years ago as hypothyroid, and was on 175mcg Levo. Before this I had been the living dead, (my mum used to say I looked like death warmed up), and went to the docs with my symptoms, weight gain, hair loss, lethargy, chronic tiredness, low mood, aches, brain fog, all the usual suspects. He put me on antidepressants. No tests. After going back and back as they didn't work, with him saying, "give it a few more weeks" etc, I read an article about Coeliac disease and thyroid, and as I am Coeliac I asked him to test me for Hypothyriodism. (He was not aware of any connection). I got the raised eyebrow/smirk but he agreed, SO good of him to do his job, like, and results came back positive. So I have been taking them for years, but never feeling like I know I should, you know, like, "normal" so that everyday stuff isn't a chore, that I don't need a nap on the hour every hour. I have been back to all the different docs at my practice, saying I still feel tired and sluggish but my results are within range. Gradually I was getting worse and resigned to my fate! However, about 12 weeks ago my thyroid test results were TSH 65.7 (0.3-6)
FREE T4 12.8 (9-24) and FREE T3 2.4 (3.5-6.5). So he has increased my Levo by 25mcg. I said to him about T3, and he said all of his thyroid patients do well on just Levo, as they are monitored. Well nobody asked me I said, and I am one of them. Crossed his arms and off you go batty old woman, you obviously need Prozac....and possibly an anger management course...
So. I got some T3 online and after a week it was astounding, I felt fine for the first time in soooooo long. Normal energy, weight loss, clear(er)! thinking, shoulder pain gone, and after 6 weeks I got retested and results are within range apparently but he hasn't asked to see me as he obviously thinks it was his increase in Levo that has made me better. I will have to go to see him and am dreading it, truly. Only thing now is I have no more T3 left, and the online source says they have none, and it has been 2 weeks and I definitely feel worse, and worried about not being able to get any more. I feel it was 10 years of my life I lost, when there was no need. Getting my own T3, and reading up about stuff was dare I say it 'empowering', and now I have lost that. I am still trying to source some but have had no luck, possibly the US is a source? Strange how an ignorant wee man (GP!) has the power to decide my health.
On another tack, which may have been covered, was sourcing natural animal thyroid? What happens to the thyroids and other glands from slaughterhouses? Dog food? Should we eat dog food?!! I wonder if there is thyroid issues because we don't boil up a hare for soup, thyroid and all, anymore?
Sorry to go on, if there is anyone still reading. I found once I started it just kept coming. There is more....ok, ok, I wont. Thank you to everyone who is on this, I find your stories inspiring, I do love reading them, only I get lost going off on the tangents!
Wish me luck with GP. Sigh.