Hubby update. His heart is fine 😅😅😅😅 the abnormalities shown in the stress ECG we’re not replicated on the debutinine echocardiogram so all is well … so cardio consultant recommended hubby sees a endocrinologist to check whether his diagnosis of autoimmune thyroid antibodies could be a cause of his low B12 and vitamin D as untreated it could lead to complications with existing heart disease conditions.
GP reaction is STILL that B12 deficiency is NOT an issue and “these private” consultants just want our money … that’s hubby’s inference of the GPS dismissal and sneering at the consultants’ letters.
So still no vitamin D prescribed so we will have to self treat.
A flat refusal to refer to an endocrinologist- even though we have private insurance and cardio recommends that would be sensible.
A refusal to even test FSH, T3 or T4 for monitoring purposes.
A expressed opinion that needing B12 more than once every three months to top up is “ridiculous” and 201 ng/l was more than adequate … and as to me injecting every day well … eyes rolled and rolled and rolled.
So where does hubby go from here? We have private health insurance but cannot access it as the GP refuses to refer!!! Anyone else encountered a similar situation? What was the way forward? Any ideas?
Thank you all in advance - tomorrow is a new day and we battle on.
🤗🤗🤗
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First step is to get FULL thyroid and vitamin testing re done privately yourselves
Including full iron panel test as ferritin is high to test for hemochromatosis
Have you done this yet?
Have you organised coeliac testing too
Likely to benefit from strictly gluten free diet, but ideally test for coeliac disease first before cutting out
Thousands of U.K. members Self supplement to maintain OPTIMAL vitamin levels
Your husband is presumably now taking daily vitamin B complex?
Remember In week before blood test, when need to stop vitamin B complex, he might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12
Post discussing how biotin can affect test results
Hubby is only on B12 1500 ug once a week and 5mg folic acid.
He has dropped the Lansoprazole and no acid reflux.
Asprin is now enteric coated so no need for Lansoprazole ( why this wasn’t done from day one beyond me).
I am on grain and legume free diet and so hubby is too as I don’t want to cook dual meals.
I will get him into B complex.
No idea what his vitamin D, folate or ferratin levels are as GP refuses to test.
I will get the test done privately as you suggest and get him to an endocrinologist.
Apologies you have addressed many of these issues in a previous response - I am a little overwhelmed with all this medical stuff - physics and engineering so much easier!!!
Thank you. I will organise the private tests. Sadly the GP is head of practice and as we are in a rural area changing GPs may be a challenge but I am going to phone around and see if I can find someone who’s at least open minded if they can’t be sympathetic.
I really appreciate all the info -a lot to take in but I will in time.
When it comes to rates of ulceration and bleeding, there’s no difference between enteric-coated and regular aspirin. The risk of ulcers and bleeding probably comes from aspirin’s effects in the bloodstream, rather than from where the drug dissolves and is absorbed.
That’s interesting (unfortunately so) SlowDragon. I know that Turmeric is contra indicated as it has the same effect on the blood as Asprin ie it’s anti platelet. Hubby may try Turmeric perhaps every other day or something but cardio said whilst he appreciates alternatives he’s bound by his training ie Asprin or equivalent.
left field comment here - often when you have health insurance there is a virtual GP service and they can do the referral following a telephone/video chat - that’s what I have been fortunate enough to do in the past.
I’ve done the same! My insurance has something called WeCare, but we weren’t automatically enrolled I needed to ask for the details. Private GP gave me a referral with no bother
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