Finally got my blood test results from Monitor My Health (first lot were duff). They are as follows:
TSH 0.02
T4 19.8
T3 3.7
You will see that my T4 is up 5 points on an increase from 175mg 7 days a week (and I only got that increase kicking and screaming) to 200mg at the weekends+175mg Mon-Fri. My T3 seems rather low? Mind you, my GP thinks T3 is irrelevant so how do I get her to change her mind!? For 40 years before we moved and now in a different medical practice I was on 200mg 7 days a week! Only saw GP there for annual blood test!
Thank you for your assistance.
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Lottyplum
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Apologies! In a rush to get info to you all forgot to include ranges!
TSH 0.02 (0.27-4.2)
T4 19.8 (12-22)
T3 3.7 (3.1-6.8)
Saw an Endo last Sept just to get my Levo increased to 175mg! That was because 3 GPs in surgery typically just would not listen to me. Was discharged by Endo at end of 45 mins appt. She was ignorant on a number of points tho she did arrange a full blood panel+TSH, T4+T3 - after 12 noon!! Don't think her specialism was thyroid!! I've seen on here so many comments about ignorant endos I don't know if I could dare dip my toe in that water!!
So firstly you need to get vitamin levels done and supplement any low/deficient levels before you even think about adding any T3 otherwise you may not tolerate it.
The trouble is that your TSH is already almost suppressed so GP's don't understand that, its just not how they were taught to look at and understand thyroid tests.
If you can possibly afford to go privately then do, and also make sure to get feedback on the Endo that you see (has to be via pivate message) as many Endo's also go by TSH
My TSH has been suppressed for years, probably something to do with the fact my thyroid was removed over 40 yrs ago+been on levo ever since. I did get Endo to write to GP to tell her to ignore TSH when it comes to medication otherwise as soon as my NHS Thyroid blood test results landed at the surgery, whichever Dr picked up the results went apoplectic!! So now have MMH blood test.
Most people when adequately treated will have Ft3 at least 50% through range
We need GOOD vitamin levels for good conversion
So next step is to test vitamin D, folate, ferritin and B12 levels
Get GP to test these
What vitamin supplements are you taking
all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
is this how you did your test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
List of private testing options and money off codes
Thanks for your response. I take Vit D, K2, Selenium, Zinc, Quercitin, Vit E, Vit B12, B Complex, Vit C. GPs@my surgery don't seem to have much nous when it comes to thyroid+even less about Hashimtos. Even when GP spoke to an Endo over a year ago, Endo told him to go with numbers not symptoms!! No hope there then.🤐 So, yet again private blood test for vit testing seems the only way forward.
Thank you for all your help. Onwards and upwards!!
I've thought you had Hashimoto's but just realised you have had thyroidectomy - no wonder your T3 is so low :
A fully functioning working thyroid would be supporting yo daily with trace elements of T1. T2 and calcitonin + a measure of T3 at around 10 mg + a measure of T4 at around 100 mcg.
Some people can get by on T4 only - Levothyroxine.
Some people people find that T4 seems to stop working as well s it once did and that by adding in a little T3 - they can restore the balance of their T3/T4 thyroid hormones and feel better.
Some can't tolerate T4 and need to take T3 only -Liothyronine.
Whilst others restore their health better by taking Natural Desiccated Thyroid which contains all the same known hormones as that of the human thyroid gland and derived from pig thyroids, dried ad ground down into tablets referred to as grains.
I am with Graves - post RAI thyroid ablation and became very unwell around 10 years after this treatment -
I was only ever treated with T4 monotherapy and refused both NDT and T3 by my doctor and hospital in 2018 and decided to self medicate and trialled both options myself and have settled on NDT and much improved.
I buy my own full spectrum thyroid hormone replacement and just run a yearly private full thyroid blood test to include the vitamins and minerals I still need to maintain optimal levels of ferritin, folate, B12 and vitamin D for optimal health.
Obtaining T3 or NDT on the NHS is a postcode lottery and it seems T3 more easily obtained.
You will need a referral to an endocrinologist and it does seem that financial constraints rather than medical need appear to apply in some areas of the country.
If you go into openprescribing.net and then analyse you can see by surgery and CCG/ICB area how active - or possible non active - your area is at understanding the need for this vital hormone.
Thyroid UK - thyroiduk.org - the charity who support this forum hold a patient to patient list of sympathetic endos and consultants - NHS and private - maybe email admin at Thyroid UK - and have the list sent to you.
Many consultants offer video consults so distance need not be an issue.
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