Just hate my doctors: So I’ve been off medication... - Thyroid UK

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Just hate my doctors

Dshadzz07 profile image
3 Replies

So I’ve been off medication for 2 months since going into a hyper state due to over medication they told me to stay off them retested in July and my TSH was still extremely low but T4 and T3 back in good range.

So it’s been around 6 weeks since my last tests and want to get back on my medication because I’ve noticed an increase in my depression, muscle aches and just general crap.

So asked my doctor for my thyroid to be rechecked which I feel is reasonable and he said sure but only TSH but I said T3 and T4 are needed. (I’ve had my vitamins recently for other reasons). He said no TSH is just fine but like if it comes back in range they’ll just say stay off the medication without even knowing my T4 and T3.

So frustrated they won’t listen, haven’t got any medication until they retest it but they know I’ve got hypothyroidism.

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Dshadzz07
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3 Replies
tattybogle profile image
tattybogle

Wait till you get TSH result before you start worrying about it not being over range Dshadzz.

Previous test was only 3 wks after stopping levo . that was to soon to allow TSH to start rising much .

You have previously had fairly high TSH results eg 22 etc

So it's quite likely that after 9 wks without levo your TSH will now be over range.

if it is , they will reinstate levo .

if it isn't, then you can get fT4 / fT3 tested privately for under £30 (NHS~ Monitor My Health)

Not an unusual response. The only way to get round this is to do a home test for Thyroid Profile.

I just cannot believe the number of doctors who still diagnose and medicate by TSH alone 🙈.

Decaston profile image
Decaston

Hello, my wife has hypothyroidism and pays privately for erfa ( the natural thyroid) the Canadian version of Armour, she does this because she could not get on with the synthetic levothyroxine that only contains T3. You say your T3 and T4 levels are good, in my opinion ( l am a layman but with experience) you should ignore the medical interpretation of normal and if the low end of normal should strive to be more mid range ( it’s not enough to be within the range, the doctor should ask how do you feel? I agree it’s easy to take too much thyroid medication and my wife has done this and it also made her unwell. I am not sure 🤔 how long you have stopped taking the thyroid medication, l assume you mean levothyroxine, l would suggest that you request as already stated that your bloods be taken and your TSH, t3 & t4 be checked, you need to get to the bottom of what’s making you feel unwell. The squeaky wheels get oiled, ring the surgery Tuesday, the nurse can take your bloods.

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