Are my bloods ‘normal no action’? I don’t feel ... - Thyroid UK

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Are my bloods ‘normal no action’? I don’t feel normal!

Jellyboots profile image
7 Replies

Hi everyone, I have posted once before but afraid I don’t prioritise looking after myself and haven’t got very far with pushing my GP or understanding anything. My GP says my bloods are normal on thyroid tests and Iron and I don’t need any treatment.

I don’t feel normal at all though not sure if it’s lifestyle (excessive working full time, kids, life, no support etc as my GP thinks) or if there is something up with me which my GP is glossing over as I’m “not in range” even though I think ranges are so wide hardly anyone would be in them ever! I’m extremely exhausted, foggy, heart palpitations sometimes, aching joints, hair falling out, can’t seem to lose weight, etc.

Wonder if anyone could look at my blood results and tell me if I need to push GP or if it’s more likely lifestyle issues (which are a different forum I guess!) I only got the T4 count and B12 as lovely phlebotomist added it for me whilst with her. There’s no Vit D count as wasn’t asked for but I usually have low Vit D too.

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SlowDragon profile image
SlowDragonAdministrator

First step is to improve low vitamin levels

Vitamin levels terrible because your thyroid is struggling

Graph showing median TSH in healthy population is 1-1.5

web.archive.org/web/2004060...

Low vitamin levels tend to lower TSH

What vitamin supplements are you currently taking

Get vitamin D tested

NHS easy postal kit vitamin D test £31 via

vitamindtest.org.uk

No ferritin result?

Your B12 and folate are terrible

Work on improving low folate, B12 and …..presumably low vitamin D

Then get FULL thyroid and vitamin testing including Ft3, thyroid antibodies and vitamin D, folate, B12 and ferritin retested in 8 weeks

ALWAYS test thyroid levels early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/wp-content/up...

Tips on how to do DIY finger prick test

healthunlocked.com/thyroidu...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

It’s the same old story I’m afraid. Doctors are just too bone idle to interpret blood results properly so they go by the way they’re labelled when they come back from the lab.

‘Normal’ means nothing. Nobody’s ‘normal’ and blood results can’t be ‘normal’. This ridiculous word just means that they are within range.

Your B12 and folate are far too low in range. TSH is too high and FT4 too low. No sign of an FT3 test having been done. If your Vitamin D is low too, I’m not surprised that you feel awful.

You have vitamin deficiencies and are hypothyroid. You need vitamin supplements and Levothyroxine. Get a second opinion as soon as you can.

SlowDragon profile image
SlowDragonAdministrator

Low B12

Are you vegetarian or vegan?

Would imagine you might have low B12 symptoms

b12deficiency.info/signs-an...

methyl-life.com/blogs/defic...

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement and add a separate vitamin B Complex a week after starting B12

Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.

If Vegetarian or vegan likely to need ongoing separate B12 few times a week

B12 drops

natureprovides.com/products...

Or

B12 sublingual lozenges

uk.iherb.com/pr/jarrow-form...

cytoplan.co.uk/shop-by-prod...

B12 range in U.K. is too wide

Interesting that in this research B12 below 400 is considered inadequate

healthunlocked.com/thyroidu...

Low folate

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

healthline.com/nutrition/fo...

B vitamins best taken after breakfast

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)

Thorne currently difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

Other options

healthunlocked.com/thyroidu....

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

SlowDragon profile image
SlowDragonAdministrator

How low was vitamin D previously

What dose vitamin D are you currently taking

Most thyroid patients need to supplement continuously to maintain optimal vitamin D

Test twice year when supplementing

NHS private testing service

vitamindtest.org.uk

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

GP will often only prescribe to bring vitamin D levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But, improving to around 80nmol or 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7.

One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average

Vitamin D and thyroid disease

grassrootshealth.net/blog/t...

Vitamin D may prevent Autoimmune disease

newscientist.com/article/23...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Interesting article by Dr Malcolm Kendrick on magnesium

drmalcolmkendrick.org/categ...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

SlowDragon profile image
SlowDragonAdministrator

No ferritin test

Ideally get full iron panel test now …..

Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing. It’s possible to have low ferritin but high iron

Medichecks iron panel test

Test early morning, fasting and don’t eat iron rich meal night before test

medichecks.com/products/iro...

or wait to get ferritin tested in full test in 8 weeks

Meanwhile

Look at increasing iron rich foods in diet

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

SlowDragon profile image
SlowDragonAdministrator

List of thyroid specialists and endocrinologists

healthunlocked.com/thyroidu...

Jellyboots profile image
Jellyboots

Thanks very much for your advice. Hugely appreciated. I’m going to ask for second opinion Hidden and more blood tests on it all and on iron and vit D levels.

My last ferritin test also said I was normal no action otc supplements advised. My levels were 10 ug/l (unsure of range as just verbal from doc surgery), and a note saying that anything ‘under 15 indicates absent iron store’. But at the time my GP said that as another level (unsure which!) was ok it didn’t look like I was anaemic.

I have at least a third of the hypothyroid symptoms on the link you linked SlowDragon .

Very confusing but the links you have kindly copied above are giving me some insight as to how vitamins and thyroid are related. It shouldn’t be this hard though should it?!

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