it’s me again kowbie

[Kowbie]

just been trying to talk about vitamins to the dr , but they don’t listen , she said all my vitamins were fine so I said that the folic had gone down again serum iron was quite low and before I could say much more, she said all were fine then wanted me to come down on thyroxine because of the tsh , I don’t know what she would say if she saw the medichecks ones , but I’ve now got a blood test to do for vitamins ( hoping she doesn’t put thyroid on as well ) could it be crossed out if she has ,when I said about tic she said it had been done , I don’t really know what I’m looking for ,but I couldn’t see tibc anywhere, thought I’d just let you know thankyou

[SlowDragon Administrator]

previous post shows your folate was very deficient

healthunlocked.com/thyroidu...

But you are now presumably taking daily B12 and daily vitamin B complex

[Kowbie in reply to SlowDragon]

No I held off until I could speak with a dr in case they would do the other tests . She told me I’m over medicated so I said I don’t think I am I know tsh is low but that’s not thyroid it’s pituitary, and my t4 t 3 aren’t over , she said it’s more complicated than that ,

[SlowDragon Administrator in reply to Kowbie]

folate 3.6(8.83-60.8)

vit b12 63.3(37-188)

Did GP prescribe folic acid for deficient folate?

If not they should have done

If GP says " I have to reduce your dose because the guidelines say i can't let you have a below range TSH" .....

The first paragraph in the NICE (NHS) Thyroid Disease, Assessment and Management guidelines says :

nice.org.uk/guidance/ng145

"Your responsibility

The recommendations in this guideline represent the view of NICE, arrived at after careful consideration of the evidence available. When exercising their judgement, professionals and practitioners are expected to take this guideline fully into account, alongside the individual needs, preferences and values of their patients or the people using their service. It is not mandatory to apply the recommendations, and the guideline does not override the responsibility to make decisions appropriate to the circumstances of the individual, in consultation with them and their families and carers or guardian. "

[Kowbie in reply to SlowDragon]

They wouldn’t take any notice of the results that I had done with medichchecks ,but have managed to get some bloods done with them , she didn’t tell me what was being done I’ll just have to wait until there done and see but thankyou for your help, i hope you are keeping well yourself will be back when I have these results thanks again

[greygoose]

Not much point in talking to doctors about nutrients. They know nothing about them. They just do learn about them in med school. So, for them, anything that is in-range just has to be 'perfect'!

[Kowbie in reply to greygoose]

Yeah I think you’ve hit the nail on the head there it’s just do I try to take some iron tablets to bring serum iron up or what , and how much or which ones , I don’t know but thanks for responding

[greygoose in reply to Kowbie]

You could try writing a new post asking just that, then those that know will respond to you. I'm afraid iron is far too complicated for me, I've never got to grips with it.

[Kowbie in reply to greygoose]

Thanks for getting back to me, I will do that ,I’ll just wait and see what bloods they do , hope you’re keeping well thanks again

[greygoose in reply to Kowbie]

You're welcome.

[CoeliacMum1]

Can you see a more open minded GP or even your practice pharmacist maybe more helpful … bit like hens teeth finding one I know but there are some.

Unfortunately at med school the coverage they teach is so minute in various areas it boils down to a hour at most eg menopause which is bizarre as 50% of their patients will if reach that stage go through it.

I have found one GP at my surgery who agrees with me that just because in range doesn’t mean it right level for me and is willing to get to better wellbeing based on my symptoms…I actually used his own method back at him after asking about creatinine as mines always been on high side for a female (not symptomatic for kidney problems…yet) but as he says scans and everything else is fine and it’s been steady like that for a decade now so this might actually be my normal, and not to worry re levels (as I question it every year) these are just guides he said - so when my nutritional status is in range but I feel I need more or get to upper levels I used his theory to put my point across … he agrees low in range with symptoms should be taken into account.

Always worth checking NHS guidelines.

If your B9 & B12 is low and deficient nhs will supplement if in range they won’t, they do need to rule out one before the other usually both are tested as B12 deficiency can be masked by taking folic acid ….you still may feel better if higher in range though … if it’s low but in range ask why should this be so low and and if you’re symptoms match with these areas being low, ask for further investigation as to why. Have you access to your results have you had these looked at before by NHS if so refer back and see if these next results are lower if so you have more leverage to question this as your situation is getting worse.

A friend of mine is now on B12 injections I told her to watch this area, as she’s often taking supplements for reflux and it’s known as is other medications (metformin) to deplete B12 so it’s useful to have these NHS tests to refer back to.

You maybe referred to a dietitian if anything is off although Folic acid doesn’t suit all and methyl folate form is better tolerated in those with methylation problems… a dietitian and GP will prescribe folic acid though but you may be better with methyl versions… NHS dietitian couldn’t prescribe these.

British Dietetics Association (BDA) have leaflets on these areas of nutrition and these may be given to you but you can view in link below.

bda.uk.com/

I’ve had links sent me and paper versions can be helpful to know where you can increase these in your diet, or what can be depleting them if these areas of nutrition are questionable …some conditions may require further testing just as a precautionary measure …I had this as I have coeliac disease and triggered more bowel investigation & to see dietitian. I have B12 injections and periodically Folic acid prescribed but realised methyl folate is probably my better option.

[Kowbie in reply to CoeliacMum1]

thankyou for replying, I’ve not been in this area long under 2 years I wouldn’t have a clue at the surgery who would be able to help the ones I have seen all really want to put my thyroxine down because of tsh , saying I’m over medicated I said I don’t think so ,and said tsh isn’t even thyroid it’s pituitary and I’m not over on them at all she just said I think it’s more complicated than that , but didn’t say how , anyway thanks for your advice,and hope your keeping well yourself

[CoeliacMum1 in reply to Kowbie]

If your under an endocrinologist still, maybe ask GP to leave thyroid side to him/her until sorted or at least get endocrinologist to explain that he’s ok with your adjustment and lower TSH as you do better at this …as many do of course … GP probably won’t take your word for it but cannot ignore consultants written advice.

What are your symptoms?

Without reading all posts, I’m not sure what the matter is other than obvious low/deficiencies mentioned … I’m sure if your NHS GPs test come back similarly to what Slow Dragon posted, you will be offered Folic acid at least … make sure you’re not supplementing anything before testing.

Hope these tests sort things out and you get help you require.

[Kowbie in reply to CoeliacMum1]

Thanks so much for your reply, no I’m not under endocrinologist, that was a disaster with him as well , running out of t3 then getting it again then running out again how can you do a 3 month trial like that , I complained, he then just stopped t3 just like that , no coming down on it , discarded me just like that.thanks again

[CoeliacMum1 in reply to Kowbie]

I just stopped T3 too it was last November and after a month increased my T4 again… I wasn’t aware regarding weaning off it it was low dose anyway and I didn’t notice a difference regardless as my initial benefits on it had stopped working long before and I couldn’t get more prescribed. Long story but at the moment we’re investigating another reason for my problem… although that’s not answering the FT3 problem and my levels was under range but are back to just low in range again … I’m going back to this after other things are looked at.

[Kowbie in reply to CoeliacMum1]

Hope you get yourself sorted soon, I think most of us are chasing something to feel more like ourselves, good luck, and hope to speak again