Hello again Everyone,
I am dreading my F/up with a 'gestational diabetes' endocrinologist this week. I am neither diabetic or pregnant (ha! at my age).
A very nice lady but knows nothing of NDT, very little on Hashi's,and obsessed with science based evidence.
I am currently taking 1 3/8 grain of NDT daily, TSH 0.083 (0.27-4.2), FT4 15.2 (12-22), FT3 5.13 (3.1-6.8) results after 6 weeks this dose.
I am freezing cold,ongoing gut pain, fatigue ,tinnitus etc etc etc you all know too well, and about to increase another 1/8 grain. I was diagnosed with Osteopena in 2012 (probably years of chronic malabsorbtion) long before I started first medicating in 2015.
My pulse is 65-70 my BP very low at typically 90/58 or 100/ 62, Ferritin low side in range. Vit D, !2, Folic , FBC all good. Chloride low ,now taking electrolytes. And yes I still feel very unwell.
How do I handle her please?, is there any difinitive paper that says although it is not ideal to have a non- detectable TSH but some patients who have tried 'everything' may need to suppress TSH totally in order to have some quality of life?
I too accept this is not ideal, ive lost everything and I am still searching for the missing piece.......which may turn out to be 'functional B12 deficiency'.......wish me luck with that one.....no one is willing to trial B12 for 3 months just to see if its the missing piece, if its the one thing after all these years of tests after tests, costing thousands and wasting everyones time.
Apologies for the rant. Every best wish,
G.