Omg not good appointment

[France92]

I had a follow up appointment today with Endrocolgy which they requested saw them last Oct. The dr was not that nice made me feel I wasted his time especially when I asked about my private cortisol test. He said these tests are dangerous and he is seeing to many people doing them. He said my Thyroid is all good and cortisol was good last time they tested. He said I'm under to many specialists and they will always find something🤷‍♀️ well I appreciate they found cancer cells in my womb and everything was removed. My Cuti specialist in London are trying to find out why I can't get rid of an embedded infection and they flagged up my Thyroid in Sept. I will do a yearly Thyroid check myself what can I take naturally to raise my cortisol I take vit c 1000mg a day I will up them?

[SlowDragon Administrator]

Are you still taking propranolol

This will lower cortisol

Retested Thyroid and vitamin levels 6-8 weeks after stopping propranolol

[France92 in reply to SlowDragon]

I'm only on 1/2 of 10mg of propranolol twice a day as my blood pressure and pulse has gone low since my operation. I do find the propranolol helps the aniexty I have been having for a long while.

[SlowDragon Administrator in reply to France92]

and it will lower cortisol

I was stuck on propranolol almost 20 years

You have to ween off incredibly slowly BECAUSE it affects adrenals

Anxiety is extremely common hypothyroid symptom

Are you currently taking any magnesium supplement

[France92 in reply to SlowDragon]

I use the Betteryou magnesuim spray as I have a fragile tummy. Was you on a high dose of propranolol at the beginning I've only been on 10mg twice a day at the beginning?

[SlowDragon Administrator in reply to France92]

4 x 10mg per day

more on my profile

Took 6-7 months to very slowly reduce

Reducing by 5mg per day ….wait 6 weeks

Then reduce by another 5mg

Last 5mg ….cut in half down to 2.5mg

Then dropped comment one day a week

Following week stopped twice week etc

Thorne magnesium citramate doesn’t upset gut

Large capsules. You can open. Empty powder into small cup of water and drink

Try half a capsule initially

[Alanna012]

Did he elaborate on specifically which way they are dangerous?

Does he think blood cortisol is a more sensitive and reliable measurement than 24 hour saliva cortisol?

[France92 in reply to Alanna012]

He just said he is seeing to many people doing these tests asked where I did it. Said they show up things that not of interest. He said I'd had blood cortisol and urine and they were normal though he did say in rear circumstances they do salvia testing. He really didn't make much sense then discharged me .

[Alanna012 in reply to France92]

No he's not making sense. What things are not of interest? Why aren't they of interest?

Sounds to me like his ego was bruised by you doing a comprehensive test that showed you actually know something about your own health and what to look for thus getting ahead of him and how dare you do that.

At least you didn't pay for him, (I hope)

[France92 in reply to Alanna012]

No didn't pay NHS he made me feel I was hydrochloriac and wasting his time

[Hidden in reply to France92]

”these tests are of little value” roughly translates as “I don’t know how to interpret these findings and I’m intimidated by that.”

Sounds like as Alanna says his ego is bruised. Saliva shows what is free and available, blood shows what is “bound” and “total.” Similar to when we sometimes see “total T4” and “free T4” on a blood test… I suspect he just didn’t know this and felt threatened…

[jade_s]

Results like this would warrant an early morning fasting cortisol and ACTH test and a stim test. Free cortisol - what the saliva test measures - can be measured in blood too. Unbelievable endo!

Did he measure your cortisol first thing in the morning? What as the result? Any other time of day is meaningless, unless testing for cushing's, which you obviously do not have.

I'm not medically trained.

Sorry you're struggling. x

[France92 in reply to jade_s]

I had blood cortisol last Oct and 24hr urine and he said all normal. I googled him and I think his the main Diabetes Dr at the clinic.

[jade_s in reply to France92]

If you want to post your results, we could take a look. What time was the blood test done?

[jade_s in reply to jade_s]

Was it this test? healthunlocked.com/thyroidu...

The answer's in the report. You might need to go private or change endo's to get a stim test. You could try one from the thyroiduk list. Apologies if you've already done that, i haven't read through all your posts yet.

[jade_s in reply to jade_s]

If it was this test, can you also add the units please? I have some reference papers that may be of use to you but the cortisol units are important.

And of course if you have the urine test please post.

Adrenal insufficiency can also cause all the symptoms you describe - weight loss, trembling, adrenaline attacks, low bp, dizziness, etc. nhs.uk/conditions/addisons-...

[France92 in reply to jade_s]

Yes that is one I had at my Dr's around 9ock this is the one at hospital last Oct which he is probably going by. I've lost even more weight 16lb all told in a year.

[Alanna012 in reply to France92]

So he only 'knows' diabetes then. Waste of time.