sorry need help again

[editheve]

ivd developed trogeminal nuralgialast 3 years ago and have,hasimot0s for13 yearsbut since jan had alltered sensations in both legs like pins and needles my vit b 12 was 734 in jan 23 when i started with the pins and needles now its 433 today and im still ill i told the doc weeks ago she sent me to the physio who said i was fine so it must be my vit b12 i started on vit b tabs feb and my results are even lower she wont listen to me the off the shelf tabs dont seem to work i managed to get a copy o f my results today but they said my vit b 12 was normal at 433 but a note was added sayiing please note titre levels of intrinsic factor antibodies may give falsely raised /normal v b12 what does this mean pleasehelp ivd got nose and facial pain and pains in both upper legs pin and needles .eve

[helvella Administrator Thyroid UK]

Intrinsic Factor antibodies (IFab) are used to test for Pernicious Anaemia (PA). If you have a positive result, that is taken as proof of PA. But a negative IFab test does NOT prove anything.

If you have significant IFab then a standard B12 test might show a false high result.

In my view, they should at least do an IFab test now.

If you have PA, then treatment should be injections of B12 - not tablets.

I recommend you join the Pernicious Anaemia Society forum. And post there about your B12 issues/questions.

healthunlocked.com/pasoc

[editheve in reply to helvella]

thanks so much for your reply ill get a test so its a ifab test i need to ask for eve

[helvella Administrator Thyroid UK in reply to editheve]

Yes - I think so.

[editheve]

shall i ask for a pa blood test too with having nerve issues facial and legs ivd had cat scans mri scan all clear on my face i went to nhs physio on monday whom said she couldnt find anything in my spine so it must be nerve related 3 years and still no outcome yet i know somethings wrong im tired , and have tingling mouth face nose teeth now legs im taking vit b 12 vit d seluim and zinc vit c omega 3 and still not well and 100 levothyozine which was 125but lowered 2 month ago .

[Jaydee1507 Administrator]

Did you ever get private blood testing done to show your FT3 that the NHS doesn't do?

See link for companies offering private blood tests & discount codes, some offer a blood draw service at an extra cost. thyroiduk.org/help-and-supp...

[editheve]

no i havnt had a private t 3 dr said they would do my t 3 but i cant find it on the sheet this week but 2 months ago i asked for it and it came back 4 .1 that was done by the nhs does t3 cause tingling face and legs .

[Ragbags1]

sadly not that was one I was interested in as I suffer it too & being investigated for Thyroid by endocrinologist. I’m a Reflexologist.