I have been on 5mcg T3 for about 2 months and 25mcg of T4 for a little over 4 weeks. I tried 10 days of 50mcg after a few weeks on the 25mcg, but the increase was too fast. I felt great for a few days and then things went downhill and I got jittery, emotional, etc. I have been back on 25 mcg for 7 days now.
My mornings are the worse times and I hope this resolves once I get my levels optimal. My body temperature is very low, my brain runs at a very fast speed, but my body is very slow. These have been some of my worse symptoms. I was put on Adderall and it helps a tiny bit, but nothing like my friends with ADHD says it helps them. As the day goes and into the evening, I am much better. I have many other hypo symptoms, but this morning cold out of sorts feeling is by far the worse.
My low body temperature has been noted by doctors and is on my medical records for at least a decade. No doctor has ever mentioned it and I was not aware until electronic medical records became available.
When I would go to doctors with my symptoms (including dry skin, hair falling out, cold, constipation, etc.), I would be told my thyroid was in range and that it was anxiety. I tried many antidepressants and they didn't help.
I finally was out of range and put on levothyroxine and did well for a few years and then crashed again. Tried all the antidepressants again and little to no help. I was told my thyroid numbers were fine.
Should this get better the longer I am on thyroid replacement and get my levels up? Did anyone else experience and felt better after being on thytoid replacement? I just want to be the happy, morning person I use to be.
Since I went up to 50 mcg for 10 days and back down to 25mcg, my doctor wants me to start over waiting 6 weeks to be tested. He does test TSH, FT4, and FT3.
Worse than ever on medication
Thyroid Hormones Worse after 9 Weeks on Levo 
Feeling worse on Nature Throid
Levothyroxine reduced now feel worse
Hi Trina64, Increased anxiety has been the worst symptom of having a thyroid condition for me and it is always worse if thyroid medication or key vitamins (ferritin, folate, vitamins B12 and D) are not optimal. I too have been offered antidepressants on numerous occasions but, after receiving support and advice from this forum, I didn’t need to take them. What is key for me is to increase (or if needed, decrease) thyroid medication super slowly. I use a pill cutter and only adjust Levo by 12.5mcg alternate days at first. I wait a full 8 weeks on a consistent dose before retesting levels.
Thanks! I take Vitamin D and doing well with that my ferritin and B12 are fairly high in the range. I have had a ton of bloodwork done in the last few weeks and everything looks great. My folate was not tested. I guess it will just take patience, which i have ran out of. I think if I can get my my morning body temperature up, I would feel so much better. I am generally a totally different person in the afternoon and evening.... calm, busy, happy, etc. I almost hate going to bed because I dread the next morning.
I was on NatureThroid in 2017 and was doing great until it went out of production. I tried NP Thyroid and felt like it was inconsistent, so starting over with a combo of levothyroxine and cytomel.
I am at work with a sweater on, blanket around me, and space heater going and have a hot drink. I know the thyroid has to get in at the cellular level and it takes a long time.
I ordered a heating mattress cover to see if that helps. I get it today. If I raise the thermostat, then I can't breathe.
I found that taking a daily tumeric supplement (with added ginger & black pepper for increased absorption) improved my circulation. I know others on the Reynaulds forum rate Ginkgo Bilbao too, but I’ve not tried this myself.
I hope the heated blanket eases your symptoms 🦋
How long did it take you to start feeling much better? I probably tried going to 50mcg too fast and it has set me back a little bit. I was on it for 10 days and this is day 6 off of it, so hopefully things settle back down to my normal tired soon.
It took several months for me to slowly optimise both my thyroid levels & key vitamins. My mental and physical health improved greatly but it wasn’t a ‘quick fix’!
Well, that doesn't sound like much fun. I am trying to work and some days seem so difficult and other days are better.
Since my numbers are not far off, I am hoping it doesn't take months. My TSH was 2.865 (.4-4.2), T3 3.0 (1.5-3.5), and T4 .7 (.6-1.5). This was after being on T3 only for 4 weeks. 25 mcg of T4 was added and instead of waiting it out for 6 weeks or so, it was increased to 50mcg (at my request), but that only lasted 10 days. I was starting to go off the rails...crying, anxious, moody. The crying and moodiness stopped and just left with a jittery feeling.
Today is the 6th day off the T4 and I still feel the effects. I hope it goes away in the next few days. The increase had a very quick effect on me and I didn't expect it. Prior to the increase, I was tired and had brain fog. I am now less tired and foggy, but very jittery. My endo said that I could just not take T4 for a few days to clear my system quicker and then restart the 25mcg, but I think I would rather come down more slowly. There harsh ups and downs seem to get me into trouble.
I am glad you got a handle on your mental and physical health. I am generally an upbeat of fun loving person and rather healthy for 59. Most people think I am in my mid-40s. I just don't recognize myself right now.
I’m sure you will get there Trina64; be kind to yourself as it may take a little longer for you too 🦋
Thanks Buddy! I look back at some of my labs and I was treated like a hypochondriac when there were real physical issues. Now I have to spend the next several weeks/months digging myself out of this hole and still try to do life. UGH! I will get there, but I just don't know when.
I was diagnosed by my GP as having ‘health anxiety’ & referred to a psychotherapist. I’m ever thankful to SlowDragon , greygoose & others for helping me realise that my symptoms were related to me being under medicated thyroid wise & not having optimal key vitamins. Best wishes to you 🦋
I started on 37.5 mcg this morning, so hopefully that is what my body needs right now I am hoping it doesn't take long to settle in. I was a complete mess yesterday after going from 50mcg to 25mcg for 6 days. Since the first few days after the reduction were pretty good, I am hoping the middle dose is what I need right now.