Diabetes Insipidus has changed name

[helvella]

Just for general interest - because we have seen occasional mentions of Diabetes Insipidus over the years.

Diabetes Insipidus (DI) has undergone a terminology change.

Central DI: Arginine Vasopressin Deficiency or AVP-D

Nephrogenic DI: Arginine Vasopressin Resistance or AVP-R

The obvious reason is to reduce the opening for confusion with diabetes mellitus.

(Can't help hoping that Pernicious Anaemia get sensibly renamed - that name causes no end of confusion.)

[Ernest2]

Sounds like a good idea.

Any clever tricks to remember the two new identifiers? particularly the last letter. I'll have to go away and think about that.

P.S. (Nothing to do with cars) Ever heard of LADA, so called diabetes type 1.5

diabetes.org.uk/diabetes-th...

Best wishes,

Ernest

[helvella Administrator Thyroid UK in reply to Ernest2]

I've heard of LADA! But know little of it.

Seems appropriate to consider also renaming:

Syndrome of inappropriate antidiuretic hormone secretion (SIADH)

en.wikipedia.org/wiki/Syndr...

For ADH is nothing other than Arginine Vasopressin.

en.wikipedia.org/wiki/Vasop...

SIAVP? Or, AVP-XS (excess syndrome)? AVP-OS (overload syndrome)?

Having everything related to AVP starting with the letters AVP- just seems so logical, so obvious.

[Jazzw in reply to Ernest2]

I’ve heard of LADA. The other one to know about is MODY: diabetes.org.uk/diabetes-th...

I have a friend with this. They diagnosed as type 2 to start with. There are probably quite a lot of folk misdiagnosed to be honest.

[Ernest2 in reply to Jazzw]

Many thanks for that Jazzw

I'm mid 50's so guess the LADA more likely. I really didn't realise that diabetes seems to be a spectrum of diseases, only having heard of 1 and 2 (and considering some of the others I have heard of as not really diabetes).

Bloods next week. Not had them done for a while as I considered I was getting medicalised and not getting anything out of it.

Best wishes,

Ernest

[helvella Administrator Thyroid UK in reply to Jazzw]

A classic of at least recognising the acronyms - but not knowing much (if anything) else!

[Ruby1]

Sorry to bring up an old thread, but I wish I'd read this earlier today before I had a chat with my GP and asked him if I could have Diabetes Insipidus. He insisted (in the way that makes you feel you're being neurotic), that I am NOT DIABETIC! 🙄

[helvella Administrator Thyroid UK in reply to Ruby1]

I find it interesting that posts like this - which in themselves say little - can end up being of interest or use. Sometimes long after original posting date!

[Ruby1 in reply to helvella]

Keep up the good work 😊

Mind you, he has no excuse if they've only recently renamed it, he should have known what I was talking about.

[helvella Administrator Thyroid UK in reply to Ruby1]

I guess he started to hear the first word, assumed, and possibly even started to reply before the second word had reached him. Indeed, I think that if you start to speak you literally stop hearing.

[Ruby1 in reply to helvella]

Yep! I shall see how my symptoms go, and if needs be will phrase it differently and ask for my anti-diuretic hormone to be checked.... and not mention the D word 😆