Re Devon and South West England Thyroid FB Group - name change!

[JaneChapple]

Hiya

I just wanted to update you all on the Devon Thyroid Group which now has 210 members!

Ive recently changed the name to Devon and South West England Thyroid Support Group so please feel free to join if you live in the South West area!

I am also particularly keen to hear from those of you who are under the Royal Devon and Exeter Endocrinology Team or Plymouth and Torbay, and limited to 10mcg of T3 a day.

All will be welcome as well as undiagnosed who think they may have a thyroid problem, and cant get their dr or endocrinologist to agree treatment. Here is the link:

facebook.com › groups

DEVON AND SOUTH WEST ENGLAND THYROID SUPPORT GROUP

facebook.com/groups/1035323...

There are some very knowledgeable people on the group.

Thank you.

Janexxx☺️❤️

[Legoparis]

well done Jane that’s a brilliant achievement in a largely rural community

For those of us not on Facebook ( and not wanting to go on Facebook) are you planning to communicate findings in any other way?

[Topsy33 in reply to Legoparis]

I agree Legoparis. I am not a fan of Facebook at all and have never got involved with it but would very much like to be a member. I don’t know of anyone near me with thyroid issues either!

[JaneChapple in reply to Topsy33]

You could join FB just to join the Devon Group and just use it for that purpose, its not ideal for everyone though. Where are you based?Janexxx🙂❤

[Topsy33 in reply to JaneChapple]

I am about 7miles west of Okehampton. I do not use Facebook and do not want to. I realise many are comfortable with it but not me. Would love to be in touch with others in this region though!

[JaneChapple in reply to Legoparis]

Thank you Legoparis Ill put my thinking cap on. Ive looked at forums but their not that straghtforward either. I never was a great fan of FB and its certainly been a learning curve from my point of view!Id be pleased to hear any other ideas/suggestions you may have.

Best wishes

Janexxx🙂❤

[Petalrugbaba]

Just joined your group 😊

[JaneChapple in reply to Petalrugbaba]

You are most welcome Petalrugbaba!

Janexxx🙂❤

[RedApple]

JaneChapple, There are some very knowledgeable people on the group.'

Hopefully those very knowledgeable people are also participating here on this forum, for the benefit of the wider UK thyroid community, and for those who would prefer to avoid Facebook?

[JaneChapple in reply to RedApple]

Yes they are RedApple. Ive thought about setting up a forum before but it doesnt seem straightforward from what Ive read, but then again FB has been a pain in the butt today and its not my favourite communication tool either at times!🙂❤

[Hidden]

Would you consider a website? If only to post information. I don't have FB either but I'd be keen to get involved in a local group if I could.

[JaneChapple in reply to Hidden]

Could do but no idea how to set one up. Son has some experience though. Think you have to pay?

Janexx

[MikeM46]

Lol … website is a big commitment needing appropriate

skills & continuity!

[Hidden in reply to MikeM46]

Of course, but so does any online presence.

The website doesn't need to be fancy and can be kept up to date very quickly and easily with a simple word press site.