adrenal help: hello ,I don’t have a thyroid and... - Thyroid UK

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adrenal help

Tanyaking profile image
8 Replies

hello ,I don’t have a thyroid and take ,thyroid s,thyroxine and t3 for many years..I’m ashamed to say that the last 2 years I’ve been taking cocodamol to try and help with my severe disabling,treatment resistant anxiety 😥,I can’t go on feeling so shaky,and tourtured just living in the prison of my home feeling so broken and lost..my question is that if I did the saliva test to see if my adrenals need help ,who can interpret them and help me with moving forward ? Thank you for hearing me..

Tanya

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Tanyaking
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pennyannie profile image
pennyannie

Hello Tanya :

Have you already tried taking adrenal glandular supplements ?

Tanyaking profile image
Tanyaking in reply topennyannie

hi,no I haven’t..could you explain a little about them to me please ? Many thanks..

Jaydee1507 profile image
Jaydee1507Administrator

Just reading some of your previous posts you were once folate deficient. Have you continued to take folate supplements and have you had the blood levels checked lately? B vitamin deficiencies can be a cause of anxiety.

While you're there you should get ferritin, B12 and D3 checked. Low ferritin often causes mental health issues too.

SlowDragon profile image
SlowDragonAdministrator

When were thyroid levels last tested

You need to test TSH, Ft4 and Ft3 together

Day before test, last dose levothyroxine 24 hours before test

day before test split T3 and NDT as 2 or 3 smaller doses spread through the day

Private Test thyroid early Monday or Tuesday morning, ideally just before 9am

What vitamin supplements are you currently taking

If taking any supplements that contain biotin stop these 5-7 days before test. Otherwise continue any other supplements until day before test

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65 

(Doesn’t include thyroid antibodies) 

monitormyhealth.org.uk/full...

10% off code here 

thyroiduk.org/getting-a-dia...

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Only do private testing early Monday or Tuesday morning. 

Watch out for postal strikes, probably want to pay for guaranteed 24 hours delivery 

suggest you get thyroid levels tested before considering Cortisol and DHEA test via Regenerus

regeneruslabs.com/products/...

cdn.shopify.com/s/files/1/0...

Are you on gluten free diet or dairy free diet

19aglow49 profile image
19aglow49

Hi, I had a private salivary test for cortisol which proved to be ok but further testing by an endocrinologist diagnosed a problem.

Tanyaking profile image
Tanyaking in reply to19aglow49

would you mind sharing with me what tests the endocrinologist did that led to you’re diagnosis? Really helpful..thank you .

pennyannie profile image
pennyannie

Having read Dr Barry Durant- Peatfield's book - Your Thyroid and How To keep It Healthy I learnt that the adrenals pick up the slack when the thyroid is struggling.

I was very unwell at the time and it was around 2015/16 - when I started reading up for myself and researching my unresolved health issues

I'm post RAI thyroid ablation for Graves Disease in 2005 and read how RAI is also taken up by the adrenals, ( amongst other things ) and on T4 monotherapy and dosed to have a TSH in the range, and housebound - details on my profile page.

I wasn't getting anywhere with the doctor and just thought it was something I could try for myself and have to say that after a month or two I felt I was able to stand for longer and with a little more stamina and the achey, achey lower back was easing.

I've continued with the adrenal glandular and believe it still supports me and eventually, after being refused both NDT and T3 through my surgery and hospital in 2018 I switched to taking Thyroid S. and am much improved.

There are several brands available through the ' usual ' channel though the UK one I use is no longer available due to a change in import regulations- splitting hairs - I presume - as other brands are available from abroad.

Dr Sarah Myhill has a UK / EU brand on her ' shop ' website if you want to read a bit further around the subject and the brand I currently take is full adrenal glandular rather than just cortex .

Hope that's given you something to research and think about :

Just seen you have popped up a new question :

While going through the process to trying to get help through the NHS i did see an endocrinologist and asked about my having a Short Synacthen Test - an ACTH stimulation test - which he agreed to run for me - I was told my result was ' OK ' but then read in Dr P's book that this test is not sensitive enough and only useful for people suspected of having Addisons Disease.

SlowDragon profile image
SlowDragonAdministrator

Have you tested thyroid levels yet

If levels are off this can affect adrenals

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