New results

Hello all! So after 8 weeks on 50mcg levo, 1 grain (60mg) NDT, and 10mcg T3 I have new results and I have to say I'm pretty surprised!

I've always needed high T4 to feel well but I feel better than I have in ages on this dose... Dare I say, pretty much 'back to normal' ... Or at least what I think I remember normal feels like.

TSH: 0.39 (0.27 - 4.2)

T4: 11.3 (12-22)

T3: 5.6 (3.1 - 6.8)

Test was done about 7:30am and I took my tablets about 10pm. (I take them all at once at bedtime.)

Is it worth increasing Levo to try and get T4 into range?

[tattybogle]

my two penneth... while you feel like 'a normal person'... don't EVER rock the boat .. just carry on doing whatever you are doing .

you can fiddle with the knobs if you start to fell rubbish again .

anyway :

TSH is ~ kinda perfect

fT3 is ~ kinda perfect .

and you have 'enough' T4 to avoid any concern about "maybeT4 has other roles as well as being a source of T3 and what will happen if i have Zero T4"

So leave it alone.......... and enjoy being a ''normal' for however long it lasts.

[Jazzw in reply to tattybogle]

^^^ This, a thousand times this. 🙂

[Hidden in reply to tattybogle]

Thanks, Tatty. You're right, of course! I think I'm just being greedy; a few symptoms left and I still can't go running but perhaps that's something I'll never get back to...

After 2.5 years its a relief to have found a dose that is good enough that I can forget about it... at least for now. I'll retest in a few months and see where I stand.

[tattybogle in reply to Hidden]

some things start to improve very slowly AFTER you have found the right dose , perhaps give it few months, ie. let spring happen , and then try to running at about 10% of what you want to, allow a few days to recover before you do it again, keep that level for a few weeks , don't push it ,just see what happens ?

[SeasideSusie Remembering]

I feel better than I have in ages on this dose... Dare I say, pretty much 'back to normal' ...

If you feel that good why change anything ? I'd leave things as they are and see how you feel further down the line, you can always tweak in the future if necessary .

[Delgor]

That's wonderful news Witchinghour and it sounds like you have found your sweet spot! Personally I wouldn't try to fix something that isn't broken - stay well and enjoy yourself😁

[Lalatoot]

I would agree with the others. Keep the doses as they are and see how things settle longer term. My ft4 on combo sits at 50%and my ft3 72%. I got it into my head they would be better at closer percentages through range so spent a while trying to raise my ft4. I felt rotten. In the end I realised that those results suited me rather than chasing results that some folks said suited them .

[pennyannie]

Hello again :

Sounds encouraging -

just curious - what did you decide to do with your dosing regime that we discussed at our very early morning meeting some weeks ago ?

Why change anything if feeling ' normal ' for a change - just make sure you keep drinking water and take vitamin C to bowel tolerance if still sluggish.

[Hidden in reply to pennyannie]

Hi Pennyannie,

I've kept things as they are - all at once at bedtime. I think I did notice improvement in symptoms but I also found it fairly difficult to manage so I'm keeping it up my sleeve as a 'last resort'!

Will crack on with the vit C - definitely don't want a repeat of last week!! 😂

[arTistapple]

Dare I say that sounds like quite a complicated prescription/regime. I am agog at your finding it and balancing it. Well done. I echo everyone else. Leave it alone and tweak if/when it becomes necessary!

[Hidden in reply to arTistapple]

That's the endo's work, not mine! I have to say there were times when I 100% thought he was bonkers and changing my doses with too heavy a hand but figured I'm paying him so I should try and trust him. It's worked out in the end but it's taken 2.5 years from (eventual) diagnosis and well over a year of paying privately to see the endo.

I did cost it all up once and I think, so far, I've spent £2,500 on bloods, consultant appts, and prescriptions!

[arTistapple in reply to Hidden]

I have been thinking for a while now that the ‘individualising’ of our needs is the very thing that works most against us within the NHS protocols. For a start they do not have the knowledge (most it would seem), don’t have the patience, or the resources. However it sounds like your endo (with your payments) has been able to overcome each of these issues. Unfortunately we see enough stories on here about horror endos, private or NHS. I know it seems a lot of money to get yourself ‘right’ but I have to say I think it’s worth it! However in the whole picture of things, I think it would peanuts to the NHS and the NHS could then be in a better state itself, if this sort of treatment was available for patients. The never ending costs of problems created by hypothyroidism could be avoided. It’s just become such a big clumsy clot of an organisation. When I worked there I had never worked in an organisation where one part of it so skilfully did not work with other parts and I have worked in many organisations where this was plain to see. The NHS have got it down to a fine art. Witchinghour, I hope you enjoy your ‘back to normal’ for a very long time.

[tattybogle in reply to arTistapple]

i agree arTistapple.

I'm still looking for the sign for the "Thyroidology Dept" .

Surely , as you say , a bunch of properly trained and experienced thyroid specialists that dealt with every thyroid patients medication /adjustments etc from day 1, would cost the NHS a hell of a lot less than the clusterf**k that is caused by GP's and Endo's unskilled / disinterested attempts at dabbling/ cocking it up.

[Hidden]

SeasideSusie Delgor Lalatoot arTistapple

Thank you for replying; you're all right! I was just being greedy hoping to get rid of the lingering symptoms but on balance, it would be churlish to tweak things now. Will test again in a few months and go from there.