Hi. Looking for some advice/opinions on my current situation and recent labs.
-Diagnosed Hashimoto’s in 2016
-symptoms we’re depression, suicidal ideation, anxiety, fatigue, exhaustion, muscle pain, back pain
-Relatively stable on compounded T3 and T4 from 2017 to 2021
-Since 2019, had been on 75 mcg of T4 and 30 mcg of T3.
-In Feb 2022, my GP flagged routine TSH test, was low. I felt okay.
-March 2022, my anxiety and back pain was quite bad. Told Endo. He didn’t want to make changes.
-Next few months, my back pain got worse, anxiety got worse, got severely depressed, suicidal ideation, fatigue, exhaustion, blood pressure all over place, heart would race, would feel like I’d pass out just walking 10 feet.
-Saw Endo in August. Labs were abnormal. He said I was hypothyroid. He changed T3 to 40 mcg and T4 down to 25 mcg.
-First 3 weeks after change, my anxiety and depression were worse. Then right after 3 weeks I felt something shift mentally and felt like myself again. But after 12 weeks, my exhausted, fatigue, and recovery from activity did not improve. My back pain got better and blood pressure stabilized.
-Also, since March 2022, I had leg pain in both legs when standing or walking more than 20 mins. In 2021, I could stand at parties and hike once as week.
-In Nov 2022, my legs got worse. Dr’s said my Achilles and tendons behind knees were inflamed.
-It then became hard to even walk at all. 5 days later, I got sick, was diagnosed with strep and then covid. During covid, my legs diminished further, had all kind of nerve pain, squeezing, tingling, burning, and numbness. Could now barely walk or move legs. As Covid respiratory symptoms resided, legs got a little better with nerve pain, but still have tremendous pain in ankles and behind knees. Still can’t walk or stand much. Seeing dr’s to rule out nerve issues or inflammation. So far, most tests are normal.
-It seems like the leg pain Id been experiencing all year, was very exacerbated by covid. Has anyone else experienced this or thinks it is due to having hashimoto’s? And thyroid levels still being off?
-My current Endo, doesn’t want to make any med changes. Despite labs being low. I pushed him to increase my T4 back up to 50 mcg.
-A second opinion Endo said my levels were all too low. He wants me to start NP Thyroid 60 twice a day. (Which I’m a little scared if based on their recalls and horror stories I’ve read online.) Anyonr have any recent experience with this drug?
-So looking to see if anyone has any advice on which avenue to explore. Increase T4 to 50 to see if it helps with physical fatigue and leg pain or totally switch off compounded meds to NP Thyroid 60.
-I’ve attached my most recent thyroid labs from 11/21/22.
-My B12 and D3 are both usually high. B12 was 1248 on 12/13/22. D3 was 60 on 11/22/22. (I stopped D3 supplements from Sept to Dec, cuz it was 90). But restarted them again. B1, B6 pending results. Ferritin pending results. Folate 7.8.
I’ll post remaining pages of recent labs in additional posts.
Thanks.
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