endocrinology visit

[Rowing2]

hi there. Just thought I’d update. Went to see the consultant regarding getting t3 on nhs. He said he wouldn’t supply it , but if my gp. was willing to he was fine with that. He said research shows that people with hashimotos and very low tsh that take 3 life’s expectancy is less. I said but all the tsh does is send a message via the pituitary gland to the brain so how could that be. He said they didn’t know, but that’s what the evidence is showing. He also is doing a full iron panel testing, calcium to see if I have any I’m blood after my high parathyroid result and several other tests. He basically said this should be my new normal to be in pain for the rest of my life and that I could have quality as he didn’t disagree I felt better with t3, or quantity, but not both.

[Jaydee1507 Administrator]

Well he's wrong of course. Not fair of him to refer back to your GP who very likely not to prescribe T3. Are you able to see a private Endo?

[Rowing2 in reply to Jaydee1507]

I told him I’d be taking it anyway. So why should I have to source it when it’s available on the nhs.

[Jaydee1507 Administrator in reply to Rowing2]

Well you're not wrong, just the system and their mindset is broken, making it difficult to get, and then the way they dose by TSH being in the normal range just isn't going to work well anyway. The odds of being successfully treated with added T3 on the NHS are pretty slim due to the above. They're stupid though as it just pushes people towards self medicating.

The private Endo I saw said that is why he prescribes T3, as otherwise people will just self medicate.

[greygoose]

Well, talk about a fob-off! Didn't you ask him to provide links to the research papers that show that result? What a load of hog-wash! Honestly, these endos think we're stupid and unable to read! 🤣🤣🤣

[Rowing2 in reply to greygoose]

that made me 😂😂😂😂 and yes I did , so will share if and when I receive anything from him. If. Don’t I’ll call his secretary to remind him. 😁

[greygoose in reply to Rowing2]

Yes, I hope you do! Don't let him off the hook now that he's shown his ignorance.

By the way, just for your information about the TSH, the message goes from the pituitary - TSH is a pituitary hormone - to the thyroid, not the brain.

[Rowing2 in reply to greygoose]

Thank you, I won’t especially if it does affect me getting it from my gp.I thought TSH worked like a feedback loop. From the pituitary to to the thyroid and then to the brain and round again.

[greygoose in reply to Rowing2]

Well, yes, it is a feed-back loop. But, 'the brain' is a bit vague. You could say it goes from the hypothalamus to the pituitary to the thyroid - the HPT axis. And both the hypothalamus and the pituitary are situated in the brain. But the loop doesn't go through the actual brain itself.

[helvella Administrator Thyroid UK in reply to Rowing2]

TSH itself only has a half-life of around an hour.

What primarily affects the TRH production seems to be the levels of T4 and T3 in the hypothalamus.

[Litatamon]

Even if it was true, who the heck would care about leaving the earth a year or two early in comparison to not functioning every day for decades on end for some. I need a medical journal labelled Having your life back - Should we give it to them: A Study in Common Sense

[shaws Administrator]

Oh!!!! my goodness how does the proof come from an Endocrinologist who is apparently unknowledgeable about what is an 'active' hormone or 'inactive' hormone.

He wants to put the blame or cost upon the GP if you should have a bad effect to T3 and not be blamed.

I hope you didn't pay for this appointment as he (the expert) is completey ignorent about how to restore his patient's health, i.e. relieving clinical symptoms. He is also ignorant to know what is an 'active' thyroid hormone or 'inactive thyroid hormone'.

[Rowing2 in reply to shaws]

hi, no I didn’t pay for the appointment. I thought that too, he was passing it over , so let’s see what happens when my resents come through and I see my gp.

[diogenes Remembering]

This paper shows that, on T4 monotherapy, successful outcomes come when TSH is between about 0.03 and 1 for TSH. therefore low TSH which would indicate hypothyroidism without treatment, is not so for treatment. Show your endo this:

Ito, M., Miyauchi, A., Hisakado, M., Yoshioka, W., Ide, A., Kudo, T., Nishihara, E., Kihara, M., Ito, Y., Kobayashi, K., Miya, A., Fukata, S., Nishikawa, M., Nakamura, H., & Amino, N. (2017).

Biochemical Markers Reflecting Thyroid Function in Athyreotic Patients on Levothyroxine Monotherapy. 

Thyroid, 27(4), 484–490. doi.org/10.1089/thy.2016.0426

[Rowing2 in reply to diogenes]

thank you for this, really kind of you

[meme]

please post your PTH, calcium and vitamin D results when available .

[Rowing2 in reply to meme]

I will thank you

[Batty1]

He should have his license revoked.