Hi everyone 💖
Just wondering what would be considered as a low B12... My B12 done in 2020 was..
352ng/L.......range... 197.00.....771.00ng/
I started on B12 supliments about a month ago ( better you vitamin B12 oral spray) my gut went worse so just checked the ingredients, looked ok, but it says on the side... May produce laxative effects 🤦♀️I stoped it and that resolved the symptoms. But does my B12 results look ok, surgery have not re - done B12 since 2020
My understanding is that B12 should be above 500.
Hi zazbag💖
I asked my gp if he would consider giving me a trial of B12 injections, as I have absorbtion issues, he said no your B12 is in range, as I said I tried the spray but it made me feel ill.. 🤷♀️
Try taking a tablet instead of a spray. Look for one without artificial sweeteners. You can get B12 injections privately. Your GP wouldn't prescribe injections unless you had pernicious anaemia.
Can't take tablets, I have trouble taking my thyroid medication, I'm getting liquid levothyroxin soon, I have a bad absorbtion problem so any tablets sitting in my stomach is bad, that's why I tried the spray, I'm surprised it affects me as it really doesn't go directly to the stomach 😔 I'm lactose intolorent and have colitis 🤦♀️
First and most important - your GP should test for Pernicious Anaemia and if you have this condition you have to have regular B12 injections as the stomach cannot absorb B12. It is most important that you have regular injections.
I used to get a B12 injection every 3 months but now get a monthly injection. We can have changes in stomach that means we cannot absorb B12.
I wish... Its a flippin fight getting my thyroid bloods done🤦♀️ and even more so trying to get an appointment, my surgery keeps saying "we are only doing emergency appointments this week.. Its every flippin week 😠 I've just rang them and got a sob story off the receptionist saying" ho the doctor is snowed under and can't take any more appointments, but you could ring up at 8am tomorrow and speak to a locum, 🤷♀️ same thing with the endo department got a sob story off the endocrinologist secretary saying she is the only one dealing with 2 endocrinologists letters and she is a month behind so my letter from the endocrinologist to my gp will take a month, I explained I'm waiting for thyroid medication (liquid levothyroxin) and I'm now hypo on 25mg T4 as gp decrease due to side effects, she said there's plenty like you in the same boat, why don't you complain to PALs 🤦♀️🤦♀️ thanks for nothing, what a shambles the NHS is.. 😤😤😤
Some people can make a statement that lifts the other person's attitude who've been awaiting a dose of thyroid hormones that restores their health and enables them to feel much better.
It is a pity that nowadays it is the medical professionals that seem to deflate our excpectations.
I am so fortunate that I was able to consult with the 'last two doctors' who were trained upon all of the clinical symptoms (before blood tests had been introduced) and prescribed NDTs (natural dessicated thyroid hormones) that worked for many people. They were Dr Gordon Skinner and Dr Barry Peatfield - both now deceased. They were willing to prescribe options if the patient was floundering on their dose.
Also I follow Dr John Lowe's protocol and that suited me too. Dr Lowe (was also pursued for not following the USA guidelies) so he resigned his licence too so that he could still advise patients but couldn't prescribe. He couldn't bear people suffering as he saw - at first hand - when a young boy the trauma some family members may have to go through it the hypo patient isn't diagnosed/treated optimally and may take their own lives.
Dr Skinner's staff were devasted as he collapsed and died at work because to work with Dr Skinner they said that everyday was a happy day, They spent the next couple of years collating their scientific evidence about thyroid hormones and were hoping to publish it but they needed a certain amount to do so. I don't think they've yet been able to do so.
Dr Barry Peatfield was pursued as if he was a criminal after years of being a GP and people travelled all over UK (and I'm one) to consut with him. He was a very gentle soul but knowledgeable about anything to do with a dysfunctional thyroid gland.
It's well seen that those at 'the top of the tree' have made statements about how to treat/diagnose patients but it is failing as many of us do not feel any improvement on levothyroxine and I, for one, only developed severe palpitations.
I no longer have clinical symptoms and feel well but cannot do so without T3.which has been reinstated thankfully.
Try one of these
Try this one ..
Nature Provides B12 Liquid Vitamin Drops 3000 mcg Methylcobalamin Plus Adenosylcobalamin
amazon.co.uk/Bioactive-METH...
healthunlocked.com/thyroidu...
B12 range in U.K. is too wide
Interesting that in this research B12 below 400 is considered inadequate
healthunlocked.com/thyroidu...
You will need vitamin B complex as well
Which vitamin B complex have you tried?
😂 Just been on amazon going through the hundreds of B12 products 😂 did see those drops slowdragon 👍 I'll give them a go thanks 💖
I have pernicious anaaemia (as did my Mother) and get a regular B12 injection every month. It used to be every 3 months but GP said I can have monthly. I think it is due to my mother dying of stomach cancer due to her GP withdrawing her B12 injections, telling her she no longer needed injections.
Hi shaws❤️
Would pernicious anaemia be done on a routine blood test🤔 I really don't know if I've had it done, is it a full blood count?
I remember looking at something to do with blood cells being off said abnormal but can't remember if it was white blood cells, I'll need to look back in my records 👍
You need to test vitamin D folate, ferritin and B12 at least once a year
Medichecks or Blue horizon usually cheapest option
If only our GPS would understand the need to test these vit/minerals, especially if we have ongoing conditions, I'm pretty sure I should have had the B12 tested again in 2021 but I've gone through all my printouts and can only find one done in 2020 🤦♀️
If you can afford it…test private once year
Looks like I'm going to have to do that.. 👍
I haven’t had NHS test for 8 years
Even though prescribed T3 on NHS ….they don’t do my Ft3 🤷♀️
Diagnosed with severe gluten intolerance and multiple vitamin deficiencies by (private) endoscopy 2016 …..but NHS won’t test vitamin levels annually
My GP totally happy to accept private test results at annual review
My GP so astonished at my improvement, now advises all her thyroid patients to go gluten free and get all four vitamins tested and improved to optimal
I've been thinking about going gluten free for some time now, although with the symptoms of primary hyperparathyroidism I feel ill most days, and when my calcium goes up that also causes stomach problems 🤦♀️ so I'm caught in a perpetual loop, what with my thyroid medication giving me gut issues to, 🤷♀️ but my son is paying for a private appointment with a parathyroid surgeon, so hopefully I may get that sorted, and when I get the liquid levothyroxin I can see if that helps my gut to,I said to you before, I was surprised to see my T3, T4 in the range they were.. OK TSH off but maby just maby the liquid levothyroxin may bring that TSH down 👍
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