LATEST THYROID RESULTS AND I FEEL LIKE THE WALKING DEAD IF I COULD WALK PROPERLY THAT IS.

[Pen1966]

I feel like the walking dead legs won't work properly not sleeping well headaches off food brain fog was told to up my dose 2 weeks ago from 125mgs a day to 150mgs every other day feeling 💔

Current Tsh is 1.26 range 0.27 to 4.2

Current t4 24.5 range 12 to 22

Current T3 5.1

last test results

Tsh 5.23 range 0.27 to 4.2

t4 18 range 12 to 22

T3 4 range 3.1 to 6.8

Why if my dose has been upped has my T3 and T4 risen and i feel so awful yet Tsh has dropped alot down to just above 1 do feel really ill so any help or advice would be helpful please.

[Pen1966]

Previous levels 3 weeks ago

Results

[tattybogle]

Hi Pen1966 2/3 weeks is too soon to test to see the effect of the new dose on TSH /fT4 / fT3 levels. Blood levels will be all over the place for the first few weeks after a change in dose. then they will settle to whatever they are going to be.

You need to be on the new dose for at least 6 weeks and then test.

All three levels may well look different when they are settled to what they are on this test.

[Pen1966 in reply to tattybogle]

ok thank you xx

[tattybogle in reply to tattybogle]

p.s .. also it is not unusual to feel rubbish for the first few weeks on a new dose as the body adjusts itself .. it takes time to settle so don't panic yet .

if i increase dose i have usually found the first 2/3 weeks feel a bit overmedicated , headaches , etc but then i start to feel better after that point as i get used to it .

if decreasing i seem to find the first 4/5 weeks feel undermedicated , constipated etc. but then things improve slowly .

So i now basically try to ignore any symptoms for the first 4/5 weeks and start to pay attention from 5/6 weeks onwards...... if the dose change was the right thing to do then from week 5/6 onwards i expect things to slowly improve ... if the dose change was wrong then i would expect to continue to feel rubbish /get worse after the 5/6 week point .

[Pen1966 in reply to tattybogle]

Thank you for your imput xx

[SlowDragon Ambassador]

What vitamin supplements are you currently taking

What are most recent vitamin D, folate, ferritin and B12 results

[Pen1966 in reply to SlowDragon]

Vitamin d is 132nmol range 70 to 150 nmol

Folate is 4.4ng/ml range 0.0 to 19.0 ng/ml

Ferritin is 34.8 range 13 to 150 nmol

B12 452ng/L range 0.0 to 968.0 NG//L

I take Vitamin D3 and K2 2000

B12 1200

Vitamin C 1000mg

[SlowDragon Ambassador in reply to Pen1966]

So folate is far too low

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help maintain B12 levels too

Difference between folate and folic acid

chriskresser.com/folate-vs-...

B vitamins best taken after breakfast

Thorne Basic B or Jarrow B Right are recommended options that contains folate, but both are large capsules. (You can tip powder out if can’t swallow capsule)

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate methyl folate supplement and separate B12

Low B12 symptoms

b12deficiency.info/signs-an...

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a B12 supplement as well as a B Complex (to balance all the B vitamins) initially for first 2-4 months.

Once your serum B12 is over 500 (or Active B12 level has reached 70), stop the B12 and just carry on with the B Complex.

B12 sublingual lozenges

amazon.co.uk/Jarrow-Methylc...

cytoplan.co.uk/shop-by-prod...

healthunlocked.com/thyroidu...

How other member saw how effective improving low B vitamins has been

healthunlocked.com/thyroidu...

[SlowDragon Ambassador in reply to Pen1966]

Ferritin also far too low

Are you vegetarian or vegan,

presumably post menopause

cks.nice.org.uk/topics/anae...

In all people, a serum ferritin level of less than 30 micrograms/L confirms the diagnosis of iron deficiency

Look at increasing iron rich foods in diet

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Links about iron and ferritin

An article that explains why Low ferritin and low thyroid levels are often linked

preventmiscarriage.com/iron...

irondisorders.org/too-littl...

davidg170.sg-host.com/wp-co...

Great in-depth article on low ferritin

oatext.com/iron-deficiency-...

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

Thyroid disease is as much about optimising vitamins as thyroid hormones

healthunlocked.com/thyroidu...

restartmed.com/hypothyroidi...

Post discussing just how long it can take to raise low ferritin

healthunlocked.com/thyroidu...

Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing.

It’s possible to have low ferritin but high iron

Medichecks iron panel test

medichecks.com/products/iro...

Iron and thyroid link

healthunlocked.com/thyroidu...

Posts discussing why important to do full iron panel test

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Chicken livers if iron is good, but ferritin low

healthunlocked.com/thyroidu...

Good explanations of iron

theironclinic.com/iron-defi...

theironclinic.com/ironc/wp/...

[Pen1966 in reply to SlowDragon]

I did the medichecks iron panel a few weeks ago im 55

Crp hs 0.37 RANGE 0 TO 5

IRON 16.8 RANGE 5.8 TO 34.5 UMOL

TIBC 72.5 RANGE 45 TO 81 UMOL

UIBC 55.7 RANGE 24.2 TO 70.1 UMOL

TRANSFERRIN SATURATION 23.2 RANGE 20 TO 50%

[McPammy]

I’d say you’re on too much Levothyroxine as it’s over the level. If my T4 ever goes over I suffer with weakness especially in my legs. Could you drop your T4 Levothyroxine intake very slightly to bring it just within the level. And then see if you improve.

[Pen1966 in reply to McPammy]

Worth a try xx

[Pen1966 in reply to McPammy]

Been like it for months now though and T4 was 18 at one point

[McPammy in reply to Pen1966]

If you can I’d still give it a try

[SarahJane1471]

I just want to add that I have to wait 2 months for improvements to settle. 🤷‍♀️

[Localhero]

As you only changed your meds 2 weeks ago, I would not change anything till you’ve allowed 6-8 weeks for this to settle and reviewed it again. Like tattybogle says, it’s not at all unusual to feel rubbish for some weeks after a dose change. I know I do.

SlowDragon ’s advice on folate etc is also well worth following.