Thanks SlowDragon. Just saw endo today and they told me not to increase anymore as numbers are good (!) so wouldnt have enough tablets every month to add in extra 25mcgs weekly myself. Yes working on vitamin levles - iron, Vitamin D, folate and b complex.
Just checking, you test as recommended, fast overnight? Early morning draw, cease biotin 3/7 days before draw & delay replacement until after test?
Your nutrients were low a few months ago, have you worked improving them?
Optimal nutrients will help with FT4:FT3 and deal with symptoms which may be mimicking thyroid problems.
Your levels are currently
FT4: 18.1 pmol/l (Range 12 - 22) 61.00%
FT3: 4.9 pmol/l (Range 3.1 - 6.8) 48.65%
So conversion isn’t terrible, but you aren’t quite optimal for you.
Majority do manage with right level of levo replacement & optimising nutrients. Introducing T3 often means TSH becomes fully suppressed, which concerns drs & leads to reduction in levo prescription.
I know, I feel terrible which is what made me think of starting T3. I dont see endo for 6 months now so bit stuck. Even if I had said to them that these numbers were not good they would have argued with me!
Same brand of levo - Vencamil - and take at midnight so well away from everything - have no idea why numbers are down - very disappointing.
Even if we frequently start on only 50mcg, most people need to increase levothyroxine dose slowly upwards in 25mcg steps (retesting 6-8 weeks after each increase) until eventually on, or somewhere near full replacement dose (typically 1.6mcg levothyroxine per kilo of your weight per day)
Adults usually start with a dose between 50 micrograms and 100 micrograms taken once a day. This may be increased gradually over a few weeks to between 100 micrograms and 200 micrograms taken once a day.
Some people need a bit less than guidelines, some a bit more
If symptoms of hypothyroidism persist despite normalisation of TSH, the dose of levothyroxine can be titrated further to place the TSH in the lower part of the reference range or even slightly below (i.e., TSH: 0.1–2.0 mU/L), but avoiding TSH < 0.1 mU/L. Use of alternate day dosing of different levothyroxine strengths may be needed to achieve this (e.g., 100 mcg for 4 days; 125 mcg for 3 days weekly).
The optimal daily dose in overt hypothyroidism is 1·5–1·8 μg per kg of bodyweight, rounded to the nearest 25 μg.
If this shows you are under replaced email endocrinologist requesting “trial increase “ of 50mcg PER WEEK
That’s 12.5mcg extra 4 days a week
Retest again in another 8-10 weeks
If they refuse…..look at seeing different endocrinologist
Is this one on NHS …..are they a diabetic specialist?
Looking for Ft4 (levothyroxine) at 60-70% through range and Ft3 not far behind
Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists
Ideally choose an endocrinologist to see privately initially and who also does NHS consultations so that might eventually transfer to NHS
Im 10 stone at the minute. Yes, nhs doctor and diabetes specialist. They are very definite about not having suppressed TSH so not sure they would give me an extrra 50mcgs to take weekly at current TSH. They also take a very long time to reply to emails!!
There is only one doctor on that list for my area and they dont do NHS just private and I have seen them before and no good and very far away from where I live so not sure what I can do now...
They are very definite about not having suppressed TSH.....
Do you understand that by adding T3 your TSH will become much lower than it is now and possibly even suppressed depending on how much T3 you add?
If your Endo and/or GP are not aware that you are taking T3 then likely they will just reduce how much Levo they will prescribe. It can cause a number of issues with your Levo prescription.
We always say that people really do need good vitamin levels before even thinking about adding T3, as it can cause intolerance issues with the T3.
Have you changed the iron supplement you are taking? Many members get on well with this product:
Ive found some spare Vencamil 100 tablets I had and the way my prescriptions fall I should have a spare 100mcgs each month so will be able to add in 25mcgs a week but will start with 12.5mcgs as suggested by Buddy195.
I take Bcomplex that has folate in it and iron spray as get worsening gastritis if I take any iron tablets. Will retest vitamins and thyroid in the near future and see if improvements. Thank you for all the advice much appreciated.
As others have suggested, I would look to improve key thyroid vitamins as a first step. I’ve personally found that if these are not optimal, my thyroid bloods also dip…so this could be the same with you.
I think it’s sensible to consider increasing Levo slightly. Others have suggested 25mcg, & many members have no adverse symptoms adding this. Personally I’m a fan of ‘low & slow’, so would start by adding just 12.5mcg. I’ve found small increases mean I don’t miss my ‘sweet spot’ where I feel most well.
I would not consider Liothyronine/ combination treatment at this point, as this will likely suppress TSH/ further alarm your endo/ GP. If combination treatment is to be trialled in the future, I’d look to find an endo supportive of this.
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