Thyroid antibodies : Hi I've recently done... - Thyroid UK

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Thyroid antibodies

geordieclaire120573 profile image

Hi I've recently done another medichecks test for symptoms of thyroid..docs refusing to treat... results are TSH 2 range is 0.27-4.2. free T3 is 4.57 range is 3.1-6.8 free thyroxine is 13.3 range is 12-23. Antibodies is thyroid peroxidase 24 range is up to 34. Thyroglobulin antibodies is 206. Range is up to 115.

In march it was 150 ...what does it mean? Have I got worse.

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geordieclaire120573
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My last test in march

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greygoose profile image
greygoose

No, an increase in antibodies is not a measure of the severity - or otherwise - of the disease, because antibodies fluctuate all the time. They just mean you have Hashi's. Hashi's doesn't get worse and it doesn't get better. What it does do is slowly destroy your thyroid, so with time, you do get more hypo. At the moment, your thyroid is struggling, but you don't appear to be hypo yet.

Having said that, it's difficult to tell because thyroid hormone levels are apt to fluctuate, too. And, unfortunately, you're unlikely to get a diagnosis of hypo because your TSH isn't high enough, even though you do have symptoms. You just have to wait and watch and see what happens, I'm afraid.

Redditch profile image
Redditch

I didn't get any treatment until my TSH was 13 because, at the time, they only considered higher than 10 to be a diagnosis. You will get fobbed off until you literally can't get out of bed. It's a disgrace. If you can afford it, go private.

geordieclaire120573 profile image
geordieclaire120573 in reply toRedditch

.y symptoms are awful at the minute really struggling

mrsm49 profile image
mrsm49

Have a Google on the connection between hashimotos and gluten (its in wheat,barley,rye, some oats). Talk to yr gp about yr results too.If you did decide to cut gluten out to see how you feel please note that if have any current gastro symptoms it would be best to get tested for coeliac disease (AI disease caused by gluten) first as the tests only work if you're consuming gluten regularly. My gp didn't know this and told me to cut gluten out, tests were then negative, I was later asked to eat gluten again by a diff gp for retesting but once you've cut it out it's common to then react much worse so I've not been able to get a firm diagnosis of coeliacs and just down as intolerant.

What are the symptoms

SlowDragon profile image
SlowDragonAdministrator

What were most recent vitamin results

Vitamin D, folate, ferritin and B12

What vitamin supplements are you currently taking?

Have you done coeliac blood test yet?

SlowDragon profile image
SlowDragonAdministrator

Post 3 months ago healthunlocked.com/thyroidu...

You said

Folate deficient

Vitamin D low

What was ferritin result

You need to retest vitamin levels

Next step is get all four vitamins tested and supplement to optimal

Get coeliac blood test and assuming test is negative, then trial strictly gluten free diet 3-6 months

geordieclaire120573 profile image
geordieclaire120573 in reply toSlowDragon

I only had thyroid test with antibodies

SlowDragon profile image
SlowDragonAdministrator in reply togeordieclaire120573

What vitamin supplements are you currently taking

What were actual vitamin results when tested via Medichecks originally

Likely to need to supplement continuously to maintain optimal vitamin levels

Test vitamin D twice year when supplementing

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7. One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with hashimoto’s we frequently need higher dose than average

Vitamin D and thyroid disease

grassrootshealth.net/blog/t...

Vitamin D may prevent Autoimmune disease

newscientist.com/article/23...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Great article by Dr Malcolm Kendrick on magnesium

drmalcolmkendrick.org/categ...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

SlowDragon profile image
SlowDragonAdministrator

Interesting your TPO antibodies have dropped back under range

NHS doesn’t (currently) recognise high thyroglobulin antibodies on their own as causing autoimmune thyroid disease

NHS only tests TG antibodies if TPO antibodies are over range

Significant minority of Hashimoto’s patients only have high TG antibodies

pubmed.ncbi.nlm.nih.gov/303...

Elevated TgAb levels are associated with symptom burden in HT patients, suggesting a role of thyroid autoimmunity in clinical manifestations of HT. Based on these results, we recommend screening for TgAb antibodies in HT patients with symptom burden.

Yeh what does that mean?? I take a folate supplement, multivitamin, vitamin d

eiddew profile image
eiddew

Hi geordieclaire120573

You have early stage Hashimoto’s thyroiditis. It is a distinct flavour of hypothyroidism, a chronic autoimmune inflammation disease.

The anti-thyroid antibodies can mediate lymphocytic infiltration of your thyroid gland, resulting in tissue damage, suboptimal thyroid hormone production, and hence hypo symptoms.

You are at stage 2, by your lab tests. Early stage patients can be fully symptomatic.

Read up on Dr Izabella Wentz (website and books), Dr. Westin Child (website , podcast, youtube), as a start, on protocols you can easily do to stop the progression in track, i.e. go into “remission”. The two talk a lot in common. The key is to address root causes of “autoimmunity”, not the thyroid.

Search keywords “remission” and “optimal” on their websites to start your navigation.

Childs hosts a podcast, his guests in the functional medicine field will expand your repertoire of knowledge.

Don’t wait till your gland is severely atrophy, and have to rely on meds for life.

Nutrient deficiency is one root cause. Food sensitivity another.

slowdragon gave good advice on blood tests to check on.

cut gluten and dairy straight out to see how you feel.

D3 is for immunity and many important biological functions.

iron, selenium, iodine and zinc are for optimal, active thyroid hormone production and function.

take care

I feel bloody awful at the moment. Getting pins and needles in hands all the time, so fatigued, hair falling out, dry skin, got awful irritability, heartburn, body seems slow

limonene7 profile image
limonene7 in reply togeordieclaire120573

I have also read one of Izabella Wentz’s books as well as her online content to help me understand more about Hashimotos and find out what I could do to improve my condition. I have found her books/resourses very helpful.

For me, the single most important thing to start feeling better quickly is going on the autoimmune diet (AIP). I feel best low carb or keto and find cutting out grains to be excellent for illuminating heartburn. For me, heartburn is the first message my body is sending me that it doesn’t get on with the food I have consumed and if I continue to eat it, I will continue to feel rubbish. I am now completely gluten free, I also avoid A1 type cows milk most of the time but I do include goats milk cheese, butter, yogurt, kefir as I find these ok for me. I find that foods I don’t get on with may not always show symptoms for a few days.🙂

SlowDragon profile image
SlowDragonAdministrator in reply togeordieclaire120573

Hairloss often low ferritin

What was ferritin result on Medichecks test

How much vitamin D are you currently taking

Multivitamins are never recommended on here.

Most contain iodine not recommended for anyone with autoimmune thyroid disease unless tested and found to be deficient

What’s your diet like

Are you vegetarian or vegan…..often results in low nutrient levels especially B12, iron, ferritin

Are you currently still taking prescription folic acid?

limonene7 profile image
limonene7

sorry, meant to type 'eliminating heartburn' not 'illuminating heartburn' 🙃

I've been put on a folic acid tablet from go..I take vitamin d 800. I have osteoporosis ..I'm not on any thing for iron. As my last check it was high..

SlowDragon profile image
SlowDragonAdministrator in reply togeordieclaire120573

Vitamin D 800iu very unlikely high enough dose

Folic acid not as good as folate

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid) may be beneficial.

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

chriskresser.com/folate-vs-...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Thorne Basic B or Jarrow B Right are recommended options that contains folate, but both are large capsules. (You can tip powder out if can’t swallow capsule)

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate methyl folate supplement and separate B12

Come back with new post once you get vitamin D, folate, ferritin and B12 levels retested

Test folate, ferritin and B12 annually

Vitamin D twice year when supplementing

Aiming for

Vitamin D at least around 80nmol and around 100nmol maybe better

Serum B12 at least over 500

Active B12 at least over 70

Folate and ferritin at least half way through range

Strictly gluten free diet frequently helps or is essential

Get coeliac blood test done BEFORE cutting gluten out

Thankyou. I have raised this with GP and vitamin d being low. Im. Sick of feeling awful and I feel it's getting worse especially the tiredness and pins and needles,. My muscles hurt. Literally ache everywhere. I have the shakes too ,. I'm so emotional I cry at everything

SlowDragon profile image
SlowDragonAdministrator in reply togeordieclaire120573

Get vitamins tested and coeliac blood test done

Trial strictly gluten free

Work on improving low vitamin levels

Retest thyroid levels 2-3 months time

Always test thyroid levels early morning before 9am Monday or Tuesday

Meanwhile Email Thyroid U.K. for list of recommended thyroid specialist endocrinologist and doctors

tukadmin@thyroiduk.org

Ok brilliant thanks I will do. I did .my test at 8 am on a Monday. I did wonder to retest

So spoke to go. Told him my results from medichecks. Surprise surprise said high antibodies doesn't mean my thyroid is playing up..can mean nothing...my levels r in normal range. I give up 🤷

SlowDragon profile image
SlowDragonAdministrator in reply togeordieclaire120573

high antibodies doesn't mean my thyroid is playing up..can mean nothing...my levels r in normal range

FT4 is right at bottom of range

Yep….NHS don’t recognise having only high TG antibodies as causing autoimmune thyroid disease

pubmed.ncbi.nlm.nih.gov/303...

Elevated TgAb levels are associated with symptom burden in HT patients, suggesting a role of thyroid autoimmunity in clinical manifestations of HT. Based on these results, we recommend screening for TgAb antibodies in HT patients with symptom burden.

So get vitamins tested

Come back with new post once you get results

Then work on improving to optimal levels

Presumably you have stopped multivitamins…most contain iodine and this can make autoimmune thyroid disease worse

Stop taking any supplements that contain biotin a week before all blood tests as biotin can falsely affect test results

Get coeliac blood test done too

I've binned the multivitamins

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