Thyroid results : Hi, I have got my thyroid... - Thyroid UK

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Thyroid results

CurteisS profile image
4 Replies

Hi, I have got my thyroid results and between 0.4 and 4.0 my level is at 1.5.

I know my doctor will say that this is normal and that I don’t need to increase my dose but due to this page I have learnt in the past that they will even say that when my levels have been on the higher end of the spectrum.

By pushing them to increase in the past it has significantly decreased my symptoms of an under active thyroid.

Is anyone able to advice me whether 1.5 is okay or whether I need to push my doctor to consider a high dosage.

Thank you

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CurteisS profile image
CurteisS
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4 Replies
SarahJane1471 profile image
SarahJane1471

It depends 🤷‍♀️How do you feel? Do you have any other blood results FT4 FT3 Vit b12, Vit d , ferritin folate? What dose are you in now?

All these things need to be considered before anyone can give any advice.

If you post more information it would be helpful.

S

greygoose profile image
greygoose

If you don't feel alright, then it isn't alright. It's as simple as that - if they did but no it! Besides, stupid man shouldn't be dosing by the TSH. It's not the TSH that causes symptoms, or makes you feel well. That's the FT3, but they don't understand T3, so don't test for it. But, he should at least be testing the FT4.

Most hypos would need their TSH lower than that - as low as under-range, even - simply because they need their FT4/3 higher - the TSH follows the thyroid hormones, not the other way round. But, dosing by the TSH only assumes that the pituitary is working perfectly - TSH is a pituitary hormone - and it doesn't always work perfectly.

How much levo are you taking? But however much you're taking, if you still feel hypo then you need your FT4/3 tested to see how well you are converting. The TSH alone could never tell you that.

SlowDragon profile image
SlowDragonAdministrator

How do feel….do you feel well or hypothyroid

How much levothyroxine are you currently taking

Do you always get same brand levothyroxine at each prescription

What vitamin supplements are you currently taking

When were vitamin D, folate, ferritin and B12 last tested

Just testing TSH is completely inadequate

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

Have you had thyroid antibodies tested at any time?

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis) usually diagnosed by high thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended on here that all thyroid blood tests early morning, ideally before 9am last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Jumbelina profile image
Jumbelina in reply to SlowDragon

Thank you for these reminders SlowDragon

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