I am having issues with an endo who is determined to rely on bloods only when I suspect I might have the above problem.
Can I ask though how would a defect in the above genes reflect on my blood results which are shown below.
Serum free T4 level - Normal - no action 12.7 pmol/L 11.20 - 20.20pmol/L
Serum free T3 level - No action 7.2 pmol/L 3.20 - 6.80pmol/L
Serum FSH level - Normal - no action 96.7 iu/L
Follicular Mid-cycle Luteal Post-menopausal
3.5-12.5 4.7-21.5 1.7-7.7 25.8-134.8
CORTISOL - Normal - no action 55 nmol/L
Cortisol reference range:
6 - 10 am: 133 - 537 nmol/L
Results within the reference range do not rule out
cortisol deficiency or excess. Consider further
investigation if cortisol deficiency or excess
suspected.
I am on steroids so they are saying the low level of cortisol is due to that which I daresay it quite true. They are also saying T3 bit high which can be seen on the range and that T4 is within the normal range ! Despite the fact I am still feeling unwell and have an abdomen so swollen I look 9 months pregnant which I had before when I was undiagnosed. Have had an ovarian check to see nothing nasty going on so has to be thyroid in my opinion.
TSH was not done on the test but I daresay as before it will be negligible.
I am taking T4 70 mcg and T3 5 mcg x twice a day.
I have no thyroid as such as it has atrophied i.e. atrophic thyroiditis.
I am still suspicious due to the above condition that my bloods do not reflect what is happening in the cells - am I right ?
Many thanks for any help.
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posthinking01
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what you mean it is very low - she said (the endo) it will be low because the adrenals are not producing any cortisol due to me being on steroids - but actually is that correct surely it show what steroid I am taking within the blood? TSH not sure what you mean they didn't do that blood only FSH.
Oh sorry I can see why you are querying the 70/75 - on liquid TEVA which I find good and of course liquid cos lactose intolerant you can adjust down or up very easily.
No gluten free diet made me feel very ill and upset my thyroid greatly it was pounding out of my neck very disconcerting I have been tested and not gluten intolerant - but I know the thyroid does not like it - no T3 is not lactose free - I can tolerate a bit throughout the day but when it was the T4 it was going straight through me and I looked so ill - I have pictures - it took me a while to realise I wasn't' absorbing it. Yes on lactose free diet in that I only buy LF milk, cheese, butter spread and cream can't tolerate anything else.
Not not taking the T4 in split does or the T3 away from for test.
Hi Slow Dragon nice to hear from you with your experience - the answer is no to all of those apart from all vits Ok and yes 70 mcg I meant to say. I think I am low on cortisol but then my abdomen is looking like cushings it is so huge.
I am still suspicious due to the above condition that my bloods do not reflect what is happening in the cells - am I right ?
Of course a blood test will not tell you what's happening in the cells. It just tells you what is in the blood. And, if you're taking T3, there's no way to tell how well you convert. You need to be on T4 only to see that.
I find this idea of it being downgraded because of steroids rather strange. I don't know for sure, but it sounds to me like a bit of a fob-off! But, I'm not an expert on adrenals.
Range 6 - 10 am: 133 - 537 nmol/L - me too that's why I am concerned - because I have odd symptoms of over production of cortisol but this could be as a result of being low...............
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