Hi there. I am hypothyroid and recently started experiencing vertigo and internal vibrations/tremors. After my Dr drew labs, my TSH was 10.3 which is high - I am usually around 2 or less. My Dr increased my Synthroid and said that the vertigo and internal vibrations are not a symptom of being hypo and has referred me for an MRI - assuming to rule out MS, Parkinson's or other brain abnormalities. Very scared. Question: has anyone with hypothyroidism experienced these type of internal vibrations/tremors after having vertigo or even without vertigo? Thank you in advance for your feedback!
Internal vibrations: Hi there. I am hypothyroid... - Thyroid UK
Internal vibrations
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smith124
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Yesssssss...I started experiencing neurologic symptoms after I became hypothyroid. I'm on levothyroxine now, but symptoms still remain. I don't know if they are sequels of having been hypo for 3 years, or if my low normal t3 is causing the symptoms. My MRI is clear. Blood tests all clear.
How long have you been experiencing the internal tremors and how often do they occur each day? Mine are going on 2 weeks and I am concerned.
They come and go...i've been like this for about 2 years. My neurologyst is puzzled.
It is so puzzling! Did you have an MRI with contrast? I am nervous about the dye - lots of bad information on it. Also, did your symptoms begin after Covid or a vaccination? Reading some articles out there about these symptoms tied to Covid or vaccines.
I did an MRI with contrast, just to be sure there was nothing wrong. Fortunately, all clean. There's no harm if you do it once.
My tremors started before the Covid vaccine, but after the shot I started experiencing some strange neurological symptoms (paresthesies, skin burn). At first, I thought it was my Thyroid, but after my 2 brothers felt the same, it became clear it was the shot.
As for the internal tremors and some strange night jerks, I AM convinced it is somehow Thyroid related.
They come and go, some months I feel better and some months worse. Doctors cannot explain it.
Do you think raising or lower T3 can resolve the vibrations?
I consider t3 the last choice to make. In fact, I have friends with low normal T3 with absolutely no symptoms at all. That makes me wonder if it is in fact t3 causing the symptoms.
Internal vibrations or internal tremors are sometimes caused by either low or high cortisol.
The best test for cortisol is a 4-part saliva test, and the best versions of the test will measure DHEA from the saliva samples as well as cortisol. There is no benefit from having a test with more than four samples required.
Another thing to know before buying such a test is what the reference ranges are for each of the four saliva samples. If any of the cortisol reference ranges include zero as the bottom of the range then it isn't a good test. I don't think a result of zero is indicative of good health unless you're a corpse.
These links may be helpful :
paulrobinsonthyroid.com/sym...
holistichelp.net/blog/what-...
If you were ever to do a test for cortisol levels this thread written for another member gives an indication of what you might learn, depending on your results :
healthunlocked.com/thyroidu...
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I'm afraid I can't help you with vertigo. It isn't something I've ever investigated.
I have internal tremors. I have seen a neurologist and had MRIs in the past about strange symptoms. He told me that anything sinister starts in one place and then spreads, that reassured me, and hopefully it will reassure you too. The tremors can be caused by so many things, nutrient deficiencies, anxiety, insomnia, sleeping disorders, perimenopause. So try not to worry too much.
Yes I agree. It’s really hard to know the cause so try not to worry. I’d focus on ensuring your thyroid levels (t4 and T3) are high enough in range and your folate b12 D iron etc are also high enough.
My neurologist said the same thing to me.
I just read about your night jerks, I get those too as well as the vibrations, it’s really helpful knowing I’m not the only one.
What did your doctor say about the strange night jerks? How long have you had them?
I have had them on and off for nine years. Sometimes they go. They are worse if I’m stressed or very tired. The neurologist wasn’t worried, he said they are common and normal especially during stressful periods. Funnily enough after he had told me they weren’t a problem, they got loads better, which to me proves it’s nothing to worry about. But I have put my fibromyalgia in to remission using mind/body techniques so I have a strong belief in that connection, and how our minds can create very real physical symptoms.
I was further diagnosed with pernicious anemia, and due to the B12 deficiency, I had neurological symptoms very similar to those you are talking about. Have you had your B12 levels checked?
Just had more labs drawn so I will find out on vitamin levels. Scheduled for a contrast MRI - nervous about it.
I think anyone who has faced these vibrations knows how scary it is. It's easy to say relax, but I wish you all the best and fingers crossed!
Hi. Yes I have and I’m still experiencing these “vibrations” inside my whole body. It’s like a slight trembling and I believe personally that it is my Hashimoto that’s causing it. But I’m glad your doctor has referred you for a scan. Of course it could be due to other reasons, but my experience of doctors isn’t a positive one in general. They dismiss or overlook so many symptoms that people with Hypothyroidism & Hashimoto describe when talking to them. We can’t all be wrong can we?!??!!! Their knowledge of hypothyroidism and Hashimoto is sadly extremely minimal. Meanwhile I hope your MRI goes well and doesn’t show anything like other “abnormalities”.
Thank you so much. I absolutely agree about Drs. Tend to be very dismissive and in a hurry to move on to next patient.
Yes I get this almost on a daily basis. Its a very strange feeling.
Good morning
I literally jumped out of bed to reply to you, I'm so sorry that you are experiencing the same symptoms as me. I started with an internal tremor / vibrations last November following surgery to remove part of my thyroid. My initial blood tests post surgery showed that my TSH level was too high so I started taking Levothyroxine 50mcg and shortly after the tremors started and have been with me 24 hours a day, 7 days a week ever since.
My GP is very supportive and together with have explored various options, none of which have helped at all. She has now referred me to a Neurologist thinking that the symptoms are nothing to do with my thyroid levels. I am currently awaiting an appointment.
I must say the shaking has had a very negative effect on my whole life, I can;t remember what it's like to feel well any more......
Have you had COVID-19? I only ask because I have read online of a significant number of people who have experienced these symptoms as part of long Covid.
Good luck with your road to good health.
Thank you for sharing your story! Praying we all find the answer to this. I have not had Covid that I know of. Because of being immunocompromised I am vaccinated and boosted. The sudden onset of vertigo & onto the internal tremors does make me wonder if I got Covid but didn’t have the typical Covid symptoms they talk about, so am doubtful that was it.
Hi - I had the same and was referred recently. The mri & ct scan we’re clear if that reassures you. The tremors have settled but I still have slight vertigo & tinnitus but consultant is trying manoeuvres to help.
How long did your symptoms continue? Did you have contrast MRI? Nervous about getting the dye - read bad things about it.
I’ve had vertigo on and off for a couple of months but not as bad now & still have tinnitus. The mri was fine - noisy but fine! I didn’t have contrast but have had it before & it’s not scary at all and no problems with it. The shakes went after a few weeks xxx
Yes 👍 buzzing/fizzing/tinnitus but it has eased as my Levo dose has increased x
I was alto hospital with vertigo it was so frightening, I have never experienced it before. I have an under active thyroid and I am on medication. I had a CT scan and that was clear and then I had an MRI and that was also clear. I was in hospital for four days but they said it was nothing to do with my thyroid.
smith124,
Welcome to our forum,
Internal vibrations are common but not recognised as such by conventional medicine.
My own started during my recovery from years of undiagnosed Hashi, went on for several years and have become less frequent as time goes on. I used to identify to being plugged into a fridge and they were so intense they could wake me at night, suddenly switching on & off.
I used to think it adrenal issues because my own were in poor state but now consider it to associated to the autonomic nervous system. I have identified my own were more evident during periods of rest so wonder if perhaps the parasympathetic nervous system becomes up-regulated by the vast dysfunctions caused by autoimmune conditions.
I also found Suzie Cohens article on small fibre neuropathy (that another member kindly posted the other week) fascinating. SFN can be autoimmune driven and the consequences are not just tingling/numbness but a whole host of the unusual symptoms we often see on this forum with 'deep vibration' being one of them.
.
HealthUnlocked Search
healthunlocked.com/search/p...
.
Google Search
google.com/search?client=sa...
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SFN
suzycohen.com/articles/smal...
That makes perfect sense to me. Thanks radd
Hi Smith, so sorry you're experiencing this - both vertigo and inner trembling are scary symptoms and can be debilitating. I've ended up in A & E a couple of times. Long story short, for me, it turned out to be vestibular migraine, diagnosed (twice) by neurologists. I tried various preventative medicines but in the end avoiding triggers and supplementing magnesium helped. I saw other specialists e.g. ENT in case it was Menieres disease, also checked out thyroid connection and levothyroxine dosage but vestibular migraine was best explanation. These symptoms can have different causes so it is a process of elimination to get a diagnosis. Hope you get help soon.
Thank you for sharing! Looking up vestibular migraine now.
I think this article gives a helpful overview. medicalnewstoday.com/articl...
For me, I am sure the inner vibrations were partly to do with anxiety that I was going to have a bad attack of vertigo.
Hi, have you checked your potassium levels? Hypokalemia (low potassium) could have vertigo as a side effect and it needs to be corrected, which can be simply done, might be a good start to check that out, good luck
My Dr just ran more labs yesterday so hoping to find out levels soon.
Great answers here, it can be caused by numerous things. For me it's when my thyroid hormones are running low or my vitamin levels aren't good, I've also experienced it with low blood sugar, but for me it's mostly tryout related. I've had MRIs and a few other brain tests and nothing came up as abnormal.
Hi, so sorry to hear you feel this way. But yes I have all these symptoms, Dr said nothing to do with Hashi’s, sent for sooooo many CT’s MRI’s test after test, drug after drug, to no avail. The Dr’s at ENT are just pathetic. The vibration in my body tends to go after a few weeks and sporadically returns. Vertigo can be debilitating for me for up to two weeks and my is soooo bad and has been since i started Levo, hasn’t got any better. And now going deaf in right ear. My vitamins are now optimal but still symptoms remain. And all I get is it’s not related, rubbish I say. I’ve read so many posts with people having the same symptoms. Sorry for the not very helpful response I Really really hope you get something sorted, sending ❤️🙏🏻
Thank you so much! Praying we all get answers for this - it is debilitating.
Hiya,
I have hashimotos and psoriasis with close family member having Ménière’s disease.
I’m on 125mcg daily and vitamin d
I started with vertigo around a year ago and also haven’t found an answer as to why or what is causing it.
I have found various research online linking Hashimotos and vertigo. Also autoimmune ear disease and Hashimotos. I suspect mine is related to my ears as I have psoriasis inside them and my mum had Ménière’s disease.
I did wonder if vertigo was caused by covid or the vaccine, as you’ll also find research linking them. But my vertigo started before I caught it or was vaccinated.
Vertigo is also noted as a very common symptom for the general public -healthy or autoimmune.
The above isn’t really helpful is it? But I guess I just wanted to say that yea I have it too and yea it probably is autoimmune linked
I hope you find some answers and/or relief xx
I remember symptoms like carpal tunnel syndrome and muscle weakness after my primary care physician at the time reduced my dose because TSH levels had dropped slightly below the reference level (🙄🤬 I didn’t know what the result would be - until I developed weird but typical symptoms). My TSH was about 12 , and fT3 and fT4 levels were around 25-35% or so. I realized that they need to be much higher for me, in the upper third (and I had to increase the frequency of B12 injections for my PA treatment).
The experts here might have a clue if you post your other labs (fT3, fT4, ferritin, D3, etc.) here.
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