Subclinical

[4youreyesonly]

Hello, I posted for the first time in feb.Had done a medicheck blood test with Tsh 7.44 ( 0.27-4.2). Ft4 15.7 (12-22) and Ft3 5.2. (3.1-6.8).After advice on here I asked gp for other tests you recommend all ok E except ferritin .Would not do iron panel . Bloods from gap taken 8.30 am Tsh 5.4 T4 15.3 wants me to have bloods done in six weeks . He doesn’t know yet I had a private test . My question is why has the Tsh gone down and do you think I still should consider telling him and going on thyroxine. I have positive antibodies and a shrinking thyroid . Cheers

[4youreyesonly]

Sorry , forgot to say go bloods done last week

[SeasideSusie Remembering]

My question is why has the Tsh gone down

Levels aren't static and it depends on whether the test was done under exact same circumstances, we always advise to do test at same time, preferably no later than 9am, with nothing to eat or drink except water beforehand.

I have positive antibodies and a shrinking thyroid

Raised antibodies suggest autoimmune thyroid disease (Hashimoto's) and fluctuations in test results and symptoms are common with Hashi's.

If you have had a GP test which shows raised antibodies with over range TSH then GP should diagnose autoimmune thyroid disease and prescribe Levo. Your GP may or may not accept your Medichecks result.

[4youreyesonly in reply to SeasideSusie]

Thank you for your reply. Should my T4 be below range or not before going on it

[SeasideSusie Remembering in reply to 4youreyesonly]

Should my T4 be below range or not before going on it

Not necessarily. If you have over range TSH with positive antibodies that usually confirms Hashi's and it's inevitable that full blown hypothyroidism will develop at some stage. If you are symptomatic and have those results there doesn't seem to be any reason to prolong the agony.

[4youreyesonly]

One more question, I did a trial of Levi a few years ago 25 mg when tsh was raised only 25 mg and it was never changed for a year because tsh was always within range.I started to lose a lot of weight so stopped it .Ever since my tsh has been normal!Could it be that with it being auto immune it has been fluctuating all this time . It is complicated for me as I have auto immune connective tissue as well thanks

[SlowDragon Administrator]

What were actual vitamin D, folate and B12 results and ranges?

Autoimmune thyroid disease often starts with transient hyperthyroid results and symptoms before becoming increasingly hypothyroid

Suggest you get iron panel test done for ferritin and iron

Medichecks iron panel test

medichecks.com/products/iro...

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

As you know cause is autoimmune thyroid disease

If not already on strictly gluten free diet, GP should run coeliac blood test

nice.org.uk/guidance/ng20/c...

1.1 Recognition of coeliac disease

1.1.1 Offer serological testing for coeliac disease to:

people with any of the following:

persistent unexplained abdominal or gastrointestinal symptoms

faltering growth

prolonged fatigue

unexpected weight loss

severe or persistent mouth ulcers

unexplained iron, vitamin B12 or folate deficiency

type 1 diabetes, at diagnosis

autoimmune thyroid disease, at diagnosis

irritable bowel syndrome (in adults)

first‑degree relatives of people with coeliac disease.

is complicated for me as I have auto immune connective tissue as well thanks

Do you mean Elhers Danlos?

Many members with EDS and Hashimoto’s find gluten free diet gives significant reduction in symptoms

[4youreyesonly]

Thanks SlowDragon, ok for ceoliac , more like lupus.

[SlowDragon Administrator in reply to 4youreyesonly]

You need to click “reply” otherwise other poster doesn’t get alerts

So you have had test for coeliac and it was negative?

Always worth trying strictly gluten free diet

Only 5% of autoimmune thyroid patients are coeliac but over 80% find strictly gluten free diet helps or is essential

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

[Roadrunnergreg]

In addition to Slowdragons comment, autoimmune diseases regularly accompanies an infestation of Candida, or EBV etc. If gut issues are in the mix then it's likely candida that's gone systemic and where your problems are like the thyroid RA Lupus etc, clear up the infection then the thyroid issues etc can be reversed Ideally you need a Low Glycemic Diet 55 or below, include berries like blueberries also optimise vitamins/hormones A and D3 vitamin D needs to be between 70-100mmol on your blood test as there's enough to produce Cathelicidins natures antimicrobial that gobble up bacteria viruses fungus etc if it's a viral infection then vitamin A puts a sheath around the cells to prevent infection of the viruses, viruses need to enter the cells to reproduce they need access to our/your DNA to replicate vitamins A and D3 are smarter choices...

Dr Roby Mitchell

[4youreyesonly in reply to Roadrunnergreg]

Wow, I may need to read through that a few times and look it up .many thanks for your reply