Possible Subclinical hypothyroidism - exhausted - Thyroid UK

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Possible Subclinical hypothyroidism - exhausted

BumblingBee89 profile image
10 Replies

Hi everyone,

I went to the gp a few weeks ago after feeling increasingly exhausted for months. I do work full time and have 2 young children, one with additional needs, so I had put it down to this.

Bloods came back with possible Subclinical hypothyroidism.

TSH - 7.9 (range 0.27 - 4.20)

T4 - 12 (range 12.0 - 22.0)

This actually happened about 8 years ago, and then when retested it was normal again. I know now to get tested first thing before eating for accurate results though, which I did this time.

GP wants to retest in 3 months, but I am absolutely exhausted, drained and have brain fog. Could this all be to do with my thyroid?

Bloods showed that I am also anaemic, but not why, as they didn’t test for iron. So this is also being retested in 3 months time to find the cause of the anaemia.

Haemaglobin - 108 (range 120 - 160)

I’m posting to see if anyone else has had similar and could this be why I’m so tired? I’m also absolutely freezing all the time. Is there anything else I can do? My doctors are generally really unhelpful unfortunately

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10 Replies
helvella profile image
helvellaAdministrator

I'm not surprised you are feeling exhausted, freezing, tired. Of course you are!

Iron deficiency and hypothyroidism go hand in glove with each other. Lots who are hypothyroid are iron deficient. And adequate iron is essential for thyroid hormones to work in our bodies.

Having an FT4 right at the bottom of the reference interval (range) isn't subclinical hypothyroidism, in my view. TSH is too high, but that is not a good way of assessing whether or not someone is hypothyroid. Sometimes we see people with only slightly raised TSH who are very symptomatic and struggle to get adequate treatment. And others with extremely high TSH who almost miraculously improve relatively easily. All unpredictable.

Leaving you hypothyroid AND iron deficient for another three months is a special form of neglect bordering on cruelty.

Are you in a position to do some private blood tests? If so, it might be well worth doing some in order to get a full appreciation of iron and thyroid levels including ferritin, FT3 and antibodies. It is easy to suggest this but not everyone is able to.

helvella - Iron Document

This is a summary of what I have read up and found out about iron supplements over the past few years. I am not in any way medically trained. You are strongly encouraged to check every detail before making any decisions for yourself.

Last updated 23/12/2024

Link to blog:

helvella.blogspot.com/p/hel...

SlowDragon profile image
SlowDragonAmbassador

Haemaglobin - 108 (range 120 - 160)

Why is GP not treating your anaemia

Go back and request they do full iron panel test including ferritin

cks.nice.org.uk/topics/anae...

Serum ferritin level is the biochemical test, which most reliably correlates with relative total body iron stores. In all people, a serum ferritin level of less than 30 micrograms/L confirms the diagnosis of iron deficiency

Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing.

It’s possible to have low ferritin but high iron

Test early morning, only water to drink between waking and test. Avoid high iron rich dinner night before test

If taking any iron supplements stop 5-7 days before testing

Medichecks iron panel test

medichecks.com/products/iro...

Look at increasing iron rich foods in diet

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

come back with new post once you get results

SlowDragon profile image
SlowDragonAmbassador

Thyroid levels should be retested in 6-8 weeks

Not necessary to wait 3 months

Suggest you test privately now

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

NHS only tests TG antibodies if TPO are high

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Essential to test vitamin D, folate, ferritin and B12

Lower vitamin levels more common as we get older

For good conversion of Ft4 (levothyroxine) to Ft3 (active hormone) we must maintain GOOD vitamin levels

What vitamin supplements are you taking

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Only do private testing early Monday or Tuesday morning.

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

DippyDame profile image
DippyDame

Those levels indicate you are hypothyroid and should be medicated now....what good reason does this GP have for delaying for 3 months. None!!

There is nothing subclinical about those labs you are overtly hypothyroid and your low thyroid hormone levels show this.

Your TSH is far to high....it should be 2 or under

After diagnosis by high TSH both FT4 and FT3 should be tested to provide a full picture of your thyroid status.....but at least FT4 at this stage.

The ignorance amongst medics is shocking!

Anaemia will be contributing to fatigue

Go back to your surgery and ask to be put on a trial of 50mcg levothyroxine! If the GP won't listen then complain to the Practice Manager that you cannot now cope with the symptoms and need help asap.

If that approach fails test privately as SlowDragon suggests.....with details of where

Leaving you hanging on for months is tantamount to medical neglect

See also helvella's excellent response.....

Not only are your doctors "generally really unhelpful" they are seriously incompetent and incapable of treating thyroid patients as expected.

Phone the surgery tomorrow and ask for an appointment as soon as possible....preferably with another GP.

Yes, your underactive thyroid gland is the problem along with deficiency of key nutrients which support thyroid function

Good luck and please keep us posted

BumblingBee89 profile image
BumblingBee89

I am so grateful to you all for taking the time to respond with such useful replies, thank you so much. It is affirming and reassuring to know that there is a reason for my tiredness. I’m used to being a bit tired, but this is next level. I had to have a nap on the sofa this afternoon.

My next blood test is testing my antibodies and my ferritin, so I’m not sure why I’ve been asked to wait 3 months? I already have the blood form but was told to wait 3 months. I have booked a blood test for tomorrow morning at 7.15am (must have been a cancellation!) which is only about 3 weeks after my last blood test, on the basis that it’s testing something different (Ferritin and antibodies). Does that make sense to do?

Thanks again, really appreciate all of the supportive and informed responses 😊

helvella profile image
helvellaAdministrator in reply toBumblingBee89

Get in and get that done! :-)

It is ridiculous to only do ferritin, but if that's all they will do, get it done.

Do be aware that ferritin rises if you have any inflammation for any reason. What might look an OK ferritin result might only look OK because of the inflammation. That is why, eventually, you simply must have a more comprehensive set of iron tests - an iron panel.

BumblingBee89 profile image
BumblingBee89 in reply tohelvella

Thank you 😊 I have just checked, and my blood form includes iron studies as well so that sounds like it might be the same thing. Fingers crossed!!

helvella profile image
helvellaAdministrator in reply toBumblingBee89

Great! The terminology does vary.

BumblingBee89 profile image
BumblingBee89

Update

I’ve received my bloods back today.

Thyroid antibodies are 279, normal is below 34.

From experience, is it likely this will lead to some treatment? I will be making an appointment tomorrow.

My ferritin is also low, it’s 8, so hopefully I’ll get some iron too.

Thanks again everyone 😊

humanbean profile image
humanbean in reply toBumblingBee89

If your doctor drags their heels about prescribing iron supplements, please be aware that it is possible to buy the same iron supplements that doctors prescribe without a prescription from pharmacies in the UK and they aren't hugely expensive. Theoretically a pharmacist could refuse to sell them to you (it rarely happens), but if that happens just go to another pharmacy.

The supplements doctors prescribe are called "iron salts" and they are :

Ferrous Fumarate

Info on these including dosing can be found on this link :

bnf.nice.org.uk/drugs/ferro...

.

Ferrous Gluconate

Info on these including dosing can be found here :

bnf.nice.org.uk/drugs/ferro...

.

Ferrous sulfate

Info on these including dosing can be found here :

bnf.nice.org.uk/drugs/ferro...

.

I raised my iron and ferritin several years ago with ferrous fumarate 210mg. I would advise avoiding ferrous sulfate - it is extremely poorly tolerated. I've never personally taken ferrous gluconate.

I would also suggest that you actually try something other than iron salts first. Instead a lot of people have done well with haem (or heme) iron tablets. To read about them see these two links :

healthunlocked.com/thyroidu...

threearrowsnutra.com/en-uk/...

Good luck. :)

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