Thank you helvella, the price does seem to be travelling in the right direction.
I'd be really interested to know why 5mcg and 10mcg tablets are more expensive than the 20mcg tablets , it doesn't make any sense to me, surely they are not more expensive to manufacture.
I think it is largely due to the lack of competition. Only one company offers 5 and 10 microgram tablets.
(That's a bit misleading, as Sigmapharm are also now holders of a licence for 5 microgram tablets. And there are two makes (Roma and Colonis) of hard capsules in 5, 10 and 20 microgram dosages. But these are all quite new.)
Can you share the evidence you have to back up that assertion please?
The CMA don't have any powers to affect the price of medicines, they told me. They said its up to the market to eventually drive down the price in light of their rulings of over pricing. They can require compensation to be paid the the NHS though.
It is still disgraceful, as my friend brings mine from Greece and pays about 3 euros for 28 tablets. Why cannot the NHS do the same? It is utter madness…
I agree. Both lio and levo are generic medicines and can be bought for pennies. Why the NHS with it's massive buying power can't source / negotiate a a good quality and value for money supply is verging on criminal. To then try to restrict lio as a result of it's own incompetence is immoral.
NHS obviously employed some idiots who were not good at a “buyers” job. Plus they get their wages at the end of the month regardless. It’s other people’s money they are spending, might have been different if it was their company or it affected their salary………….☹️
Thanks for update. Basically no change in the price and only one brand available on the NHS STILL !! I'd have expected better - a reduction in cost at least , but NO ! Keeping us ill is better for the NHS ?! Shocking and disgraceful !! The NHS is losing so much money and yet the government still won't get the costs of medicines reduced ! What is going through their tiny shrimp like brains !! I cannot take the NHS brand morningside LIOTHYRONINE due to allergy to acacia powder filler in it !! SUCKS If I could buy abroad I would. :/ But at least I am able to get another brand for now on the NHS SOMEHOW, I'm not sure for how long I can do that for though !
I get either Mercury Pharma or Teva supplied to me. 20mcg that I cut up. Can’t tolerate Levothyroxine from Teva but the Liothyronine is ok. Never had Morningside
Are you sure you cannot obtain different brands from your pharmacy? I have it written on my prescription from my GP that I need “Mercury Pharma only”. Frequently, however, I am told that they cannot get it from their supplier and they try to fob me off with ones I do not like. This week I have had to accept different brands but at least the pharmacist was prepared to discuss it with me and is ordering ones that vaguely suit me. I think your pharmacy is not telling you the truth if they say that the NHS allows only one brand.
I posted the other day how the NHS says prescriptions should be written when a specific make is intended. (It says for Levothyroxine, but it is exactly the same for Liothyronine or other medicines.)
I know that, as mine is written in this way but I am puzzled that members are being told that only one make of Levothyroxine is available to them, as I have always had a choice.
There have always been multiple makes of Levothyroxine - at least from 1978 when Cox (now Accord) joined Glaxo (now Mercury Pharma) Eltroxin. (Anyone knows better - please tell me. )
Thank you for this list Hevella. I stick to 20s since I couldn’t justify the exorbitant extra cost of 10 & 5.
My God daughter got me some for £30 for 100 from Slovakia about 3 yrs ago- she lives just over the border in Cz. They were made for a German company.
My GP writes in omeprazole tablets on my prescription but I still need to make sure it doesn’t say capsules on the box since they are identical and the pharmacy have put “tablet” labels on “capsule” boxes.
I wanted to ask Re antibodies. Do you know what happens to them when the thyroid is totally gone? Do they stay somewhere quiescent?
Can they go to the pancreas and cause problems there?
I ask because my diabetes is very unstable after having been stable for about 20 yrs.
Antibodies have quite short lives. They are produced in huge numbers by the immune system - when it is triggered. If you have absolutely no thyroid tissue, you would not expect there to be any Thyroid Peroxidase in your body - hence no trigger to manufacture and release TPO antibodies. But we hear suggestions/claims that they can be triggered by taking desiccated thyroid, or other substances. Very difficult to get good and accurate information.
It doesn't make things simple that, in people with one autoimmune issue, there is a much higher likelihood of them suffering a second.
Thank you. I’ve never taken dedicated thyroid. So it’s really finding out if this another autoimmune situation or connected to my PCOS.Interestingly my great grandmother had a huge goitre many yrs eating lambs thyroid (we’re Jewish). She also developed diabetes treated by insulin.
I’ll try to find out how to test the pancreas and let you know if I get anything interesting.
No - I copied what it has in the Tariff. But there are more makes/brands. Have a look at my medicines document. It also has a table which identifies which UK thyroid hormone products contain acacia, lactose or mannitol.
helvella - Thyroid Hormone Medicines
I have created, and try to maintain, a document containing details of all thyroid hormone medicines in the UK and, in less detail, many others around the world.
I’ve just been taken off Mayne Pharma 5mcg they said as it’s unlicensed. I was prescribed Morningside 5mcg last week. Do you know what the price difference is please?? I haven’t switch to my new Morningside brand yet but I’ll will try it out soon. Thanks.
Sigmapharm 5 microgram is also now licensed in the UK. As are Roma and Colonis 5 microgram hard capsules. See:
helvella - Thyroid Hormone Medicines
I have created, and try to maintain, a document containing details of all thyroid hormone medicines in the UK and, in less detail, many others around the world.
Special imports, such as Mayne Pharma, will be expensive but afraid I don't know how to find the price.
I usually suggest that you try the Morningside soon, while you still have some Mayne Pharma left. If you cannot tolerate the Morningside for any reason, you will have the possibility of reverting, at least for a few days, to allow you to try to do something.
Thank for your detailed reply. I have ThyBon Henning 20mcg that I cut into quarters available to me. I get that privately.
I really much prefer ThyBon to anything I’ve tried. Sigma 5mcg brought me out in a rash all over my stomach. So can’t tolerate that brand. I’ve loads of Mayne Pharma plus ThyBon too in my cupboard. I’m well stocked up deliberately. I’ll try the Morningside when I have a free week or so of now socialising or anything. I just wondered about the cost and if it might come up during my next NHS consultation.
I got mine from a pharmacy in Germany but that line of supply has now stopped due to Brexit. You can now get them in the U.K. I think the pharmacy is Roseway but you’ll need a private prescription.
Sorry if it came across badly. I just know that people pick things up from all over this forum, and making a correction immediately can prevent mistakes propagating.
I also genuinely thought it possible that after the shortages of Sanofi Cynomel, the company could have switched over to Thybon Henning - possibly rebranded.
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