June 2022 NHS Drug Tariff - Liothyronine - Thyroid UK

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June 2022 NHS Drug Tariff - Liothyronine

helvella profile image
helvellaAdministratorThyroid UK
32 Replies

Liothyronine 5microgram tablets 28 £99.47

Liothyronine 10microgram tablets 28 £152.44 (Morningside Healthcare Ltd)

Liothyronine 20microgram tablets 28 £63.08

Hard capsules (Roma) are still not included.

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helvella
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32 Replies
RedApple profile image
RedAppleAdministrator

The difference in prices is staggering. You could get the 20mcgs, throw half away and it would still be cheaper than the 10mcg!

helvella profile image
helvellaAdministratorThyroid UK in reply to RedApple

Ironically, that is a pretty much what the instructions say - all their talk of dispersing in water...

RedApple profile image
RedAppleAdministrator in reply to helvella

Good point!

Thicket profile image
Thicket in reply to RedApple

I get the 20mcgs and I don’t throw it away. I keep it in fridge for the next day. What a waste.

Hay2016 profile image
Hay2016 in reply to RedApple

Yep and when I suggested to my endo I get 20mcg and split them instead of 5mcg she had a hissy fit and said you can’t pick and choose what you want on the nhs. So I got 5mcg and spoke to gp who then prescribed me 20mcg. Wasn’t having that it was far cheaper for nhs. 🤷‍♀️

Star13 profile image
Star13

Who makes the 20mg tablets and are they lactose free?

helvella profile image
helvellaAdministratorThyroid UK in reply to Star13

Morningside is named because they are the ONLY company who supply 10 microgram tablets.

All the information is in this document:

Star13 profile image
Star13 in reply to helvella

“This document” ????

humanbean profile image
humanbean in reply to Star13

I am guessing that helvella was referring to the Patient Information Leaflet or the Summary of Product Characteristics :

medicines.org.uk/emc/produc...

helvella profile image
helvellaAdministratorThyroid UK in reply to Star13

Apologies:

helvella - Thyroid Hormone Medicines

I have created, and try to maintain, a document containing details of all thyroid hormone medicines in the UK and, in less detail, many others around the world.

From Dropbox:

dropbox.com/s/wfhrlmb5983co...

From Google Drive:

drive.google.com/file/d/12N...

humanbean profile image
humanbean in reply to helvella

Oops, I should have remembered your links. :P

Star13 profile image
Star13 in reply to helvella

Much appreciated!👍😊

2pence profile image
2pence

Tesco fulfilled my prescription for 20mcg Morningside Liothyronine yesterday but the pharmacist said that Roma didn’t come up on their system when I asked.

helvella profile image
helvellaAdministratorThyroid UK in reply to 2pence

This is an ongoing problem. I have tried to find the requirements of the NHS contracts - I'd be amazed if they are not forced to supply what is prescribed. Especially as there is no available other hard capsule - thus no "generic" substitution is possible.

BadHare profile image
BadHare

£2.30 for a pack of 30 25mcg OTC in Greece, & that’s from a profit making company. It might be a tad dearer since I last went there three years ago. Four years ago it was only £1.15 a pack.

helvella profile image
helvellaAdministratorThyroid UK in reply to BadHare

We are rather tired of hearing that the MHRA is insisting on higher standards than other countries. And that being the justification for higher prices. Now we have Roma, Colonis (same as Roma but not yet marketed, it appears), SigmaPharm - and now it appears likely Alturix/Helm will be added. All of them made outside the UK (added as I realised I had not made this clear).

If it really did cost well over £200 for Mercury Pharma liothyronine due to costs, how come they are still marketing their product at its current much lower price? Wouldn't any rational company leave the market and stop making a loss?

Gingernut44 profile image
Gingernut44 in reply to helvella

I must admit, it seems rather odd Roma is still not quoted. Also, to add, the Teva Liothyronine I had quite clearly stated “manufactured in Hungary” !!

helvella profile image
helvellaAdministratorThyroid UK in reply to Gingernut44

That was me forgetting about Teva being manufactured overseas! :-)

shaws profile image
shawsAdministrator in reply to helvella

When I enquired two days ago with the pharmacist about giving Roma T3 - a day later he told me that - as it was a 'capsule' - it couldn't be prescribed. It would have to be a 'tablet'.

Gingernut44

helvella profile image
helvellaAdministratorThyroid UK in reply to shaws

Do you mean that your pharmacist would not dispense a capsule against a prescription written for a tablet?

I think that would be correct. (Though increasing flexibility is sometimes available for pharmacists, I don't know if it has reached that point.)

But wouldn't the prescribing doctor be happy enough to write a prescription for capsules, if that is what is needed? Especially if they are lower cost.

Gingernut44 profile image
Gingernut44 in reply to BadHare

Actually, Uni Pharma Liothyronine is 2.30 Euros for 30 tablets which equals approximately £1.95 per packet at today’s exchange rate. And to think that the DHSC has the nerve to tell us that we have some of the cheapest medications in Europe!!

helvella profile image
helvellaAdministratorThyroid UK in reply to Gingernut44

Next time you see that, put in a complaint, maybe a Freedom of Information request to find out how they make the assessment behind that claim. Write to your MP. Whatever else you can think to do.

Gingernut44 profile image
Gingernut44 in reply to helvella

I, and many other members of ITT Group on FB wrote to our MP’s some time ago and we all got back a “generic” letter signed by Lord Kamal. My MP, being on the “Front Bench” had his letter signed by the then Minister of Health, Sajid Javid 😱 To give my MP his due, he said he would take up the complaint on my behalf. When I’m feeling up to it, I will go and see him in one of his surgeries.Lord Hunt has brought up the subject of Liothyronine in the House of Lords on many occasions but Lord Kamal is constantly misquoting the NICE guidelines stating “Liothyronine is not routinely prescribed” very cleverly leaving off “in Primary Care”. I’ll see if I can fish out my letter and post it on the forum.

helvella profile image
helvellaAdministratorThyroid UK in reply to Gingernut44

Keep going!

My MP has been quite decent about replying to the things I have raised. (Not all related to thyroid!)

BadHare profile image
BadHare in reply to Gingernut44

Whoops, I don’t have a € sign in my laptop. My last trip made it £14 a pack to get which is still a lot cheaper than here.

shaws profile image
shawsAdministrator

A rip-off for the NHS before the relief of symptoms that many hypo patients suffer from every hour day and night.

It is known that T3 could be accessed by the NHS elsewhere at a much cheaper cost. Why don't they???

BadHare profile image
BadHare in reply to shaws

Fingers in the pies of big pharma?

Gingernut44 profile image
Gingernut44 in reply to BadHare

I actually think they don’t want to upset big Pharma as I believe they fund a lot of medical schools.

shaws profile image
shawsAdministrator in reply to Gingernut44

Not a perfect excuse by denying hypo patients a 'trial of T3 or T4/T3'. I have read of a person who had hypo and she took her own life as she could no longer cope with the trials/tribulations of hypo. That's awful.

BadHare profile image
BadHare in reply to Gingernut44

From what we see on here every day they're hardly teaching medics the right things!

shaws profile image
shawsAdministrator in reply to BadHare

You're right. One of my GPs (near retirement age) stated to me:

"Your TSH is too low: your T3 too high and your T4 too low".

Me: Yes doctor, my TSH is low is because I take T3 only so T3 will be high. T4 is low because I take none!

GP: but T3 converts to T4! Me: "No doctor it is the other way around, T4 is expected to convert to T3".

Before blood tests were introduced, we were diagnosed upon clinical symptoms alone and then given a trial of NDTs (the very first thyroid hormone replacement made from animals' thyroid glands from 1892) and lives were saved from then on.

Unfortunately they were removed by the BTA 'experts' despite its proven use for many patients who recovered their health.

BadHare profile image
BadHare in reply to shaws

You must have been torn between crying from despair & laughing at him.My previous GP at least acknowledged I know more than he does, but I think his ears might have been bleeding by then & he wanted me to go away.

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