Hyperthyroidism?: Hi all. I've been having issues... - Thyroid UK

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Hyperthyroidism?

katymcg profile image
14 Replies

Hi all.

I've been having issues with my thyroid for a few years. I get symptoms on and off. last few months have been bad. Sweating at night, can't keep still, shaking, head twitch, weight loss, anxiety. My TSH is 0.4 (normal 1-5) t3 3.4 (normal 0.9-2.8) , T4 14.9 (normal 5-12). Doctor says all normal, is that right? thank you 😊

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katymcg
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14 Replies
SlowDragon profile image
SlowDragonAdministrator

Please add ranges on your test results

Was test done early morning, ideally before 9am

What medications are you currently taking

When were vitamin D, folate, ferritin and B12 last tested

Are you currently taking any vitamin supplements

Sweating at night linked to low B12

Request GP test vitamin levels

Also thyroid antibodies for autoimmune hypothyroid thyroid disease - also called Hashimoto’s - TPO and TG thyroid antibodies

And TSI or Trab antibodies for Graves’ disease- autoimmune hyperthyroid

Your results look like early stages Hashimoto’s

Hashimoto’s frequently starts with transient hyperthyroid results and symptoms before becoming increasingly hypothyroid. Ft4 and Ft3 look very low …please add ranges on these results

katymcg profile image
katymcg in reply to SlowDragon

thank you for your reply!I've put the normal ranges as I can find online. but doctors just gave me those levels.

I haven't had a b12 tested, but I do take a vitamin B supplement. I take vit D and folate.

the test was 2pm, thanks so much I'll ask them for that x

SlowDragon profile image
SlowDragonAdministrator in reply to katymcg

You need the ranges specific to your lab test ….they can vary significantly from lab to lab

You are legally entitled to printed copies of your blood test results and ranges.

The best way to get access to current and historic blood test results is to register for online access to your medical record and blood test results

UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

Link re access

healthunlocked.com/thyroidu...

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.

Important to see exactly what has been tested and equally important what hasn’t been tested yet

SlowDragon profile image
SlowDragonAdministrator in reply to katymcg

TSH is at its lowest in the day after lunch

Suggest you get full thyroid and vitamin testing done early morning, ideally before 9am

Are you currently taking any medications

Important to stop taking any supplements that contain biotin a week before all blood tests…..that includes most vitamin B complex

Biotin can falsely affect test results

PurpleNails profile image
PurpleNailsAdministrator

Please add ranges for results.

My most ranges TSH is lower side but so are FT4 & FT3. If you were hyper the TSH drops very low ie 0.01 and thyroid levers go above range.

How do these results compare to previous results? Some conditions cause fluctuating levels.

Are diagnosed with hyper or hypo. Do you take replacement hormone?

katymcg profile image
katymcg in reply to PurpleNails

thanks so much. I've added ranges as I can find them.I've been tested over the last 2 years. my tsh has been 0.3, but then went back to normal and now dropped again. I don't know what my t3 and t4 where before. I've never been medicated for it. But the symptoms have been worse this year

PurpleNails profile image
PurpleNailsAdministrator in reply to katymcg

I’ve never seen ranges like this. Are they from digital or a printout? Is the test for “free” thyroxine and triiodothyronine or total & is the measurement pmol/L or different.

Going by the ranges your levels are abnormally high. Doctors do not usually leave hyper untreated. Above range levels needs to be investigated. Ask them to explain why your high levels are ok.

katymcg profile image
katymcg in reply to PurpleNails

thank you, I've asked for them to be emailed and explained. but I waited ab hour on hold just to get them over the phone.

PurpleNails profile image
PurpleNailsAdministrator in reply to katymcg

Hope you get some answers soon.

greygoose profile image
greygoose

Well, according to those results, all is not 'normal', no. But, what is 'normal'? Blood tests are only a rough guide. And GPs are notorious for 'interpreting' results to suit themselves. However, I would not have thought you were exactly hyper with those results. Looks more like a Hashi's 'hyper' swing. Have you had any antibodies tested?

I get symptoms on and off. last few months have been bad. Sweating at night, can't keep still, shaking, head twitch, weight loss, anxiety.

The trouble with symptoms of thyroid problems is that they're non-specific. And so many of them can be either hypo or hyper. Sweating at night, weight-loss and anxiety can be either hypo or hyper. But, head twitch sounds neurological, so I would want my B12 tested. When I had that, my B12 was too low. Raised the B12 level and the head twitch went away. So, you really need further testing: antibodies and nutrientst, to get the full picture. :)

katymcg profile image
katymcg in reply to greygoose

thanks a lot. its so frustrating with the gp and getting no where. I'm having ivf as well and it's affecting that. I'll get the tests done privately

greygoose profile image
greygoose in reply to katymcg

Yes, I think that's the best thing to do.

SlowDragon profile image
SlowDragonAdministrator

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis) or with Graves’ disease

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

katymcg profile image
katymcg

thank you so much for this. I've Been struggling with the NHS for years and getting no where. I'll get those tests booked. x

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