Advice re low thyroid levels and symptoms - Thyroid UK

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Advice re low thyroid levels and symptoms

Christy52 profile image
6 Replies

Hello

Some advice please as my levels have been consistently low but a Consultant actually tolf me they were at optimum range when actually free t4 and free t3 were the bottom end of normal, now the t3 is out of range and my symtoms are worsening. Another said go private and finally got one that increased the levothyroxine by 25 every other day. So now take 150/175 alternate and 20 of liothyronine every day.

Have continual pain in arms and feet and struggle to stand sometimes after a period in bed, falling asleep come evening as well as usual hair loss puffy hands, general sluggishness, weight gain. Also have muffled hearing in one ear and can't exercise to the level I previously did.

My levels currently are ferritin 6, range 12-232 struggle to take the ferrous sulphate

vit d 66, taking 300 a day of this.

TSH .68, range 0.2-4.2

Free t3 2.8, range 3.1-6.8

Free t4, range 12.8, 12-232

Also take HRT at a low dose of 25,oestrogen and progesterone for 9 days a month. I dont eat gluten, due to stomach pain and cramping and bloating when I do.

I know these are not optimum and I know I feel well when the t4 and t3 are higher but getting Doctors to understand seems impossible. Awaiting a call in the next week to discuss.

Thank you

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Christy52
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6 Replies
SeasideSusie profile image
SeasideSusieRemembering

Christy52

Also take HRT at a low dose of 25,oestrogen and progesterone for 9 days a month.

Do you take this as far away as possible from your thyroid meds? It's often the case when taking HRT that thyroid meds need to be increased.

Obviously your FT4 and FT3 levels are too low, so either something is affecting absorption or you need to increase both. One would expect to see higher levels with the doses you are taking.

ferritin 6, range 12-232 struggle to take the ferrous sulphate

Did your GP do an iron panel to confirm iron deficiency and a full blood count to see if you have anaemia. How much ferrous sulphate do you take? Do you take it 4 hours away from your thyroid meds?

If ferrous sulphate doesn't suit discuss with your GP to find an alternative.

vit d 66, taking 300 a day of this

Presumably this is 66nmol/L.

Can you clarify exactly how much D3 you take? 300mcg (which would be 12,000iu)or 300iu (which is less than a child's dose) or do you mean 3,000iu?

SlowDragon profile image
SlowDragonAdministrator

Essential to also test B12 and folate too

Obviously ferritin is terrible and deficient

Are you vegetarian or vegan

Do you have heavy periods

cks.nice.org.uk/topics/anae...

In all people, a serum ferritin level of less than 30 micrograms/L confirms the diagnosis of iron deficiency

Look at increasing iron rich foods in diet

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Links about iron and ferritin

irondisorders.org/too-littl...

davidg170.sg-host.com/wp-co...

Great in-depth article on low ferritin

oatext.com/iron-deficiency-...

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

Different iron supplements to try

healthunlocked.com/thyroidu...

Thyroid disease is as much about optimising vitamins as thyroid hormones

healthunlocked.com/thyroidu...

restartmed.com/hypothyroidi...

Post discussing just how long it can take to raise low ferritin

healthunlocked.com/thyroidu...

Never supplement iron without doing full iron panel test for anaemia first

Medichecks iron panel test

medichecks.com/products/iro...

Low Iron and thyroid link

healthunlocked.com/thyroidu...

Posts discussing why important to do full iron panel test

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Chicken livers if iron is good, but ferritin low

healthunlocked.com/thyroidu...

SlowDragon profile image
SlowDragonAdministrator

TSH .68, range 0.2-4.2

Free t3 2.8, range 3.1-6.8

Free t4, range 12.8, 12-23

Was test done early morning and last dose levothyroxine 24 hours before test

Day before test did you split T3 dose into 3 smaller doses spread through the day and last third of daily dose 8-12 hours before test

Which brand of levothyroxine are you currently taking

Do you always get same brand levothyroxine at each prescription

Which brand of T3

Have you considered you might be lactose intolerant?

SlowDragon profile image
SlowDragonAdministrator

Exactly what vitamin supplements are you currently taking

If gluten free are you taking any magnesium supplements

Any selenium, zinc or vitamin B complex

Remember to stop taking any supplements that contain biotin a week before all blood tests as biotin can falsely affect test results

Christy52 profile image
Christy52 in reply to SlowDragon

The vitamins I take are the vitamin D and multiple B vitamins at fairly high dose

SlowDragon profile image
SlowDragonAdministrator in reply to Christy52

Which brand vitamin B complex

Did you stop this a week before blood test

Can take a separate folate and separate B12 during that week

How much vitamin D?

Obviously need to increase the dose to improve vitamin D levels to at least around 80nmol and around 100nmol maybe better

Test twice yearly via NHS private testing service when supplementing

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7. One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with hashimoto’s we frequently need higher dose than average

Vitamin D and thyroid disease

grassrootshealth.net/blog/t...

Vitamin D may prevent Autoimmune disease

newscientist.com/article/23...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

article by Dr Malcolm Kendrick on magnesium

drmalcolmkendrick.org/categ...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

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