Tsh 4.9: Hi all not sure where to put this one. I... - Thyroid UK

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Tsh 4.9

Darcey14 profile image
18 Replies

Hi all not sure where to put this one. I've just got the results back from my last bloods. FBC all normal t4 fine t3 fine but my tsh was 4.9. The nurse said she would put me in for a repeat in 3 months including the antibody one as well. She said it can change daily and it's nothing to worry about. I have b12 injections every 10 weeks and I've managed to get my ferritin up to 83. Anyone got any tips on if I can bring it down naturally?

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Darcey14
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18 Replies
greygoose profile image
greygoose

Bring what down? Your TSH? Why would you want to?

t4 fine t3 fine

Whose opinion was that? Do you have the actual numbers: results and ranges? Saying they were 'fine' means nothing. :)

I would suggest you need to get your nutrients tested: vit D, vit B12, folate and ferritin. All these things are inter-connected.

SlowDragon profile image
SlowDragonAdministrator

Was test done early morning

TSH is highest early morning

Do you have Pernicious Anemia or “just” unexplained low B12

Pernicious Anaemia is autoimmune and having one autoimmune disease makes others more likely

Low vitamin levels are extremely common with autoimmune thyroid disease

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

In U.K. medics never call it Hashimoto’s, just autoimmune thyroid disease (and they usually ignore the autoimmune aspect)

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Darcey14 profile image
Darcey14

Thanks for the replies. Apparantley my t3 and t3 were fine but my tsh was 4.9. She said to retest in 3 months and include the one for antibodies. I have a b12 deficiency, was tested for IFAB and that was negative but my doctor seems to think it could still be PA. I dont eat meat but always have supplemented and have fortified foods. My b12 kept dropping even with all the extra help. I was very I'll and my level was 94. So i was started on the jabs. My ferritin was 27 in june and is now 81. And my vitamen d was 40 and is now 52. My doctors seems happy with these. I did say I would start with a good multivitamin again to keep me afloat but also take 2 ferrograd a week to help keep ferritin up. My folate she said was fine. I'll get a print out so I can see myself. But I went for bloods again as my hair is shedding more than usual. I was hoping that if I could keep my ferritin about 80 or 90 it might stop if that's what is causing it. But with the tsh being slightly raised it could be that. She said it should be 4.5 or less.

greygoose profile image
greygoose in reply to Darcey14

It should actually be 1 or less - shows how much she knows about thyroid, she's just looking a the so-called 'normal' range, which isn't 'normal' at all.

There's no such thing as a 'good' multi-vit. They're all bad for the simple reason that all those different supplements should not be taken at the same time, because they cancel each other out. There are many other reasons, too, but that is the main reason. You might just as well throw your money straight down the drain as take a multi-vit.

By the way, on this forum, if you don't click on the blue 'Reply' button, under people's comments, no-one will know that you've replied. I just saw this by accident. :)

SlowDragon profile image
SlowDragonAdministrator in reply to Darcey14

Apparently my t3 and t3 were fine but my tsh was 4.9.

By Fine they simply mean “within range”

Come back with new post once you get results

Vitamin D is still too low at 52nmol

How much vitamin D are you currently taking

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But improving to around 80nmol or 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via NHS private testing service when supplementing

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7. One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need

Vitamin D and thyroid disease

grassrootshealth.net/blog/t...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

shaws profile image
shawsAdministrator in reply to Darcey14

Pernicious Anaemia is another autoimmune disease. You should have a monthly injection of B12 as stomach cannot absorb B12 if you have P.A.

McPammy profile image
McPammy

I think you need to find out your thyroid blood results and post them on here. It could be that your T4 and T3 are in range but the NHS ranges are set too wide. A TSH above 2.5 is a strong indication of hypothyroidism. I was informed this by my private only Endocrinologist. I was in a bad way when the NHS was telling me my T4 and T3 was in range when my TSH was high. The outcome I eventually found out privately is I’m a very poor converter of T4 to the most important hormone T3.

So, call your GP surgery get your blood results printed off if you don’t have patient access. We can all have access to our results. Then post those results with the ranges on here and see what the responses are from members.

Darcey14 profile image
Darcey14 in reply to McPammy

Thanks for replies. I stopped taking 1000ug of d3 in November. The same time I stopped ferrograd c. This was due to having bloods done and no one told me to stop it or keep going so I stopped just incase. I was also taking a zinc and magnesium supplement. I dont know if i should carry on with just vit d and zinc and magnesium or to add anything else or to not take it. I cant get a straight answer from anywhere online or from docs. Some say tsh 4.9 is just slightly raised some say vit d is fine at 52 and some say that zinc is important for hypo and others say not to touch it. It's got my head battered. 😪😥

McPammy profile image
McPammy in reply to Darcey14

It’s your thyroid results with ranges that would be interesting to see. A TSH above 2.5 is hypothyroidism I’ve been reliably informed.

Darcey14 profile image
Darcey14 in reply to McPammy

I had a test done many years ago probably about 10 years ago. And he said it was raised and wanted to start me on treatment straight away but the labs and other dr said no. I have no idea what that level was. But it was 4.2 last june. How on earth are the guidelines so different, it baffles me. I will let you know as soon as I find out. Is there any way I can help myself?

Animal-lover2 profile image
Animal-lover2 in reply to Darcey14

I would say no but you could try reading Isabella Wentz. I tried homeopathy and it kept me going but not thriving. I have Hashis and taking all the info gleaned on this site I started (with the help of a lovely steam-rolled GP - but I'm in South Africa so no help to you) taking charge of my own health. I had all the vitamin checks done and supplement accordingly. Read the articles on this site and follow the advice given and find a doctor you can work with. It's your best chance of living a vigorous life. I feel like I have my life back and wish I'd done this 10 years ago. Good luck 🌈

Darcey14 profile image
Darcey14 in reply to Animal-lover2

Do you take meds for it now? My diet hasnt been the best recently so going to look at cleaning that up with more fresh and home made food. I want to take my vitamins but dont want to make the number worse for my next blood test.

Animal-lover2 profile image
Animal-lover2 in reply to Darcey14

Yes I am on T4 100mcg and T3 20mcg. I am going for another blood test tomorrow to see what the latest increase I implemented is doing. I feel fine so think I have found a good dose for me. I resisted taking meds for a long time and then I came across this forum and realised I needed to do something. I regret the years I spent functioning at half capacity.

Good idea to hang on with the supplements until you have had them tested along with T4 / T3 and antibodies. Seems the NHS is not great with testing everything and you might have to get private testing done. Folk on this site will tell you the cheapest option if you post a question.

Keep reading the postings. I read every single post for 18 months and still read lots but not with the same addiction 😜

Darcey14 profile image
Darcey14 in reply to Animal-lover2

I can get a second opinion through private healthcare at work if need be. I was looking at getting an omega 3 seven seas supplement. Just not sure which one would be ok. 3 months is a long to to not take supplements when k was just getting I to them. I dont eat meat or fish so think i could do with the omega.

Animal-lover2 profile image
Animal-lover2 in reply to Darcey14

Oh yes 3 months too long not to take supplements. I reread your original post and see you had just had a blood test. I take an omega but we have different brands in SA. The admins on the site always say to take a multi B and you'll have to search to see what brands they recommend. They also say to get folate , ferritin, vit D and B12 tested. You have B12 infections so I guess you are fine there. They always say that getting those right aids the thyroid.

Good luck with it all.

Darcey14 profile image
Darcey14

Yeah I have b12 jabs. I've just stopped taking ferritin as my levels have come up from 27 to 81. And I'm still taking vit d3 as I have gone from 40 to 52. Docs said folate was ok but will get print out and have a look. Thanks for your help

SlowDragon profile image
SlowDragonAdministrator in reply to Darcey14

Did you get your thyroid results yet

ALWAYS test thyroid early as possible in morning (9am latest)

Come back with new post once you get results

Important to maintain OPTIMAL vitamin levels too, otherwise TSH tens to reduce

Aiming for vitamin D at least around 80nmol and around 100nmol maybe better

Darcey14 profile image
Darcey14

Hi thanks for reply. Yes it was done at 8.40 in the morning and I hadnt eaten since 8pm the night before (it wasnt suggested to fast). I hadnt taken any supplements since I took 4 iron tablets 2 weeks prior. I'm taking vit d one night vit k the next 1 iron tablet another and an omega 3 with a and d the next also going to include a b vitamen in the mornings

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