Hello and thank you for reading my post (it will be long). I have Hashimoto’s. Been on Levo plus T3 since 2018. Still not great but better than on Levo only.
Was taking 75mcg levo plus 10mcg (5,5) T3. My best levels were: TSH 0.03 (0.55-4.72). FT4 15.7 (10-18.7) and FT3 5.8 (3.5-6.5) March 2019. We then moved home (nearer my family) and my levels dropped. Initially I was extremely fatigued/brain fog etc and blamed the move. But during 2020 my migraines got more frequent and more severe and my home blood tests showed my FT4 had dropped low. Spoke to a random GP on phone (sept 2020) he checked nothing but prescribed propranolol. They are still in my drawer. I upped my levo a tiny bit and the debilitating migraines started to calm. I wrote to my proper GP who agreed I should up my Levo to 100 x 5 days and 75 x 2. Then did bloods in March 2020: TSH 0.02 (.27-4.2). FT4 14.8 (11.2-20.2). FT3 5.5 (3.2-6.8)
She also suggested I see my endo (which is great when she’s not paying 🤨).
Saw private endo, he agreed on adding 5mcg of T3 (I still struggled with doing much). I actually have only added 2.5mcg (5, 2.5, 5). NHS bloods taken 13/12/21: TSH <0.01 (.27-4.2). FT4 14.4 (11.2-20.2). FT3 5.9 (3.2-6.8)
Endo emailed today…………. Thanks for sending your results. Your TSH is undetectable and this is a concern because of later effects as I say on the heart and other things. I am afraid therefore that this means that you are getting too much thyroid hormone and I'm afraid it's not correct to say that there is plenty of room for increase. I agree that the TSH gets lowered with T3 but if the TSH is undetectable that is not good for you long-term.
I think that we should suggest decreasing your thyroxine but not your T3. I would decrease your thyroxine to 0.075 of a milligram five days a week and 0.1 two days a week.
If there are any queries please let us know and it would be wise to get your thyroid function tests measured in six weeks or so. (Pleasantries etc, blah blah blah)
I’m nervous about reducing my levo in case it causes my migraines to increase. Although if I add the small amount of T3 first, maybe it will be ok.
So, if you are still awake 🙏🏻 any advice would be greatly received. Should I: 1. Reduce my Levo? (And add the extra 2.5mcg of T3 that I held off?). 2. Carry on as I am and ignore endo completely? 3. Try and fudge my NHS blood results by maybe only taking half my meds for 48hrs before test? (I always have done in morning, fasting, with just water). 4. Find a new endo or try and get Thybon Henning without prescription (bit concerned about this option as don’t want to change brands)
I’m so frustrated that my TSH is so low when for some people it doesn’t seem to drop down as much. Honestly, they say don’t get over stressed as it’s bad for your Hashimoto’s, but battling for the correct meds is really stressful. I take 2 or 3 home blood tests throughout the year to keep an eye on everything. (VitD, folate, ferritin and B12 all good as I supplement as per recommendations on here). Dairy and soy free. Low gluten (found it difficult to be GF, but will try again). Even grow my own fruit and veg. No alcohol (intolerant).
Thank you again for your time ☺️