stopping Carbimazole

[Ex111]

Just wondering how long it takes for FT4/3 and tsh levels to change after stopping carbimazole .

I stopped Monday after 24 months of various doses of carbamazole. Was on 5mg last 3 months .

Recent bloods

TSH 5 ( 0. 27 to 4.2)

FT4 11.2 (11.2 to 20.2)

FT3 4.1 ( 3.2 to 6.8)

Thankyou .

[SlowDragon Administrator]

6-8 weeks for TSH to change

Probably 2-4 weeks for Ft4 and Ft3 to start to increase

[Tythrop]

I'm no medic but have personal experience of Carbimizol( which is. good stuff) ,and I would say that you need to watch out in later years for downregulation of tsh . The effector this is that ,even if you become hypo in later years with low t4 numbers , the tsh will not show it up by registering in high range numbers .

[pennyannie]

Hello again :

I seem to remember you are dealing with both Graves and Hashimoto's which are both auto immune diseases and have Graves Ophthalmopathy running alongside.

It must be a difficult time for you and would just ask were your antibodies rerun before you came off the anti thyroid medication ?

Both these AI disease can wax and wane throughout one's life and the most recent research is suggesting the longer one stays on the AT medication and better the outcome for the patient :-

pubmed.ncbi.nlm.nih.gov/338...

[Ex111 in reply to pennyannie]

Hi ya . Thanks for your reply .

No unfortunately they didn’t test TSI antibodies. I’m actually very pleased to stop carbimazole and suspect I’m heading hypo . My TSH has been moving up each bloods and FT4 staying at 11. All my hypo symptoms are back. Where I’m at is to retest in two months and be discharged back to my GP. A Wait and see . I’m hoping being on carb for a little over two years is enough .

[pennyannie in reply to Ex111]

OK then - let us hope so:

[chopinlover]

The first time I stopped Carbimazole, my Thyroid was normal for about a year. The second time it was normal going up two years.