Has anyone tried Tiromel?: Has anyone tried the... - Thyroid UK

Thyroid UK

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Has anyone tried Tiromel?

Rowing2 profile image
20 Replies

Has anyone tried the Turkish t3 brand Tiromel and if so is the dosage conversion the same as U.K. brands? Thank you.

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Rowing2
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shaws profile image
shawsAdministrator

Tiromel has been popular and 25mcg of T3 is equal (approx) to 100 mcg of levothyroxine as is the UK's.

I hope you have a gradual improvement to feel well again and finally symptom-free.

I have taken T3 for a while now and followed one of Thyroiduk's Advisers - a Dr John Lowe but he died due to an accident.

Dr Lowe was an expert in the use of T3 and he took it himself (in the middle of the night) so that nothing interfered with its uptake.

I will give you some a link which may be helpful, if you wish to read.

google.com/search?client=fi...

Rowing2 profile image
Rowing2 in reply to shaws

Hi there. I thought is was equivalent to 4x levo, but I wanted to make sure as I’d heard Tiromel was weaker. Thank you so much for the information it’s really helpful and I’m really grateful for your time.

shaws profile image
shawsAdministrator in reply to Rowing2

I am not surprised you thought it was equal to T4 levo. I think many members would think the same initially.

Levo (T4) is the inactive hormone and Liothyronine (T3) the Active hormone.

T4 (levothyroxine) is an inactive hormone and has to convert to T3.

Some of us cannot do so effectively and that's why we have to ask questions as it is seems like a quagmire when we first try to fathom out why we're still symptomatic. It is a learning curve that we didn't expect. If it helps us to recover our health, then its worth listening/learning to those who've gone though turmoils at times as they remained undiagnosed or undermedicated.

If four hypo patients took 100mcg of T4, I think they might all have slightly different viewspoints of how it affected them as individuals.

I think also that we, patients, wont be exactly identical as we may be on various doses.

Rowing2 profile image
Rowing2 in reply to shaws

Can I ask, did you gradually reduce your levothyroxine, or not.

shaws profile image
shawsAdministrator in reply to Rowing2

No, I switched from on to another (in approx equal dose)

I shall also give you a link and within it is links to Dr Lowe (now archived) but his information is good and it restored my health. and he had many, many admirers worldwide as they recovered their health and he wasn't afraid of the 'authorities' as he had resigned his Licence so that he couldn't be hounded by them.

healthunlocked.com/thyroidu...

Rowing2 profile image
Rowing2 in reply to shaws

Brilliant thank you so much. Is your gp on board.

shaws profile image
shawsAdministrator in reply to Rowing2

Yes, yes, because he is a new one in the surgery.

The owner of the surgery I would never request to consult because in the past if I wrote to him he never, ever responded and he wouldn't refer me to a specialist - eventually he did and that's when I was newly diagnosed with a Polyglandular Autoimmune Disease No.3. as I have more than one.

Rowing2 profile image
Rowing2 in reply to shaws

Mine is onboard too with me trialing this option, as he sees how I’ve deteriorated so rapidly. I’ve gone from being incredibly fit and a strong rower to putting in nearly 3 stones and in constant pain, my whole body hurts . He told me to introduce it and we will have regular blood tests. So I’m now taking my normal 100mcg levo and have gradually introduced t3 twice a day so it totals 12.5mcg. I’m hoping after bloods to decrease levo and scale up on t3 and I’ll monitor blood pressure and heart rate. I’m so grateful for your help, thank you.

shaws profile image
shawsAdministrator in reply to Rowing2

My health was only restored with T3 alone. I trialled quite a number of options but none worked to remove symptoms..

Rowing2 profile image
Rowing2 in reply to shaws

Gosh I truly hope mine is too. Today my poorly hand had doubled in size and is all bruised…..just adds to all the rest ☹️🥴. Thanks again, take care.

shaws profile image
shawsAdministrator in reply to Rowing2

Quite a number of people complain of 'unexplained' weight gain but don't realise it can be due to levo alone if not on an optimum dose.

One of TUK's advisers Dr John Lowe was an expert in the use of T3 but died due to an fall that cause a brain bleed even though he was bed-bound he worked until the end.

Rowing2 profile image
Rowing2 in reply to shaws

So sad he died when he helped so many.

Rowing2 profile image
Rowing2 in reply to shaws

I have never felt well on levo. I just feel ill all the time. My only saving grace is that being self employed I have to get up every day and work, but I lack energy. I have however found since introducing t3 even in the smaller quantities I take that I feel a little better.

Rowing2 profile image
Rowing2 in reply to shaws

Could I ask how you take your t3. Do you split it during the day? Do you also take other supplements?

shaws profile image
shawsAdministrator in reply to Rowing2

I take my full daily dose when I awake a.m. with one glass of water and wait an hour before I eat.

I follow the method used by Dr John Lowe who was a researcher/scientist and an expert about T3 and he took his in the middle of the night when he awoke to go to tolet. He was also an Adviser to Thyroiduk.

.

He would never, ever, prescribe levothyroxine as he stated it was through 'payments' to doctors that it became No.1 prescription in USA..

He was also able to do his work effectively and being a researcher his brain would have had to be efficient to do so.

I have - this a.m.- taken T3 with one glass of water and an hour soon passes and have now finished breakfast. I have no symptoms and my body feels stable and normal and energetic.

Dr Lowe did not suggest splitting dose. He stated that one daily dose saturates all of our millions of T3 receptor cells and they then send out 'waves' throughout the day. I have done this experiment. Took my dose, took none on day 2 or day 3 and - for me - I still felt well. (I've only trialled this once).

Sometimes if one finds that the T3 isn't doing it could be due to some 'change' in the tablet.

He would never prescribe levothyroxine and his other patients were prescribed NDTs. Natural Dessicated Thyroid Hormones. NDTs saved lives from 1892 and it contains all of the hormones a healthy gland would do. There were no blood tests in 1892 but doctors were skilled in diagnosing those who had problems with their thyroid gland.

I'm not sure if NDTs have been withdrawn or reinstated in the UK. If so it is an awful decision as it has all the hormones within it.

stopthethyroidmadness.com/h...

Rowing2 profile image
Rowing2 in reply to shaws

From tomorrow I will take it in one dose. I have been reading some of Dr. Lowe’s methods and it’s fascinating. Thank you so much for all of your help, I’m so very grateful.

SlowDragon profile image
SlowDragonAdministrator in reply to Rowing2

Just because some members find it better to take T3 as single dose…..doesn’t necessarily mean it will suit you

Suggest you wait until tested levels after 6-8 weeks before considering changing how you take your T3

How you done Dio2 gene test?

Rowing2 profile image
Rowing2 in reply to SlowDragon

Hi there slowdragon, thank you for your input. I read an awful lot about my condition and I do realise and understand that this is very much an individual disease. I need to find my own way and that’s what I’m trying to do, but the information on this forum and each persons input is invaluable. I will like you say wait until my next bloods and then change as I’ll have something to refer back to each time I reset . It’s all trial and error and I’m prepared to try any variation until I feel even a little bit better.

humanbean profile image
humanbean

There is definitely disagreement in terms of the equivalence between T4 and T3.

Personally, I think T3 is only three times as potent as T4. I've taken quite a few different combinations.

Levo only

NDT only

T3 only

Levo + T3

Using an equivalence of "T3 is three times as potent as T4" has worked for me when I've been switching to and from anything containing T3 or NDT.

Rowing2 profile image
Rowing2 in reply to humanbean

Thank you so much for that. As I get each bloods I’ll change the dosage till I get to where I feel a little better. Thank you, I’ll take into account it may only be 3x

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