Dr John Lowe protocol: Does anyone know where I... - Thyroid UK

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Dr John Lowe protocol

acunatang
acunatang

Does anyone know where I can get access to Dr Lowe's protocol without buying his book, I just can't afford to buy the book, I have tried Thyroid UK library and it is not available on there? Can anyone help please?

35 Replies
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acunatang
acunatang in reply to Hidden

That's brilliant, thanks very much! Have tried internet but not found anything although haven't used Google scholar before! Thanks :)

Marz
Marz in reply to acunatang

You could PM shaws - as she has great links to the works of Dr Lowe. Alternatively click onto her name in the list of members and scroll through her posts for the posts and relevant links.

Her posts are very helpful too.... :-)

acunatang
acunatang in reply to Marz

Thank you yes I have been speaking to her, she knows a lot about Dr Lowe! :)

shaws
shawsAdministrator in reply to acunatang

Unfortunately for us Dr Lowe died two years ago and he was also an Adviser to Thyroiduk.org.

Due to dying without a Will there has been an issue of some sort and, as far as I know, things haven't been settled yet

His Fibromyalgia Book costs about £800 on Amazon. All we have is an archived website and thankfully it has loads of info. Some of the links within may not work but the rest of the info is invaluable. He also produced Thyro-Gold a non-prescription thyroid hormone due to people not being able to get prescriptions. His wife Tammy runs this.

web.archive.org/web/2010103...

web.archive.org/web/2010103...

web.archive.org/web/2010032...

web.archive.org/web/2010103...

acunatang
acunatang in reply to shaws

Thank you I will look at all this! I have been following the Paul Robinson book and using divided doses but I felt so much worse so today I decided to follow Dr Lowe's protocol of single dose and I already am seeing benefits immediately! i have had the best day for a long time! Thanks for this info! :)

shaws
shawsAdministrator in reply to acunatang

I do hope it does. Just for the record - another link re the history of Dr L.

web.archive.org/web/2010103...

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acunatang
acunatang in reply to Hidden

Hi Epictetus, can I ask you how high did you go on the T3 dosage? I am now at 75mcg per day in one dose and I am still ill, The pain is slightly better, I think, or it could be the ibuprofen I just can't live without? But many of the other symptoms are the same.

I was on Armour for a long time which helped a lot of symptoms which were really bad at the start, like the severe lethargy, but I could never lose weight, always felt a lot worse in winter and my bowel habits were terrible, I was diagnosed with Crohns' disease and IBS, I was very interested in natural medicine and controlled a lot of my symptoms this way for a long time but when the terrible pain of Fibro kicked in last year, I didn't realise it had anything to do with my Thyroid, but I really didn't think it was RA, I saw the specialist who also didn't think it was RA at the time because there was no evidence, the swellings had gone down, however he told me to come back if there was a flare up, well during last year, it got a lot better with acupuncture, dietary changes and supplements. The flare up came in January, the pain was horrendous and just wouldn't stop, so I went back to the doctor who did more tests and sent me to an endocrinologist, in the mean time I did loads of research into what was going on in my body and discovered Dr John Lowe and his research which also led me to this forum. Between everything I have learned a lot about my condition and know that I have problem with T4. I have tried Levo before and was worse and I never really thrived on Armour but it was better than Levo, I could never increase the dose on either Levo or Armour because it made me feel worse this led me to the conclusion that my problem was with T4 so I bought T3 against the endo's advice and am slowly increasing the dosage.

As mentioned I did buy the Paul Robinson book as I thought it might be safer to use spaced out dosages, but wasn't really getting anywhere by the time I was on 75mcg per day I took, 1.5 in morning at 7am half a tab at 11am then 1 tab at 4pm. On the Saturday I decided after reading more research on Dr Lowe's method to follow this instead and I took 2 tabs in the morning. This was a bit of an epiphany, within two hours I felt almost normal, my head was clear, the pain was much less to the extent that I could wash my own hair and dry it with the hairdryer and use the straighteners, I haven't done this for a long time as it was too painful, anyway I realised that my body was thinking I had increased the dosage as some of the T3 was still in me from yesterday but because I had decided to increase single doses I didn't take any more that day, which was probably a mistake because I had a lot of pain that night, the following day I was working so I took 2.5 tabs in morning, but they didn't have same effect so I had to take another one at 12 noon, but still I felt a lot of pain, this I put down to my body being messed about because I changed the method, anyway for the last two days I have been taking 3 tabs at 7 am and I am going to increase to 3.5 next week, I will go up to 4 tabs if I have to and hope this makes a difference! If this doesn't help I might have to go back to the spaced out dosages but I really need it to help soon, my knees elbows and finger joints are swollen a lot of the time and my muscles are in spasm a lot and I fear this will cause irreversible damage if it remains like this for too long!

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acunatang
acunatang in reply to Hidden

You are right of course, and I wish you all the best with your progress through this disease. I think you might benefit from the Armour if you need T4 and T3! Anyway keep me posted on your progress as I will too! My dose is due to be increased tomorrow, so excited and hoping for more pain relief! :)

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acunatang
acunatang in reply to Hidden

Sorry I meant you are right about having patience and taking things slowly,unfortunately I have not always done that. I didn't want to miss any work but yesterday and today I have had to cancel my clinics, I am in too much pain, the T3 single dose maybe not the answer I increased yesterday by half tab 12.5 mcg and felt really awful, my pulse was 107 and the pains felt worse, maybe I need to go back to spaced out doses, which I will try over the next few days while I'm off!

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acunatang
acunatang in reply to Hidden

Thanks for suggestions, I am trying the Paul Robinson approach again but feeling very disillusioned. My pain seems to be getting worse, you say try not to do anything, I physically can't do anything ,it is very difficult getting in and out of the bath now, can't do my hair, my hands are too painful, I can't clean up, have to ask my duaghter to do stuff all the time. I feel I am at the end of the line, I have tried T4 it always made me worse I have been on Armour which helped a little but never really sorted the problem!

Can't eat chocolate, makes the pain worse! :(

machineman
machineman in reply to acunatang

research these 2 they may help one is scisandra livestrong.com/article/1851...

and the other Is DMG or TMG otherwise known as Vitamin B15 there's lots of research on these on the net.

you need to add Vitamins A and E with them and you need vitamin B6 to remove the homocysteine out of the body after the B15 has done its thing.

also the best pain reliever is copper mixed with pure salicylate

acunatang
acunatang in reply to machineman

Thanks for the links, I have done loads of research since I posted this and am

Now on the road to recovery! Thanks amyway Angela x

Ziburu
Ziburu in reply to acunatang

Reading your old post, how are you now? Hopefully your improvement continued.

marmaris
marmaris in reply to shaws

Thank you for sharing all that information Shaws. I too believe greatly in the work of Dr Lowe. Imagine having a doctor like him. An answer to all our dreams......

shaws
shawsAdministrator in reply to marmaris

Yes. He put the patients first and concentrated on trying to improve their health despite the regulations.

His wife is lost without him but that's life unfortunately.

Acunatang, these are all the Dr.Lowe links I have bookmarked. I probably cribbed most of them from Shaws.

web.archive.org/web/2010111...

web.archive.org/web/2010073...

web.archive.org/web/2012012...

web.archive.org/web/2010103...

web.archive.org/web/2010103...

web.archive.org/web/2010103...

thyroidscience.com/Criticis...

hypothyroidmom.com/thyroid-...

web.archive.org/web/2010103...

web.archive.org/web/2010103...

web.archive.org/web/2011091...

web.archive.org/web/2011123...

facebook.com/ThyroidDisease...

dynamicchiropractic.com/mpa...

thyroidscience.com/Criticis...

acunatang
acunatang in reply to Clutter

Wow thank you, it will take me a while to get through all that but thanks! :)

Clutter
Clutter in reply to acunatang

Acunatang, you're welcome. I doubt it will all be relevant to you.

LouiseRoberts
LouiseRobertsAdministrator

Yeah - our copy got lost in the post at some point! :(

We only have Lyn's personally signed copy now and, for obvious reasons, she is not willing to send that out. :(

Sorry!

L

x

No worries, thanks anyway! Can I ask what did Dr Lowe die of?

LouiseRoberts
LouiseRobertsAdministrator in reply to acunatang

It was complications due to a head injury. :(

thyroiduk.org.uk/tuk/news_a...

L

x

Oh dear, how sad, is there anyone carrying on his work? Having read a lot of threads on here and a lot from the links sent to me, it seems he was not being listened to in the right fields. I know lots of people with Fibromyalgia who don't have any idea that it might be linked to their thyroid. I have told them all to have their thyroids checked but the sad thing is the bloods might come back normal and that will be the end of that for them. I have fought the medical profession for years to recognise that I have a thyroid problem. I have been buying my own Armour for years until my body developed a lot of pain which I put down to Fibromyalgia, the doctors still think I have Rheumatoid Arthritis. I think I am like Dr Lowe in that somehow I am resistant to thyroid hormone, anyway I am now up to 75mcg T3 and I think I am starting to feel slightly better but I know I still have a long way to go. I think it is criminal what the NHS are doing to Hypothyroid patients and Fibromyalgia patients, to tell people they just have to live with their condition is criminal and to say they go by the mantra "First do no harm" is a joke. My doctor told me that he couldn't prescribe T3 as he took the oath to "First do no harm" yet he was quite willing to give me amytriptalene, Gabapentin, or anti depressants or strong painkillers which are addictive. Is there any campaigning being done to change the way blood test results are read? It seems to me that the blood tests are not accurate anyway. My bloods were normal during the worst phase of my Fibromyalgia, which is when I can barely walk, can't move my hands as they are swollen, pain in my jaw which restricts my eating, pain in wrists which restricts movement etc etc etc, severe lethargy, freezing cold! I was on Armour at the time but there is obviously a problem when they can't detect the cellular level and just take the blood readings. Anyway I have had my rant but if there is any campaign I would like to be part of it and when I am well I would like to raise funds for any projects etc that are carrying on the good work of Dr Lowe??

LouiseRoberts
LouiseRobertsAdministrator in reply to acunatang

I'm sorry but we are not aware of anyone carrying on his work. :(

You may be able to get in contact with his widow, Tammy Lowe to see what has happened to his website /work etc.

L

x

Thank you, I will try that! X

acunatang, I can't tell you how many times I wish I'd bought Dr Lowe's book when it was still affordable. I thought about it, around 8 years ago, and temporarily put the idea to one side. 'Temporarily' has a nasty way of becoming 'permanently'. ;)

My only option now, and this applies to anyone in the UK, is to borrow a copy from the British Library, which I will do, if I can ever shift any of this wretched brain fog. There is usually a fee attached and, from my past experience, a large or rare book has to be read at the county reference room, which may or may not be convenient.

acunatang
acunatang in reply to Hillwoman

Thank you I will try the library! I didn't think it would be available there but thanks!

yldonline.com/tpadocs/Dr_C_...

Dr Lowe's web site

acunatang
acunatang in reply to Angus1

Thanks I have already had it from the library and read it!

machineman
machineman in reply to acunatang

did your conditions improve?

acunatang
acunatang in reply to machineman

I posted this originally last year and have definitely improved since then! It is a very long story and my thyroid meds are still not stable but I am not having all the pain and lots of things have improved but I'm not fully better! Hope to be by about July this year!

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