Help please ! : Hi, Wondering if anyone can help... - Thyroid UK

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Help please !

Sammiieees profile image
8 Replies

Hi,

Wondering if anyone can help! I thought I had an underactive thyroid (basically have all the symptoms) doctors ran a full blood test (taken late afternoon) but only tested TSH which came back at 2.55 which they said was in range so no issues and dismissed me.

I wasn’t feeling confident so did a private test with Medichecks (took first thing in the morning) and this is my result. I’ve done an econsult to show my doctor but worried they are going to dismiss me again! What can I do/say to get them to help me ?!

The tests also showed my b12 was on the low side iron could be better and deficient in vitamin D !

Thanks in advance !

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8 Replies
SlowDragon profile image
SlowDragonAdministrator

If this is first abnormal thyroid result, guidelines are to retest again in 2-3 months before considering starting any levothyroxine

This is because levothyroxine is usually a lifelong replacement hormone. It’s important to do two tests to make sure it’s not a temporary blip

However your high thyroid antibodies confirms autoimmune thyroid disease and the likelihood that you will need treatment

While waiting improving low vitamin levels can significantly improve symptoms

Also get coeliac blood test done before trialing strictly gluten free diet

How low are vitamins

Please add actual results and ranges

Sammiieees profile image
Sammiieees in reply toSlowDragon

Thanks for all the info !!

Test results
SlowDragon profile image
SlowDragonAdministrator in reply toSammiieees

Active B12 below 70 is considered suspect

SeeGP and Request GP test B12 and folate

NHS test will be serum B12 (range typically 180-680)

Your result likely to be well under 300

You could request testing for Pernicious Anaemia now.....or wait to see how low B12 is

See GP and show them vitamin D results

GP should prescribe 1600iu everyday for 6 months

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

GP will often only prescribe to bring vitamin D levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But with Hashimoto’s, improving to around 80nmol or 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via NHS

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with hashimoto’s we frequently need higher dose than average

Calculator for working out dose you may need to bring level to 40ng/ml = 100nmol

grassrootshealth.net/projec...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

Taking too much vitamin D is not a good idea

chriskresser.com/vitamin-d-...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

2 good videos on magnesium

healthunlocked.com/thyroidu...

Vitamin D and Covid

Notice how much vitamin D many of these medics are taking

vitamind4all.org/letter.pdf

Sammiieees profile image
Sammiieees in reply toSlowDragon

Thank you for all this! I’ve done an econsult with a doctor and should hopefully get a call back tomorrow to discuss these results after they said their result came back fine and I was fine :)

SlowDragon profile image
SlowDragonAdministrator in reply toSammiieees

Ferritin is low, but not low enough for GP to consider testing for anaemia

What’s your diet like, are you vegetarian or vegan

Heavy periods are common sign of being hypothyroid and will tend to lead to low iron and ferritin ask for full iron panel testing for Anaemia

Look at increasing iron rich foods in diet

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Links about iron and ferritin

irondisorders.org/too-littl...

davidg170.sg-host.com/wp-co...

Great in-depth article on low ferritin

oatext.com/iron-deficiency-...

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

Thyroid disease is as much about optimising vitamins as thyroid hormones

healthunlocked.com/thyroidu...

restartmed.com/hypothyroidi...

Post discussing just how long it can take to raise low ferritin

healthunlocked.com/thyroidu...

Never supplement iron without doing full iron panel test for anaemia first

Post discussing why important to do full iron panel test

healthunlocked.com/thyroidu...

Sammiieees profile image
Sammiieees in reply toSlowDragon

Not vegetarian or vegan and a good healthy diet! Currently following a low/no carb high protein diet with lots of veggies. My periods are awful and have always been bad ! Was diagnosed with Endometriosis after the birth of my daughter 3 years ago. X

SlowDragon profile image
SlowDragonAdministrator in reply toSammiieees

Endometriosis and autoimmune thyroid disease often linked (though GP unlikely aware of that)

SlowDragon profile image
SlowDragonAdministrator

So your test shows you have high antibodies this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

So getting vitamins optimal by supplementing is first step

Poor gut function with Hashimoto’s can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

healthcheckshop.co.uk/store...?

Assuming coeliac test is negative you can immediately go on strictly gluten free diet

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

ncbi.nlm.nih.gov/pubmed/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

ncbi.nlm.nih.gov/pubmed/300...

The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

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