Can anyone help interpret my thyroid bloods?

[Ally1234567]

Hello,

I have Graves’ disease, antibodies are normal list treatment for 2 years. I just wondered if anyone can help me interpret the t3 and t4 results I have had this week.

I stopped carbimazole 5 months ago, since had a miscarriage and rechecked 5 weeks after.

Do these readings suggest why I still feel fat and exhausted? I’m awaiting results of day 3 fertility bloods and have shown to be vitamin d insufficient, unsure whether these thyroid bloods are normal or optimal!

Many thanks

Ally

[pennyannie]

Hey there Ally :

Can I just get a catch up :

Last time you posted there was confusion as to if antibodies had ever been tested and since you were down for a thyroidectomy the endo dismissed this question as he thought the antibodies were irrelevant :

So, now no AT drugs, hopefully no more mouth ulcers, and what look like ok results, and do we now know which antibodies were initially over range and positive ?

Truly sorry about the miscarriage - sending several " proper " hugs ;

[Ally1234567 in reply to pennyannie]

Hello Pennyannie!

Actually yes, I have missed a huge chunk of the story there!

So, back September I had the TRAB TPO and the other one tested which all came back negative, but my new consultant apologised that it may be a false negative due to long term treatment on Carbimazole.

Then in November I stopped the Carbimazole to prepare for a Thyroid uptake scan, which showed my thyroid is diffusely overactive (?), consultant then decided it was a good opportunity to see how I was off the Carb and my thyroid remained in range, I was then told to postpone surgery and TTC, which we did very quickly but I miscarried around 8 weeks (thanks for the hug)

I had my antibodies and TFTs checked around 6 weeks pregnant and my TSH had dropped a bit to 2.5 and today’s readings are my latest.

At the moment I’m postponing surgery as I just don’t know if I really need it. My GP is phoning tomorrow with my Day 3 bloods as they have come back abnormal but everyone says the thyroid isn’t too blame. I just don’t know, despite being ‘in range’ it still feels at the heart of all this, especially as my scan shows it is overactive.

Decided to get a second opinion with a reproductive endocrinologist once I know tomorrow’s results, to just focus a bit more on fertility as I just don’t know if I’m really optimal.

Long old story there!! Thank you for bearing with! Ally

[Ally1234567 in reply to Ally1234567]

Ps, after keeping a very detailed diary, I found the mouth ulcers always occur when I have a surge in hormones, so at ovulation. So it will be interesting to see what my Oestrogen levels are.

From my limited knowledge, the thyroid is quite cosy with all these hormones so I just want to find the missing puzzle piece and figure out what is going on!

[pennyannie in reply to Ally1234567]

Yes, absolutely : I was thinking the mouth ulcers may have been a side effect of the Carbimazole which was suggested last time around.

Ok, so I would still ask for copies of your medical records and I'm sure this second endocrinologist will want definitive proof of what he is looking to treat and maybe he can explain diffusely overactive and what it means for you.

There may well be peaks and troughs in your T3 and T4 when ovulating and this print out may well help you understand where you are in all this.

Peace of mind is everything - you are entiltled to copies of all your medical records so it's not as though you are being unreasonable .

Role reverse this, as I'm sure any doctor will want copies of his medical records and get answers to questions as to what it all means in laymens terms.

Being " in the range " is just one consideration : and the ranges are too wide to really be of any value which is why you still feel as you do,

Everybody's unique set point is different and being and feeling well can be the difference of just one or two decimal points within the range :

As these ranges stand your T3 is at around 51% through with your T4 at around 34% :

For hypothyroid people we usually see these reversed with the T4 being the higher number of the two as T4 converts to T3 within the body.

I don't know how long it takes for the AT drug to fully leave the body.

Nor for your body to re-adjust itself after this medication.

Your own natural ratio is coming in at just over 3.00 : which is showing your metabolism running a little faster than the " so called " normal : but again this may well be normal for you.

But since you describe yourself as fat and exhausted I'm tending to think that whilst you are " in range " these levels do not suit you:

Optimal ferritin, folate, B12 and vitamin D would help rule out a few other issues :

You could still be exhausted from everything that's been going on : especially if you have experienced a Graves " hyperactive " phase as your whole body will have been at heightened levels of everything and it takes time to repair and restore balance.

I'm sorry I've no real answers, only further questions !!!

Maybe it's still a question of time to get back on an even keel .

[birkie]

Hi Ally123456❤️

Truly sorry for you miscarriage 😢

Have you noticed your TSH decreasing over time? Obviously being on carbimazole would make your levels look normal or at least that's what the drug should do (ptu) also.. I'm telling you this as my experience was my TSH started to fail some years ago going from 2.35 or there abouts to eventually being suppressed (I had no knowledge of this as my gp never told me and only did TSH not T3 or T4... I found these results in my medical records!..) I was eventually diagnosed as having hyperthyroidism (overactive thyroid then graves after the uptake scan, removal of thyroid due to it being very toxic in 2019..now here's the thing, I could not take the anti thyroid medication both carbimazole and ptu.. Because my thyroid was so toxic... Because I could not take it my thyroid bloods became worse my until my T3 was 39.5 and my T4 was 100..TSH suppressed this happened over a time period from Oct to my hospitalization in jan/ Feb 2019.... So I suppose what I'm saying is if you can get you bloods done ever 6/7 weeks and keep a check on Yr levels.. See if TSH continues to decrease and see if T3, T4 increase any) .. Also about thyroid anti bodies mine were tested early on (found results in my records) said negative, then tested again in 2019 and were positive 🤷‍♀️