Hi everyone I've recently joined nice to meet you all, I have read lots of posts all very interesting and very supportive,sadly I have have a GP that top priority is fob off,I have suffered many health issues sepsis luckyto be alive went into renial failure always had ibs which after the sepsis got worse 2 nervous breakdowns in my younger years 2 bouts of cancer,anorexia diverticulitis, gall baller removal appendix 3 miscarriages.
A little about me hey still here fighting on to a better me I've had a under active thyroid for some 19 years during that time my levels were up and down so increases were made I was never well caught everything going started with bone
Pain ,exrays showed i had osteo penia and bone density deterioration.
I took things into my own hands as I believed my symptoms were linked to my thyroid i took my results from my doctor and went to see a thyroid specialist,it was totally different my gp said they were in range.
The specialist advised 3 monthly check ,my surgery only honoured this 2 times,
My vitamin d was low and bone clinic advised to take 1 effervescent vitamin d per day then test later,they really upset my stomach, so I was advised to stop them no other alternative was offered or follow up test done I was told to leave them off.
Further on I have recently had my thyroxine changed like many on here from teva to astro I have experienced burning skin pins and needles legs arms tingling lips,joint pain pulsating hands which go very red,can stand any form of heat irritable, short tempered dizzy vertigo balance.
Sweating in the night bowel changes .
Wind heartburn stomach cramps which i strongly believe is liked to my thyroid.
At present I am awaiting bloods to come back tomorrow.
Full mot I have a wonderful chemist whom asked my symptoms and said sounds like a allergic reaction to new meds,I did leave the astro off for2 days marked improvement no burning skin or joint pain ,balance not too good,but no blurred vision and minimal tingling felt much better I used some 25mg chemist said take 4 and see head a bit woozy and balance not too good tinnitus back bit hypo can't sleep.
I was informed by the chemist that at 66 the dose is usually less ?
He said maybe you have too much thyroxine.
Can anyone please confirm that the levothyroxine astro immediately desolve instantly in your mouth never known this.
Thankyou for your time.
Vivien.
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Caldereta
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Many of your symptoms suggest low vitamin levels, extremely common when under medicated
How much levothyroxine are you currently taking
What vitamin supplements are you currently taking
First step is to get FULL thyroid and vitamin testing
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
Presumably you have Hashimoto’s?
Ask GP to test vitamin levels
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Is this how you do your tests?
Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine
Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins
Good morning,thankyou for your prompt response,I don't have hashimotos as far as I no.In the blood test the doctors only doing the T4.
B12 foliate Ferrin shes added suspected diabetes.
No vitamin D i don't take any supplements as they seem to give me a upset tummy,I will have to get what you suggested done as I believe my Gp wouldn't she was very sarcastic when she knew I had gone private 4 years ago saying the private sector are only after the money,and as good said they will tell you anything to get money.
Today the bloods should be ready so I can forward result.
Thankyou very much for all the valuable information.
Sorry forgot to add l00mg of levothyroxine astro I am some what confused as what the T3 T4 and other information to do with the thyroid ,were you suggesting I need a increase as one doctor once said low function means you have to much
Levothyroxine??
Some years ago my thyroid was up and down they couldn't stabilise it and asked many times your sure your taking your thyroxine medication.
I had a similar kind of reaction several years ago when I was changed from Teva to another brand. Tingling, numbness and shooting hot sensations up my legs. I was actually hospitalised with a suspected stroke! But this was later ruled out and it was deemed ‘a possible thyroid episode’. I now believe that it was due to the fact that I’m lactose intolerant (I didn’t know at the time) and as Teva is lactose free ... I believe nearly all the rest are not ... the change of tablet probably meant my body wasn’t able to absorb as much T4 leading to a sudden drop, as well as setting off an allergy like response in my body. I wanted to let you know in case it throws some light on what happened to you but also, if you haven’t done so already, you my might want to consider cutting out dairy foods for your general health and well-being. Honestly, I would never have believed I had a problem ... I loved dairy! ... but cutting dairy products out has made a huge difference to how I feel and now whenever I have the tiniest bit by accident I have a HUGE reaction. All the best ☺️
Hi thankyou for your valued input well yes I've been on lactose free milk for at least 4 years now.I had a pain like the worst ever that came from under my right rib up my back through to my left breast I almost vomited pain was so bad started slow and built to a severe pain I've had this before but not so severe this knock me off my feet and lasted longer.
It like severe cramp type pain.
My bloods are to be looked at today but only doing the T4 vitamin B12 and others.
Hi many thanks for your support I could only see she did T4,I have just rang Gp and they informed the tests came back one yesterday and one today doctor has to look yet so waiting,the private testing is there a company that do all from vitamins thyroxine levels antibodies?What are the correct levels of the thyroid readings please?
I gave you the links to the most popular tests in my very first reply above
Medichecks is usually cheapest
TSH, Ft4, Ft3, both thyroid antibodies, vitamin D, folate, ferritin and B12 - £79
Often on offer on Thursdays ....but not this week
All thyroid tests should be done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test
If taking any supplements that contain biotin you must stop these a week before ALL BLOOD TESTS as biotin can falsely affect test results
If taking any iron supplements stop these a week before testing ferritin levels
All private tests should be done early Monday or Tuesday morning and then post back via tracked 24 hour postal service
Hi here are the thyroid tests now which you asked to send,I have asked for she is doing me the antibody vitamin D in 2 weeks as I do have to increase my dose no wonder I felt awful.There was something else in the electrolytes where she said was dry,but reapting with the thyroid function and others I've mentioned.
Hi thanks she gave me them over the phone,but the practice nurse is calling me on Tuesday to do the very overdue checks as I have complained,so will see if she will give them to me I will explain I need the full description. I totally agree 2 weeks is too soon I live and worked in Spain and that when they retest.
I was researching teva been on them 20 years ,but my thyroid at the time was not right it ties up with those dates of recall I was asked many times am I taking my medication,on what I can find their was incificent dose in them I have more to do as yet.
So you should be able to get online access to your medical records and blood test results
Ask to be registered for online access to your medical record and blood test results
UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.
In reality many GP surgeries do not have blood test results online yet
Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.
Important to see exactly what has been tested and equally important what hasn’t been tested yet
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
Ask GP to test vitamin levels
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Ok will do funny last night since the increase my neck glands feel painful and tonsills plus a intermittent cough and the tingling in my hands plus can't sleep the increase has made this worse the sleeping but the glands and the throat issue has subsided this morning till I took thyroxine this morning and the pressure feeling in my glands ,to top it all they have sent the wrong dose.I give up I am doing the private testing for all
Hi I've just found these readings don't no whether they help?Also found result of glucose test which said moderate hyperkalaemia to retest in 2 months not tested,also at 6 months not done.
Vitamin d should had been followed up as was requested not done as upset tummy told to leave them off.
The doc did do B12 and foliate she said only a discrepancy on the electrolytes something about one is showing dry in the urea.Just walked upstairs heart is pounding breathless will try to get teva.
Hi thanks again,Well they sent wrong dose i would change doctors but where I live not on reviewing surgeries best one says out of range at 2 miles away rang up the surgery to tell them they've sent 50mg which I never have shes a locum AGAIN says it all but will ask for those results ,the receptionist said you had a 100mg in December yes but allergic to thatand now I'm due again and sent 50s different make again .
So talked to the chemist because they are very good and more knowledge, I had to call tomorrow to the pharmacist who I've been dealing with to see if he can get teva,the one they've now changed for astro.
Hi I getting the print off of results today so will send you,I haven't been well my sinuses and the glands in my neck are painful tum a bit upset legs shake,the doc says viral infection all my gums and teeth ache too.So I will send them over to you ASAP she is doing my thyroid plus antibodies and vit d next Friday and I know its too soon as you say I will see if I can get that thyroid test later and nothing to eat and no thyroid meds till I come back.
They have never done the thyroid test that way ,its been anytime when I've eaten and had my meds so now you made me aware I will endeavour to do it that way.
Thankyou I was taking 100mg hasn't been increase for about 5 years The b12 seemed ok on checking just the other tests to do the urea retest vitD and to see if its immune linked my thyroid.
Hi a lot to tell not be well at all as you know having issues with the Gp ,any how I was told I had a viral infection funny since the change from teva symptoms got worse on astro,well a trip to A&E advised a awful experience my head was funny dizziness hypo at times sweating nausea hot temperature in the morning low dry mouth ,bloods were done all good ,urine ok sinuses and gum pain and swollen.The tests I said that doctor did I was told today,by a personal visit from the owner of the surgery that my levels were ok I said your other doctor said they were low hence the increase ,he said different doctors have different thoughts on the symptoms of a patient.
Because I've blown big time he now doing personal mmm,he's doing vit d and in 2 months of 125mg see what is going on hes doing the immune you spoke of liver antibodies as well ,cortisol levels.
Its strange I'm hypo then rapid heart beat my head goes funny im cold one time then hot anxiety short tempered.
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