New Endo appointment coming up this week, any thoughts.

[knitwitty]

Hi there

I have an Endo appointment coming up this week, I just wanted to share my latest results and see if anyone wanted to comment on them, I feel better than I have done for years.

I take 75/87.5 mcg on alternate days of Levothyroxine and I take 12.5mcg of T3 ( tiromel) split into two doses , one at night with my levo and the other first thing in the morning.

These are my results:

TSH 0.005 ( 0.27-4.2 ) this have been suppressed since I started T3, endo doesn't seem to mind !

T4 total 107 (66-181)

Free T4 20.6 ( 12-22)

Free T3 6.57 (3.1-6.8)

TPO <9 (<34)

Tg A 11 (<115) used to be around 450 prior to going GF

Vitamin D 123 (50-175 ) I take 3000iu daily all year round to maintain this.

Vitamin B12 510 ( consider reducing dose if above 569 ) I take a bit B complex

Folate 30.2 ( 8.83-60.8 )

Ferritin117 ( 13-150)

Magnesium 1. 0 (0.7-1.0)

Hs CRP 3.6 (<5) This was 7.something a few months back so I'm guessing that any inflammation is reducing.

Is there anything I need to be aware of that might be flagged up at my appointment so I can be ready, the endo has commented before that TSH will be suppressed if taking T3.

Many thanks in advance.

[SlowDragon Administrator]

Was test done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test and last 6.25mcg of T3 8-12 hours before test

Did you stop vitamin B complex a week before blood test

How do you feel?

Results look excellent

[knitwitty in reply to SlowDragon]

Hi SlowDragon thanks for replying.

Yes I stopped B12 10 days before, and I did the test first thing before eating or drinking , last dose of levo 24 hours before and last dose of T3 10 hours before.

I feel great , better than I have in years.

I haven't used BH so I was unsure what the total T4 refers to and my magnesium is on 1.0 ( 0.7-1.0) so I wasn't sure if I should reduce the amount I take.

[SlowDragon Administrator in reply to knitwitty]

Do you mean you stopped vitamin B complex,....not just B12

Great to hear you’ve made such good progress

Total T4 shows all levothyroxine in blood, whereas Ft4 is what’s available

Sounds like you have an enlightened endocrinologist

Were they from Thyroid U.K. recommended list?

If not, please email their details to Dionne at Thyroid U.K.

[e-mail]

Magnesium test is unreliable. Only measures what’s in blood not in cells

[knitwitty in reply to SlowDragon]

Thanks again SlowDragon

I only take a B Complex and I stopped that 10 days before the test.

The Endo seems to be more knowledgeable than most and was on the list from Dionne but he is still refusing to prescribe the T3 on the NHS ( despite me having the DIO2 gene mutation and despite me feeling so much better on the T3) and even though he has written to my GP 3x to ask them to prescribe it, they are refusing on the grounds that they don't feel "comfortable" prescribing a medication they have not prescribed before, ridiculous I know.

I'm guessing the magnesium is fine and I don't need to reduce my current dose.

Thanks again.

[SlowDragon Administrator in reply to knitwitty]

At least it’s great that endo is knowledgeable that TSH will be suppressed on T3

But obviously unacceptable that endo or GP refusing to follow clear guidelines that if you have clinical need NHS should prescribe

[knitwitty in reply to SlowDragon]

Agree completely, but I'm glad he at least acknowledges that TSH is suppressed on T3.

I'm still badgering him on the NHS prescription, have also been in touch with my MP about the problem of being unable to access T3 on the NHS, but have not followed that up in recent months due to covid.

I just wanted to thank yourself, Greygoose , Hellvella, Shaws and SeasideSuzie for all your help in the last couple of years I wouldn't have made any progress without you all.