T3 LACTOSE FREE: hi everyone ❤️ Just a quick... - Thyroid UK

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T3 LACTOSE FREE

birkie profile image
11 Replies

hi everyone ❤️

Just a quick question about lactose T3 I've been on this for over 4 months but my T3 Remains at 3.2.. My new endo has put me on lactose free T4 I've just had bloods taken I get the results on Friday.. But my question is if I was on T3 alone would my T3 go higher?? Is this a conversion thing because even when I was on T4 after my operation TT.. My T3 has never really moved much.. 🤔🤔

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SlowDragon profile image
SlowDragonAdministrator

Most people on levothyroxine plus T3 find they need both Ft4 and Ft3 at least 50% through range

When on just T3 obviously Ft4 will be extremely low

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

when on T3, make sure to take last third or quarter of daily dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test

Is this how you do your tests?

birkie profile image
birkie in reply toSlowDragon

Hi slowdragon ♥️

Yes I stick to the regime.. I always ask for earliest appointment don't eat drink only water.. Obviously my last blood draw I had requires me to see the doctor as I was asked to make an appointment so will post those results when I get them.. As I've said before my endo wants me to wean off T3... I've been on 125mg T4 and 20mg T3 the last few weeks I've been splitting the dose as taking the whole amount makes me hyper but even splitting it I still feel hyper that's why the doctor took bloods she noticed my hyper symptoms 😢

SlowDragon profile image
SlowDragonAdministrator in reply tobirkie

Are you splitting 20mcg T3 as 3 doses at 8 hour gaps

Approx 10mcg at 7am, 5mcg at 3pm and 5mcg at 11pm

Taking levothyroxine at bedtime or morning?

birkie profile image
birkie in reply toSlowDragon

Hi slowdragon

It's hard to split the T3 as it's a 20mg tablet I split in in half so that's 10mg I take the split dose of T4 T3 one in the morning at 8am and the other before bed between 9.30 10pm..also I've to ween off the T3 so I've been taking only 10mg split for the last week but no improvement in hyper symptoms.. The doctor thinks I could be hypersensitivity to T4 again that's why she took the bloods.. 🤷‍♀️

SlowDragon profile image
SlowDragonAdministrator in reply tobirkie

Hyperthyroid type symptoms can be due to high Ft4 and low FT3

You can’t assume these symptoms are due to over medication - they can be due to adrenals trying compensate for lack of Ft3

Your results have always shown low Ft3

Looking for Ft3 at least over 5.5 (3.1-6.8)

Cutting T3 into 1/4’s using craft scalpel like this

amazon.co.uk/Modelcraft-Sca...

birkie profile image
birkie in reply toSlowDragon

Hi slowdragon ❤️

Just trying to grab at straws the bad hyper symptoms have started when I went on the T4.. Combined with the T3... But as you mentioned adrenals I had a cortisol test recently which as my endo said was in the grey area he has requested a short synacthen test for which I'm just waiting on.. So I might know more when this test is done I'm also having a test on the kidneys to.. ♥️

SlowDragon profile image
SlowDragonAdministrator in reply tobirkie

So that suggests poor conversion and high Ft4 are causing symptoms

What was cortisol test result?

birkie profile image
birkie in reply toSlowDragon

Hi slowdragon ❤️

My cortisol was done at 9am and was 178...im unfamiliar with cortisol 🤷‍♀️ but I can tell you why he requested the blood test, I told him when I had a really bad flare up of my colitis the hospital put me on steroids I was on them for 4 months that was the best I've ever felt I had little body pain had energy and just felt great of course I had to slowly ween of them and when the course was finished I went back to pain exhaustion, and felt so bad again.. This was before my diagnosis of hyperthyroidism but I know within the year I was having hyperthyroidism symptoms but gp just said it was the menupause it wasn't it was hyperthyroidism my records for 2015 when I was in hospital in 2015 after having blood work.... Possible hyperthyroidism then it says 5 months later after another round of bloods thyrositis? I was not a wear of any of these until I requested my records and their they are in black and white I was never informed and when I started with bad hyper symptoms in 2017 I told my gp I had been diagnosed in 2003 with hyperparathiyroidism he never bothered to look in my records and always said my thyroid results were within range.. If he had he would have surely seen the hyperparathiyroidism, hyperthyroid, and thyrositis in the records... After having the hyper symptoms I joined here and kept saying my symptoms were thyroid related.. One he even wrote it in my records... She thinks all her symptoms are her thyroid they are not!! Imagin his face in 2018 when I eventually got another gp to do bloods and they came back as hyperthyroidism what a wally he is... Fortunately for me I don't see him now and I think that's why I'm getting all these tests something that should have been done a long time ago.. 😠😠😠😠

SlowDragon profile image
SlowDragonAdministrator in reply tobirkie

So cortisol is extremely low

Hidden may pop along

Adrenal exhaustion common underlying issue when has long standing thyroid issues.

in reply toSlowDragon

Your cortisol is on the low side, unfortunately often when you are put on a long course of steroids it can affect your adrenal glands & they stop working efficiently which seems to be happening to yours. Cortisol around that time of day should be between 350-550nmol/Ls depending on the reference range of the lab. The short synacthen test should show if this is the case with you. Unfortunately you may be in for a wait as there is an issue with tests being done at the moment due to a shortage of the reagent used in testing from Roche. if it is found that your adrenal glands aren't responding well enough then you may need to be on steroids for life. Hopefully now you are off the steroids your adrenal glands will start to work more efficiently & produce enough cortisol.

birkie profile image
birkie in reply to

Hi thanks for the reply ♥️

I was on steroids in 2015 so I think my levels would have returned by now😊 was on them for 4 months weening off them or other words lowering the dose as the months went on... My cortisol was never checked after the course finished as far as I'm aware.. My new endo requested the cortisol test.. And yes your right about having to wait for my app been told it could be months.. 😠

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