lactose free levothyroxine

I have just been on a course of 25microgrames of levothyroxine for 3 weeks with the worst side effects ever extremely high blood pressure, inflammation ,anxiety ,like my eyes bulging out head pain jitters everything you could name ,and now my doctor has said that im not on enough , but I have just read the label that the levothyroxine has lactose in it and im very sensitiive to lactose I am gluten and dairy free , I now feel as though I was being poisoned , my doctor has told me to stay off them for a week and has re done blood tests to get the readings , but what are the alternative tablets to take beside the levothyroxine , because I feel if I have to take them again I will be seriously ill ,only just starting to feel better and my old self after not taking for 3 days!!

15 Replies

  • also did not mention have lost nearly 2 stone in 2 weeks ,and was near point to having to be put on a tracheostomy for the breathlessness all due to within taking this tablet in 2 days

  • Lollipop, do you have lactose intolerance to other medication? There two European brands of lactose-free Levothyroxine which can be prescribed and liquid thyroxine in this link

  • not that I know of , I have never felt like his with any other types of medication , can I get these European lactose free prescribed in the uk ,also which do you think is best the liquid or tab form

  • Lollipop, You can if your GP agrees you have lactose intolerance and will agree to prescribe them. Otherwise, as Helvella suggests, use your NHS prescription to buy from Alliud or Henning. Website details are in the link below

  • I have been prescribed aliud lactose free t4, however have just been told by the pharmacist at the gp surgery that it has been discontinued.

  • Lolajone, there is a link to Henning who also do Lactose free Levothyroxine in my response to Lollipop3.

  • Thanks Clutter. I posted more as a warning for others really

  • Funny how I can see it available for sale right now in 50 and 100 microgram tablets.

  • Funny how easily I can believe that Helvella. Whether they are incompetent or obstructive the jury is out. They are apparently getting me some other lactose free t4 also manufactured by Aliud, it will be interesting to see what turns up

  • If you want to get some lactose-free levothyroxine, and you are willing and able to pay, you can buy your own quite readily. It is best of you have a standard NHS prescription which you can scan or photograph.

    Even if you do not intend to carry on paying like that, it represents a fairly quick and simple way of getting the product without going through the hoops that you might have to with GP and pharmacy.

  • where can I buy these from I don't mind paying as long as I don't have to go through what I have just been through I felt as though I was dying , I was also put on ramipiril 2.5 mg blood pressure tablets to try and reduce my 212/114 blood pressure which I add is still high at the moment but not as high its 170/112 so not sure if those where making the levothyroxine 25 micrograms any worse

  • Don't worry - I am very sorry you were so unwell. There is lactose-free levo on special prescription. Details:

  • P.S. also a very low dose of levothyroxine can give us worse symptoms. Cursor down to the date November 20, 2002 on the following link to see the effect of too low a dose.

  • Lollipop3,

    Levothyroxine can cause all the symptoms you mention whether you are intolerant to lactose or not.

    I experienced horrendous side effects when starting Levothyroxine 4 years ago, then felt slightly better for a while but am now regressing with other symptoms. Therefore be aware that you may experience a degree of side effects even with a lactose free medication.

  • i cannot understand why I have to go on them when I feel fine no symptoms just that doctor says that the bloods have come back that I have low thyroid ,its getting me down because they have done more bloods and im sure he would want to put me on a higher dose of them than the 25mcg that I was on .I have never had chest pains palpatations ,anxiety, headaches , my head was actually sore if someone had pulled my hair hard ,breathlessness , diarrheoa, very very high blood pressure ,all have come back down now off tablets and on amlodipine 5mg for blood pressure , im wondering if its just a iron deficiency I may have instead , as I felt I was overdosing on the levothyroxine, do you mind me asking what your symptoms where of side effects .

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