Self medicating : Hi, Latest labs taken 8am on... - Thyroid UK

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Self medicating

Blister4 profile image
12 Replies

Hi,

Latest labs taken 8am on empty stomach no biotin for 5 days. Not currently medicated.

TSH 0.83 (0.27-4.2)

Ft3 4.66 (3.1-6.8)

Ft4 13.8 (12-22)

Not able to test D, B12 folate or ferritin at this time

I’m desperate to feel better and would like advice on my labs, self medicating and where to purchase please....Thankyou x

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Blister4
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12 Replies
fuchsia-pink profile image
fuchsia-pink

You're not on thyroid meds and won't get them from your GP with TSH in range. But you don't feel great, and free T4 is very low - only 18% through range; free T3 is better at 42% through range, but still low. You really want these both to be higher.

Have you had antibodies tested? If those are over-range and given the feeble T4 result you might get a prescription for a starter dose of levo ... otherwise you're looking at self-medicating x

Blister4 profile image
Blister4 in reply to fuchsia-pink

Hi

I tested antibodies a few years ago I had raised Tgab but not Tpo.

Gp not interested and endo even less so!

Zazbag profile image
Zazbag in reply to Blister4

Have you ever had a raised TSH?

Blister4 profile image
Blister4 in reply to Zazbag

Hi , TSH has always been low normal never raised.

It’s the low T4 that concerns me not really the TSH it’s kind of irrelevant. X

Zazbag profile image
Zazbag in reply to Blister4

It's relevant to a GP deciding whether to give you levothyroxine. Any history of raised TSH gives you more grounds to ask for it.

Blister4 profile image
Blister4 in reply to Zazbag

That’s the problem they only diagnose off TSH when other thyroid values should also be considered.

I will never be diagnosed off TSH but my ft4 is way too low. Despite having raised antibodies.

Hence needing to self medicate x

Zazbag profile image
Zazbag in reply to Blister4

Yep I know, I was just curious whether you had any history of raised TSH so I could understand whether the GP had any scope to prescribe it. Maybe it's central hypothyroidism. Have you asked them about that?

Blister4 profile image
Blister4 in reply to Zazbag

Sorry I understand now!

He laughed at me did the endo when I tackled him in central hypothyroidism!

I’m at my end and I know I can feel better than I do with a trial on thyroid meds!

Zazbag profile image
Zazbag in reply to Blister4

He laughed? What a pr***. Can you see anyone else? It's so unfair that they put people with zero energy in a position where they have to fight so hard, but in my experience being super persistent and annoying, e.g. booking frequent appts with the same complaints even though you know they won't do anything, just to cost them money and time so they realise that you aren't going to just disappear without a resolution, it may help you get the care you need. Make them realise that by not treating you, you are costing more healthcare resources through frequent appts. Or maybe change your GP surgery/endo. Some are a lot better than others...

JAmanda profile image
JAmanda

I think you really need to rule out your symptoms being due to something like vitamin deficiency etc. Cos those results don't scream thyroid. But yes get antibodies tested for info.

Zazbag profile image
Zazbag in reply to JAmanda

She tested with high TG antibodies

Blister4 profile image
Blister4 in reply to JAmanda

Hi

I’ve already had antibodies tested I had raised Tgab antibodies.

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