Hashis. Just got results back of 1.8 TSH from NHS so they have kept my Levo at 75mg. I take one and a half 50mg as the 25mg Veto gave me a headache.
Have asked for medical records to put on here but it’s taking an age to get them. After which I’ll pay to get some private tests done and make sure T3 and T4 are in order along with everything else.
In the meantime, I’m trying to do everything to make myself feel better. Last time I felt sick was mid August on holiday. While I was on holiday I couldn’t think what I could do, then I read on here alcohol causes symptoms to worsen in some people. So I cut out alcohol, started feeling better. Then I cut out gluten and suddenly felt MILES better. Like I can’t even describe. The episodes were getting to be constant and to have a whole month of being able to work and have energy is just great! I’m still quite tired and certainly not my old self yet but for once I actually feel like I’m getting there.
So I wondered what else I should look into cutting out, if anything else could help. I already don’t have dairy as it makes my psoriasis flare up. My Grandma sent me some info to say soy is bad and I did some research and could see grey goose had replied a year ago to something on here confirming this. I feel like they always know why they’re talking about so going to cut out that too (use soy milk regularly in place of dairy milk so almond here I come!).
Anything else I should try? My partner saw something that said foods high in iodine should be avoided. I’m wary of this one as I’m already on a limited diet (I also don’t eat red meat or pork - imagine going to a restaurant with me 😅). What do we reckon? Do you think I’ve cut out the main ones that can make our symptoms worse? Gluten, alcohol and soy?
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Flowerpot108
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Hmmm just looked into iodine. So adult daily recommendation is 150mg. Haddock takes you nearly twice over it! But salmon and eggs are fine and that’s the kind of thing I tend to eat. I don’t think I’m overloading so should be fine. Maybe i’ll just watch out for food crazily high in it. But is there anything else anyone has cut o it that made them feel miles better?
Good morning, I went on the AIP diet and in ten days all my symptoms had gone. Worth a try. I did it for nine months. I find that sugar causes me problems but apart from that I have managed to reintroduce foods with no problems. Hope this helps
I find free sugar (rather than sugar in fruit and veg) makes me more tired but I don’t have any evidence behind it.
Have you tried oat milk? It’s less chalky than almond milk. Also the increasing demand fir almond milk is causing lots of unnecessary problems for the environment .
There is no gluten in oats. There may be traces in the processing. This would be common in all processed food. It’s only an issue if you have celiac disease then you would look for a gluten free sticker.
I’m not taking any supplements 😅 I need to have these tests done ASAP ey? I still don’t feel 💯 so want to see what I else I can do to help with this. When I get medical records and these test results I’ll pop them on here.
I have hashis too and on 75 mcg levo. Based on advice and recommendations from the kind and knowledgeable souls on this forum, I also gave up soya and gluten. Was already dairy- and alcohol-free. Not sure if I'm one of those for whom being gluten-free helped, but it wasn't a great hardship to give it up (after the few weeks!) so I've kept to it. What has helped me was cutting back on sugar in all forms. Lost some weight (still have lots of excess fat, so the loss probably mainly water) and felt a lot more energised but made the mistake of re-introducing raisins. Dark chocolate, 70% plus is fine for me, a square (or 3!) maybe two or three times a week.
I seem to be quite tolerant of legumes, pulses and nuts and these form my main source of protein and carbs. Gluten-free rice pasta once or twice a month. Lots of green veg, carrots and liberal amounts of avocado oil - personal preference over olive oil. I eat organic sauerkraut nearly everyday as it's a good source of Vit C, and drink mainly rooibos tea and peppermint, chamomile, and Clipper's Wild Berry infusion. I don't get on well with coffee so have roasted chicory instead. If making drinking choc, I use coconut milk and cocoa powder. I eat coconut milk yogurts, peanut butter, ricecakes, buckwheat crispbread and corncakes, avocadoes, and the usual salad stuff. Also fermented cucumber, kimchi. I supplement with Vits D3, K2 Mk7, Magnesium, Selenium, B12, and B complex.
Of course what works for me wouldn't suit other folk, but I hope you find what does for you🙂
Wow that sounds fantastically healthy!!! Yes I’ve noticed since all this started getting worse I haven’t been able to have coffee. Thanks for the tips!
I gave up caffeine and alcohol a few months ago, it just sent my energy levels crashing. Gluten free for about the same amount of time but haven't felt massively better off it yet. Recently committed to giving up dairy too. Soy (and almonds?) can interfere with the uptake of levo into the blood (I think?), as well as walnuts, so at the moment I either drink oat or hazelnut milk (innocent have just started a range which is just hazelnuts, rice, water and a pinch of salt, which is amazing!). I use sunflower oil to cook as olive, veg (rapeseed) oil are bad for frying/heating (the good fat turns to bad fat) - coconut oil is also good though. Although coconut also has some ethical problems - as they only grow in the tropics (which are primarily poorer countries), many farmers who rely on growing their own crops for subsistence are forced to grow coconuts to meet demands. As some coconut milks also contain soy, a good Oat milk is probably the most conscientious choise!
I have also just started on the Wentz Hashimotos Protocol, seems a good way to support your body back to a healthier footing and to try and find your intolerances One good tip is replacing caffeinated drinks with hot water and fresh lemon - I've just discovered it and am loving it!
you have high antibodies this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
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a question for fellow hashi sufferers
Hashi and migraine/nausea
HASHI'S, HISTAMINE SENSITIVITY, THYROID
