D3 after TT: I was told by my endo to start... - Thyroid UK

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D3 after TT

Ullallah-6 profile image
6 Replies

I was told by my endo to start taking d3 in preparation for my total thyroidectomy back in March. He didn’t mention dose nor gave me a prescription. Nor said i should continue after surgery. I haven’t stopped as i have from sites like these read that most people take them. My question is does anyone know the dosage that would be good to take and are we meant to carry on taking d3 ad infinitum? i ask my endo all sorts of questions and have now given up as I don’t get replies.

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Ullallah-6 profile image
Ullallah-6
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6 Replies
Marz profile image
Marz

I would do a postal test to check your level and then dose accordingly. Your level is good around 100 if you are in the UK. Always good to take a maintenance dose during winter. How much are you taking ?

VitD is a steroidal pro-hormone and anti-inflammatory - so much more than a vitamin.

vitamindtest.org.uk

SmallBlueThing profile image
SmallBlueThing

Maybe it was to try and avoid a sudden drop in serum calcium if your parathyroid glands were damaged? Patients with hypoparathyroidism take a prescription-only form of vitamin D.

Ullallah-6 profile image
Ullallah-6 in reply to SmallBlueThing

No parathyroid glands were damaged that i know of.

SmallBlueThing profile image
SmallBlueThing in reply to Ullallah-6

Glad to hear it!

sciencedaily.com/releases/2...

SlowDragon profile image
SlowDragonAdministrator

When taking levothyroxine important to retest vitamin D, folate, ferritin and B12 annually

On vitamin D supplements, retest vitamin D levels twice year

GP will often only prescribe Vitamin D to bring levels to 50nmol. Some areas will prescribe to bring levels to 75nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

But improving to around 80nmol or 100nmol by self supplementing may be better

ncbi.nlm.nih.gov/pubmed/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7

It’s trial and error what dose we need

Calculator for working out dose you may need to bring level to 40ng/ml = 100nmol

grassrootshealth.net/projec...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

With your Vit D, are you also taking it's important cofactors - magnesium and Vit K2-MK7?

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

Ullallah-6 profile image
Ullallah-6

I take 100micrograms Levothyroxine and most days 1000 VitD3. I have not had any tests that show T3 neither with my private consultant nor nhs.

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