Latest bloods, returning symptoms, suggestions please

[seastar]

Hello all, been a while.

About 5 years ago I had very bad symptoms, at the time I was found to have Vit D of 7, and B12 of 15. My antibodies were elevated but all others bloods were in range. My GP wouldn't do anything other than initial doses of vit D, so I started to supplement D3 and B12 and went gluten free. The symptoms improved and I stopped sleeping 14 hours a day, although I was never back to my pre hashi self.

Then I started to get pain in my hands and I have been seeing a consultant for Rheumatoid Arthritis, while inflammatory markers were all low and within range, x-rays showed changes to my hands and I was prescribed Hydroxychloroquine, the swelling in my hands has now reduced as has the pain, although I do have problems with my hips and shoulders.

An ultrasound several years ago showed 9 nodules on my thyroid, I saw a Endo Consultant last year who said my TSH was normal and nothing was wrong, lots of people have nodules and elevated antibodies.

Does anyone have any suggestions as to what I can do next?

I'm not sure I have the energy to try and reason with my GP about trying a trial of Levo. I am back to sleeping 12+ hours a day, a 20 minute swim wipes me out for days, and the debilitating fatigue is back, I have had night sweats for 5+ years, but this has been checked and is not due to diabetes or menopause. Below is my latest panel of results via medicheck:

Thank you in advance to anyone who takes the time to respond. x

CRP: 0.7 range <5

Ferritin: 103 range 13-150

Active B12: 90.3 range >37.5 (currently supplement)

Vit D: 72 range 50-175 (currently supplement)

TSH: 0.89 range 0.27-4.2

Free T3: 4.03 range 3.1-6.8

Free thyroxine: 13.2 range 12-22

Thyroglobulin antibodies: 121 range <115

Thyroid peroxidase: 158 range <34

My heart rate is very low (52 resting), Blood pressure 120/90, overweight at 15 stone, cholesterol is just bordering on high.

[SlowDragon Administrator]

Looking at all your previous posts...TSH always very low ....think you are looking at a degree of central hypothyroidism alongside Hashimoto’s (quite common )

Email Dionne at Thyroid UK for list of recommend thyroid specialist endocrinologists who might (just might) acknowledge you need treatment ...

NHS and Private Lists

[e-mail]

You need a pituitary and thyroid expert

Have you had MRI pituitary scan, or prolactin test or cortisol and DHEA test, or Dio2 test

Roughly where in the UK are you?

[seastar in reply to SlowDragon]

Thank you, I'm N London/S Essex. I've not had any of the scans or tests. I did wonder if it could be pituitary related.

[Zazbag]

I'm so sorry seastar, your situation sounds like a nightmare. I hope you get the help you need soon.